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Thread: New C5 injury

  1. #1

    New C5 injury

    I am the father of a new spinal cord injured son. He has an injury at C5 and was injured on New Year's eve. He was injured by a drunk driver. Can you tell me what are the things I should do. I thank you i n advance for your responses.

    Also, I would like to know about any experimental surgeries that are available.

  2. #2
    Welcome to CareCure. As we often say here, we are sorry that you had to find us, but we are glad that you did.

    Where is your son? What planning is there to move him to a specialty SCI rehabilitation program? It is critical that he go to a specialty program, even if it is a distance from your home. A general rehabilitation program or center will not meet his needs. It should be a Model SCI Center ideally, or at least a CARF accredited facility (specifically a CARF SCSC or Spinal Cord System of Care).

    I would recommend that you read the following articles here by Wise Young, MD:

    Acute Spinal Cord Injury

    Family & Spinal Cord Injury

    Spinal Cord Injury Levels and Classification

    Currently, I am not aware of any experimental surgeries for acute injury patients anyplace in the USA. I will ask Dr. Young to comment on this too.

    Please ask questions....we will try to help with what we can. The most important thing you can learn now is as much as possible about SCI, options for care and rehabilitation, and how to be an advocate for your son. He will also need to gradually need to learn to be an advocate for himself, so when you can, get him on these forums too.

    (KLD)
    Last edited by SCI-Nurse; 01-30-2007 at 12:27 PM.

  3. #3
    Kaution, welcome to Care Cure. How old is your son?

    I'm a C2/3 quadriplegic injured at age three, 22 years ago. These first few weeks will see several changes and require decisions, but you've found a great resource to help. Feel free to ask anything you are wondering about and you will get help from those that have been through it and know what to expect.
    C2/3 quad since February 20, 1985.

  4. #4
    Welcome. I just wanted to add my vote to suggest you read the articles KLD suggested. They are invaluable at this point.

    Any way we can help, just shout. We like to help and if experience is the best teachers we should all be SCI Rhodes Scholars!

  5. #5
    Welcome kaution. You've been given great advice already. Hope things work out for your family.

  6. #6
    Hope things work out for you, kaution.
    Daniel

  7. #7

    looking for hope

    AS YOU KNOW I AM THE FATHER OF A C5 SCI SON. MY SON IS 23 YEARS OLD. BEFORE THIS INJURY HE WAS A HEALTHY INDIVIDUAL WITH NO MEDICAL PROBLEMS. I KNOW THAT IT IS PROBABLY TO EARLY TO TELL SINCE IT HAS ONLY BEEN 19 DAYS SINCE THE ACCIDENT. HE IS PRESENTLY IN REHAB. HE HAS NO FEELINGS FROM THE NIPPLES STRAIGHT ACROSS DOWN TO HIS FEET. HE IS ABLE TO HOIST HIS SHOULDERS BUT THATS ABOUT IT. DOCTORS HERE SAY IT IS HIGHLY UNLIKELY THAT HE WILL EVER WALK AGAIN. BUT I AM CURIOUS TO KNOW IS THERE SOME FORM OF HOPE TO THIS DILIMA?

  8. #8
    Yes, there is hope. Encourage him to work his hardest at rehab when he's able.

    Here are some words I got off this forum from vgrafen long ago:
    "I have known Hope, and I have lost Hope, as in that moment when the foundation of my struggle, my very fuel to continue, was ripped away from me. Yet, and I’ll defy anyone to challenge this, to Hope, no matter how foolish and mad and impetuous and maybe even selfish it may be, to Hope is better than to die."

  9. #9
    It is important to maintain hope. No one (including the doctors) know this early what his ultimate impairment will be. He has at least 2 years before he knows how much he will get back. A disability or spinal cord injury is not an illness...he will not be "sick" once he gets past this acute phase. He can still have a very high level of wellness if he learns how to take care of himself and his body. Right now, you all need to focus on learning as much as possible so that you are prepared for going home, and have a plan for long-term outpatient exercise and activity to maximize what he has.

    Even worse case (no return) there is still hope. He is alive (and probably could have very easily died). You still have him with you. He can have an active, productive and happy life. He can marry and have a family. He can have a career. There is a lot of hope in that.

    By the way, you are the father of a son who happens to have a C5 spinal cord injury. You are not the father of a spinal cord injury. Small point, but it makes a difference in both of your perceptions of what has happened. (Also, please don't use all caps...it is considered shouting on the internet, and it is difficult to read. Thanks).

    (KLD)

  10. #10

    Smile

    My boyfriend is also a C4/5 quad just recently in June 2006. He also has limited mobility just as your son with the shrugging of the shoulders. He has come Soooo far since the date of injury. He is also 23 injured riding in the back seat of a car. If you should have any questions or your son down the road to Jeremy or myself, we would love to help. We are still at the learning stage as well. Just let him no he is not alone and life DOES go on with the love and support of family and great friends.

    Tina

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