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Thread: Bladder Infection

  1. #1
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    Bladder Infection

    Hello everyone. I am new to this site - this is only my second post.

    My husband is just over a year post-injury. He has only been home since March. He has been plagued with bladder infections. It is not just that he gets one and takes antibiotics and it goes away and then gets another one. He gets one and can't seem to get rid of it.

    He starts an antibiotic and it seems to be working and then as soon as it is finished the symptoms come right back. His legs get cold, his spasms get really bad, he just generally feels rotten and this last time he was getting really severe pain in his abdomen.

    During the past month or so he has been on a full dose of Cipro (orally) and then another couple of days extra. He was changed to Macrobid which seemed to work at first, but all of a sudden he was in extreme pain and ended up at the hospital.

    At the hospital they put him on intravenous Cipro for a few days and then changed him to oral Novo-Trimel plus Detrol for the bladder spasms. He is suppose to finish the full 10 days of Novo-Trimel and then stay on a mini-dose once a day for six weeks. The theory is that there is a secondary infection probably in his prostate that keeps re-infecting his bladder.

    This seemed to be working until today when he is getting the same symptoms back again - pain and tightness in his abdomen and his legs are cold (inside) again.

    They have done a CT scan on his abdomen and everything was normal. They have done bloodwork and urine tests galore, but nothing seems to come back definitive because he is always on antibiotics.

    I don't think he has built up an immunity to antibiotics because up until this past year, he really was never on antibiotics.

    I am really careful about sterilizing all his catheterization equipment.

    I'm just wondering if anyone has had any similar experiences with bladder infections or any suggestions. It is really frustrating because just when you think things are under control everything gets worse again.

    Thanks!

    Shelley

  2. #2
    When did he have urodynamics last? What are his bladder pressures? The most common cause of recurrent infections in those who do intermittent cath is high volumes and high pressures.

    Have all of these infections been febrile infections, or just colonized urine (with no symptoms)? Have all his antibiotic courses been based on culture and sensitivity reports, or just giving the most common antibiotic (such as Cipro)?

    Have you asked the physician about the sensitivity reports and if he has any resistant bugs? These can develop very quickly, and also can be passed on from other patients in hospitals or by health care professionals sloppy hand washing. It is not unusual to see them in people injuried much less than a year.

    Has your physician sent him to an infectious disease specialist for consultation?

    (KLD)

  3. #3
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    I'm not sure about all the proper terms for things, but Sean had eurdynamics done while he was in the rehab hospital. He has to wear a condom catheter all the time because he leaks in to the leg bag. I don't think his bladder would ever get full enough that it would cause a lot of pressure.

    I have discussed with the Dr's & nurses the amount of urine when we do IC's. That doesn't seem to be an issue.

    There was an original culture done - which I think showed a mixed culture. The doctor said that it was responsive to Cipro. I think that part of the problem is that every urine test after that has been done while he is already on antibiotics. In the hospital they couldn't get proper urine results or blood results because he had already been started on the Cipro IV. The doctor in the hospital did have an infectious disease specialist come in and speak with Sean and he thought that they had prescribed the correct antibiotics.

    The hospital referred a nurse to check on Sean since he came home from the local hospital and she came last night and saw that he was not doing well. She was going to get in touch with his family doctor today to discuss when is the next step to take. She thinks maybe he needs to be taken off all antibiotics for a few days and then take another culture to try and get a true reading of what is happening. It sounds like a good idea, but I am scared of how sick he will get if he is completely taken off the medicine.

    Thanks for your help.

    Shelley

  4. #4
    Hi my name is shawn. im a c5/6 quad and i was injured in 97. i had gotten bad infectionns like your husband did. then i started taking cranberry pills .. one 4 times a day. i havent had one since then which was in 98.. they do marvouleous things.. goodluck with it

  5. #5
    If he is voiding with an external, he probably has a high pressure bladder. Pressure is rarely volume dependent. He needs to have urodynamics done again to deterine his pressures, and to get him on the right meds to lower his pressures. Without this, he will have recurrent infections, and risks in the long run damage to his kidneys.

    (KLD)

  6. #6
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    Thanks for your suggestions. I will speak to the doctor about having the urodynamics done again.

    Sean does take cranberry pills - but only one per day. We will try increasing it.

    Thanks again everyone!!

    Shelley

  7. #7
    Senior Member McDuff's Avatar
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    I have been having the same problem for months. Finally the urologist camera scoped my bladder and found multiple stones. Had them removed yesterday. Now on hopefully my last go'round of antibiotics for at least a good while. Urlogist thinks that the stones "held" the infection and every time I wasn't on drugs they kicked back in. Maybe get this checked?

    McD

    "Rather be ridin' than rollin'"

  8. #8
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    Thanks for the suggestion of stones. Sean had his bladder scoped back in April - I'm not sure how fast stones can appear, but it is certainly something to rule out.

    Thanks again.

    Shelley

  9. #9
    I was the same as your husband. Then 2 years ago, I started taking 6000 mg of Vitamin C. Haven't had one since. The stuff is absolutely amazing, and it has made life a hell of alot better. Hope it works.

    Vike

  10. #10
    Senior Member Hunker's Avatar
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    You may look at this
    http://www.ic-network.com/
    I take "prelief" before and acid can hit my bladder my UTI's kept coming back, but my Uro determined I was clean. I found this site and getting better

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