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Thread: Canadian Committment to a Cure

  1. #11
    Senior Member lynnifer's Avatar
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    Just heard from the editor, it will be published in Tuesday's Windsor Star newspaper, yay!
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  2. #12
    Quote Originally Posted by lynnifer
    Just heard from the editor, it will be published in Tuesday's Windsor Star newspaper, yay!

    Great job Lynnifer!
    Great article!!!

  3. #13
    Quote Originally Posted by lynnifer View Post
    Let the letter writing campaign begin!

    Dear Letter to the Editor (Windsor Star, National Post):

    Thank you Prime Minister Harper! Thank you Rick Hansen! Thank you Tony Clement and Steven Fletcher! Thank you, thank you and thank you. Finally someone gets it!

    A wise person once said that to know where you’re going, you have to look at where you’ve been. Spinal cord injuries were only endured during the Second World War when better antibiotics and medical care meant secondary complications of paralysis could become survivable. Since that time, people afflicted with paralysis were in a homeostatic state for more than fifty years. Lumped with all disabled people and considered invalids or shut-ins until the sixties, we have come a long way from institutions, forced sterilization to access to medical care to quality of life issues and to the final holy grail, the cure. You’re right Celine, these are exciting times.

    Myself, I was twelve years old when I became paralyzed from the waist down in the summer of 1985 due to Transverse Myelitis. It had the same affect as if I’d broken my back in an accident leaving behind damaged myelin sheaths that resembled swiss cheese. Damaged myelin meant no signals could pass, sensation and muscle usage lost forever.

    With the advent of the internet and open communication between researchers and the end-user, it has become clear in the twenty-first century that spinal cord injury is reversible by several different possible avenues. In my opinion, the most promising are injury bridges across the spinal cord and growth factors that scientists at this very minute are working on all over the world. Technology may trump medical advances. I watch with anticipation while I continue surviving my life.

    There are secondary complications that threaten those with paralysis. Blood clots are common. Low bone density and fractures occur. The fatigue is undeniable. Muscle atrophy can lead to pressure sores, where bones become close to the skin. Pressure sores threaten to take lives with severe infections. Diabetes and cardiac illness can occur given the very nature of paralysis and the sedentary lifestyle it provides. There is no control over bladder, bowel or sexual function. Not to mention I had to pay $4000 more than every other condo owner in my building so the architect could alter his drawing and I could finally enjoy home ownership. I wasn’t eligible for insurance, whether life or mortgage. I’m only able to buy certain cars that can fit a folded up chair behind the driver’s seat – this left me with the Saturn Ion, reluctantly leaving my beloved Ford behind. Deemed too independent by local home care, I’ve been buying my own medical dressings for pressure sores on/off for several years. There is no financial aid for housing, transportation or medical supplies as I work full time; rotating shift work at that.

    My biggest fear as of late has been dying of severe infection due to non-healing pressure wounds on my feet. I am now thirty-four years of age but they have been there since I was seventeen. I wouldn’t even feel what’s coming and imagine I would have very little warning. Four years ago found me carrying around a portable IV and receiving antibiotics intravenously for most of the year, while I continued to work. All a doctor and I have to go on is how the wound looks and what lab test results show. I cannot tell the physician how it hurts or is feeling. I have sought out at least five doctors who all advised to amputate. Unbelievably, the usual response was, “Well, you’re not using them?” I flat out refuse. It’s an archaic knee-jerk response that I won’t entertain regardless of how many years of medical education are staring me in the face. So now I feel I’m in a race and I hope I’m here long enough to see the outcome. It breaks my heart every time I see a child in a wheelchair who I know is paralyzed.

    It is hopeful for me to see this $30,000,000 that Prime Minister Harper et al recently announced will go to a spinal cord injury research and rehabilitation network to improve the lives of those suffering paralysis; it is long overdue. Last year, the BC Premier gave the Rick Hansen Foundation $15,000,000 and I sent a letter to our Liberal Premier asking why Ontario couldn’t do the same. My reply was one that curtseyed to accessibility and inclusion, oh that old chestnut. The Liberal Premier went on to state in his letter that Ontario was working towards being accessible to all by the year 2029 which doesn’t fair thee well since I’ll be retiring from my full time job (but more than likely dead) by the year 2026.

    Overnight, it has suddenly become very clear who I’ll be voting for, and encouraging family, friends and co-workers to vote for, in the next federal election. Finally – they get it! A great start Prime Minister, you definitely have my support!

    Jennifer Spence
    Windsor ON
    I liked this letter a lot, I wonder how did it go?
    In God we trust; all others bring data. - Edwards Deming

  4. #14
    Senior Member lynnifer's Avatar
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    ***YOU DO REALIZE THIS IS FROM 2007 RIGHT?***

    It became Monday(not Tuesday) newspaper's front page with a horrible, horrible picture of me that I hope everyone burned! With that and my old job as a receptionist/switchboard operator ... I get a lot of, "I know you" when I go out. It's embarrassing.

    Thanks to letter-writing (another letter written by me and probably thousands of others), our very own Premier of Ontario, Dalton McGuinty (who's barely holding on in power) went on to donate $10,000,000 from Ontario to the Rick Hansen Foundation. It's hard to say no to someone who has done everything they were supposed to do i.e. I have worked since I was 19. Also, there was a local officer shot at the time and some of my co-workers said he is partial to police and was really quite upset at the funeral and that I should write for funding ... so I mentioned that I was a police dispatcher as well.

