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Thread: Stem cell therapy to do or not to do?

  1. #11
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    His first day awake after surgery

    Riaan had his surgery this morning, a three hour procedure where they used artificial bone for the fusion. This afternoon at three was the first time that we could speak to him and explain what is going on. The last ten days has been a total lapse of time for him. He took it suprisingly well even making a few jokes no and then. He still has a lot of fluids in the lungs that they are trying to get rid of. It has been confirmed by the Neurosurgeon that it is a C6-7 complete injury. There goes all hope for stemcells in any event. At present he has feeling in his hands but does not seem to able to move them. Will that improve? He also asked whether he will be able to get back feeling in hes legs which I told him that I dont thinks so. The one thing that made me laugh is that he said i must stop smoking because there came a lot of "shit" out of his lungs. thanks for all your help thus far. Will most definitaley put him on here as soon as he can. They reckon that he will be out of ICU soon, he is already off the ventilator, from there he will be going straight to rehab.

    Thanks again

  2. #12
    Quote Originally Posted by borries
    Riaan had his surgery this morning, a three hour procedure where they used artificial bone for the fusion. This afternoon at three was the first time that we could speak to him and explain what is going on. The last ten days has been a total lapse of time for him. He took it suprisingly well even making a few jokes no and then. He still has a lot of fluids in the lungs that they are trying to get rid of. It has been confirmed by the Neurosurgeon that it is a C6-7 complete injury. There goes all hope for stemcells in any event. At present he has feeling in his hands but does not seem to able to move them. Will that improve? He also asked whether he will be able to get back feeling in hes legs which I told him that I dont thinks so. The one thing that made me laugh is that he said i must stop smoking because there came a lot of "shit" out of his lungs. thanks for all your help thus far. Will most definitaley put him on here as soon as he can. They reckon that he will be out of ICU soon, he is already off the ventilator, from there he will be going straight to rehab.

    Thanks again
    Just because he is a complete injury does not mean that there is
    no hope for a stem cell therapy in the future. Most of us are
    complete injuries.

    You should really study what stem cell research is going on and
    what spinal cord injury is before you make such assumptions.

    In my opinion, it is still to early to tell how much function he will
    get back.

  3. #13
    Senior Member JeffH's Avatar
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    Quote Originally Posted by borries
    It has been confirmed by the Neurosurgeon that it is a C6-7 complete injury. There goes all hope for stemcells in any event.
    At this stage the 'complete' diagnosis doesn't really mean too much. I was diagnosed as a c-7 complete but regained sensation to T-1 within a few weeks and now at 10 months have muscle return in my trunk and upper legs.
    Truth is that nobody knows what sort of return he might have or when, diagnosis notwithstanding.
    Patience is a bitch but also paramount.
    As for hope for a cure, stem cells or otherwise, that story is not over yet either, there are many posts in the cure forum debating if and when but the consensus is generally positive.

    Quote Originally Posted by borries
    At present he has feeling in his hands but does not seem to able to move them. Will that improve?
    Maybe. Mine did. Right hand is still weak but continues to improve. Again, faith and patience are needed.
    I believe that electrical stimulation in rehab helped my right hand return.

    Jeff
    Doh!

  4. #14
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    update

    Hi everyone,

    Thanks for your replies, just a quick update of what is happening to Riaan. He is still in ICU, today it will be three weeks since the accident. Feels like a lifetime, on Thursday he was very critical with his
    lungs, so bad that they asked the whole family to go to hospital... They subsequently have put him on his stomach, to be able to absorb the oxygen better. It is difficult to explain but apparently he has some thick fluid in his lungs, they drain every two hours but it doesn't go away. If they turn him on his back then it goes bad again. I don't know how long they can keep him on his tummy as it influences the other daily body functions again. They still keep him sedated as he breathes against the ventilator when concious, yet his lungs are not strong enough to coach him into not fighting it. Out of the three weeks in ICU it was only three visits that he has been able to "speak" to us. If anyone has any suggestions please let me know.

    Thanks

    Corne'

  5. #15
    Does he have any other injuries? There's not much you can do while he is in ICU. This is time to be looking into rehabs for him. Improvement is not guaranteed but it is far from unlikely. Please read this article, it will help answer some of your questions.

    http://sci.rutgers.edu/index.php?pag...3@AcuteSCI.htm

    You will have lots of questions. Good job finding us so soon. If we can help, please feel free to ask.

