After 3 years of constant severe neuropathic pain I have finally been diagnosed with nerve injury / compression at around T12. This is now causing me to be unable to control bowel movements first thing on a morning. I wake up and the bowe; goes crazy. The sphincter muscle is ok but I have barely 5 seconds to get to the toilet. When I go, pain rips up my spine and I pass out. This can happen anything from 1 to 9 times a day lasting up to 2 hours until the bowel is empty. Up to December I had constipation from taking opiates for the pain. I am no longer constipated. I can feel the bowel fluttering violently before I pass huge amounts of gas and then the bowel empties. The pain can take all day to calm down. MY GP has referred me to a bowel specialist but not a neuro surgeon and this could take 12 weeks wait. I'm terrified both of the pain and of the ultimate outcome. Please tell me if you think this could be fixed if the tethered nerve can be released or if not, what can I expect? Oxycodone helps the nerve pain but not the bowel pain and the fainting. I am so scared of having to live the rest of my life with this. I have tried all the other treatments for severe nerve pain and can't take anything else. It seems as if the bowel gets paralised at night when my back arches and releases as soon as I wake up and move.
Please help, I'm at my wits end.