    That made BC, Alberta and Ontario who all donated to spinal cord research. I give Manitoba and Saskatchewan a pass for their low populations, the territories and the maritimes as well .. but Montreal never coughed up. Will you go after those members next?

    So now you know what happened. I cannot make a cure appear when there is none to be found. Barraging me and fellow Canadians will not make it happen any sooner. How can I go yet another year asking for donations when scientists have shown us nothing?

    I like the idea of Rick Hansen's Man in Motion spreading across the world. You should start a chapter in Italy! Lord knows they need some good press right now, what with Berlosconi. Since it would be your 'lire' or 'euros' you could demand where it goes if there were enough to stand (or sit as it were) behind you. I wouldn't be surprised if someone has already thought of this as he's on his anniversary world tour.
    Last edited by lynnifer; 02-22-2011 at 09:20 PM.

  5. #15
    "How can I go yet another year asking for donations when scientists have shown us nothing?"
    Dr.Wise,do you feel comfortable with this?

  6. #16
    Senior Member Van Quad's Avatar
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    Unfortunately, what the federal & provincial governments did was roll every single dollar that was going toward all disabled groups into this grandiose announcement. Spin.

    But great letter Jennifer ! Awareness is paramount and that's something Rick does in spades.

  7. #17
    Senior Member lynnifer's Avatar
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    You're right. My only income is my employment income, but weren't there severe cuts after that - like recently within the last two years - to disability payments?
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  8. #18
    Quote Originally Posted by lynnifer View Post
    ***YOU DO REALIZE THIS IS FROM 2007 RIGHT?***

    It became Monday(not Tuesday) newspaper's front page with a horrible, horrible picture of me that I hope everyone burned! With that and my old job as a receptionist/switchboard operator ... I get a lot of, "I know you" when I go out. It's embarrassing.

    Thanks to letter-writing (another letter written by me and probably thousands of others), our very own Premier of Ontario, Dalton McGuinty (who's barely holding on in power) went on to donate $10,000,000 from Ontario to the Rick Hansen Foundation. It's hard to say no to someone who has done everything they were supposed to do i.e. I have worked since I was 19. Also, there was a local officer shot at the time and some of my co-workers said he is partial to police and was really quite upset at the funeral and that I should write for funding ... so I mentioned that I was a police dispatcher as well.

    That made BC, Alberta and Ontario who all donated to spinal cord research. I give Manitoba and Saskatchewan a pass for their low populations, the territories and the maritimes as well .. but Montreal never coughed up. Will you go after those members next?

    So now you know what happened. I cannot make a cure appear when there is none to be found. Barraging me and fellow Canadians will not make it happen any sooner. How can I go yet another year asking for donations when scientists have shown us nothing?

    I like the idea of Rick Hansen's Man in Motion spreading across the world. You should start a chapter in Italy! Lord knows they need some good press right now, what with Berlosconi. Since it would be your 'lire' or 'euros' you could demand where it goes if there were enough to stand (or sit as it were) behind you. I wouldn't be surprised if someone has already thought of this as he's on his anniversary world tour.
    Thanks for the explaination Lynni.

    I come accross this old tread as I was looking for some of your posts of the past that have inspired me.
    Believe it or not you have been an inspiration for me in the past. I hope to keep hope alive as long as you did. That could be long enough to see some results since you kept hope alive for long time.
    In God we trust; all others bring data. - Edwards Deming

  9. #19
    Senior Member lynnifer's Avatar
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    Quote Originally Posted by paolocipolla View Post
    Thanks for the explaination Lynni.

    I come accross this old tread as I was looking for some of your posts of the past that have inspired me.
    Believe it or not you have been an inspiration for me in the past. I hope to keep hope alive as long as you did. That could be long enough to see some results since you kept hope alive for long time.
    Thanks for that, Paolo. I sincerely appreciate those words. I mean it. If you can arrange the Rick Hansen thing for this June or next year - you have a donation from me to keep hope alive.
    Roses are red. Tacos are enjoyable. Don't blame immigrants, because you're unemployable.

    T-11 Flaccid Paraplegic due to TM July 1985 @ age 12

  10. #20
    Senior Member lynnifer's Avatar
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    Well, well, well ... this is pretty awesome Sas-katch-e-wan, for such a small population!

    SASKATCHEWAN PARTNERS WITH RICK HANSEN INSTITUTE TO LEAD IN FUNDING FOR DISABILITY INITIATIVE

    Saskatchewan is taking a leadership role in Canada in the areas of spinal cord injury research and disability funding with the commitment by the provincial government of more than $4.3 million for a comprehensive five-year Saskatchewan-based initiative, in partnership with the national Rick Hansen Institute.

    Saskatchewan's Rick Hansen Institute Initiative is a group of projects that will enhance the lives of Saskatchewan people with disabilities. The projects will also help commemorate the 25th Anniversary of Rick Hansen's Man in Motion World Tour ...


    http://www.gov.sk.ca/news?newsId=b62...5-684ef772053f

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