  6. #16
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    Reply

    Riaan does not have any other injuries, he looked a lot better this morning 65% oxygen and coping well on his side/back. The lung specialist anethetized him again this morning to drain the lungs more, tonight again he is back on 90% oxygen and heavily sedated.

    It seems that every time that he gets anesthetic he has a relapse. Would he not be better off without all of this procedures? I mean he was fine until they "drained" his lungs again this morning. They have to get permission every time to do this from my folks and I am getting the feeling that they are strugling with the same questions,

    I don't want to tell the doctors what to do but logic says to me that he coping better without the procedures being performed on him the whole time. Every time he has been for anesthetic it takes a week for him to recover and then there is something new that they "have" to do? i know it is difficult if the patient is not in front of you but for me it just feels like he will be better off sometimes if we just leave him to get use to the ventilation and don't give him anestetic again.

    Thanks for all the help and comments.

    South African Greetings
    Corne'

  7. #17
    Corne'

    Hi! Welcome to carecure...my husband is a c5 incomplete from almost 4 yrs ago.....he spent 40 days in the ICU and on the ventilator....we learned a few things from his experience...

    First let me be clear....
    everyone is different and responds differently....I am NOT a medical professional in any way...just what I have learned through 4 years of SCI experience.t

    My husband did the same thing you mention the nurses and respiratory specialists worked on him all day clearing his lungs.... he would do better...then at night he received increased pain meds to sleep and his breathing would get worse...we now know that pain medication slows down the respiratory function and that is probably why he had the problem he did....you mentioned they keep draining his lungs...how do they do that? Do you mean they are suctioning his lungs? Also, are they turning him frequently to keep the secretions moving in his lungs to prevent pneumonia?

    I know it is overwhelming but hang in there you came to a great place for there are many here who care and want to help. I know you don't want to question the doctors it is okay to ask questions so you can be more comfortable with his treatments.

    Stay strong

  8. #18
    Senior Member NetoAnAstro's Avatar
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    Quote Originally Posted by borries
    Riaan does not have any other injuries, he looked a lot better this morning 65% oxygen and coping well on his side/back. The lung specialist anethetized him again this morning to drain the lungs more, tonight again he is back on 90% oxygen and heavily sedated.

    It seems that every time that he gets anesthetic he has a relapse. Would he not be better off without all of this procedures? I mean he was fine until they "drained" his lungs again this morning. They have to get permission every time to do this from my folks and I am getting the feeling that they are strugling with the same questions,

    I don't want to tell the doctors what to do but logic says to me that he coping better without the procedures being performed on him the whole time. Every time he has been for anesthetic it takes a week for him to recover and then there is something new that they "have" to do? i know it is difficult if the patient is not in front of you but for me it just feels like he will be better off sometimes if we just leave him to get use to the ventilation and don't give him anestetic again.

    Thanks for all the help and comments.

    South African Greetings
    Corne'

    Hi, in my personal experience everytime they kept me sedated it would get my lungs full of mucus and some other weird fluids. I wasn't able to move my hands much, lost like 50 lbs or more in 2 to 3 weeks and had many complications. They wanted me sedated because of the pain but they figured it was better to keep me awake to help me with the lung problems. I was, according to my doctors, improving 500% per month. I think we all have improved significantly since the SCI. I can almost tell you with confidence that he will regain some of what he's lost but with time and therapy. Also, he is lucky to have gotten the SCI now than 5 years ago because much is being done to cure or improve the way of life. Read about Romeo and his treatment in Russia http://sci.rutgers.edu/forum/showthr...570#post564570 or Handibob's treatment in Beijing http://sci.rutgers.edu/forum/showthr...666#post499666. I had mi SCI on 2-02-2002 and couldn't move anything below my chest and my arms were useless. A few weeks later I was told that I was paralized for life but had my arms and hands 95% back. At the time there was nothing to do but pray and hope for a miracle. Good luck to your brother.
    AstrO

  9. #19
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    update

    Hi there,

    Thanks for all the advise and replies. Riaan is still in ICU struggling with the lungs. In the x rays today it showed that one of the lungs are white and the other black, subsequently they had to drain him again today. The doctor is saying that they can not explain why his lungs keeps on producing this thick liquid in the lungs. Physio helps a bit but not much. My wish for Christmas is that he will be able to spend it with us, 20 days to go, I will keep hoping.

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