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Thread: How many of us here with Spina Bifida?

  1. #21
    Quote Originally Posted by JimD View Post
    Doesn't matter if it's old - good luck on your surgery! Let us know how it goes for you.
    Thanks! I'm sure I will have my phone in the hospital and be looking for something to get into while laying there, so I'm sure I'll be on the board LOL, Thank god for my IPhone

  2. #22
    SB Myelomeningocele T9, Hydrocephalus and Scoliosis here.

  3. #23
    Senior Member JimD's Avatar
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    Quote Originally Posted by EricaBold9780 View Post
    SB Myelomeningocele T9, Hydrocephalus and Scoliosis here.

    Welcome!

  4. #24

    Sb

    I'm here. I just joined. I was born with spinal bifida, and a club foot. I did okay until my 30's. I now have a tethered cord. It seems like now it just keeps getting worse every year. I have spent time in a wheel chair. But most of my life I have been able to walk. Doctors said I was a miracle. I have had lots of good days and I am VERY thankful. I have been stuck in bed for 3 weeks as of today, I've been having some BAD days. It is really hard, I can only get up for short periods at a time, really short, but thank God for that. Does anyone know anything that might help us. They said I can't have surgery.

    Quote Originally Posted by BlueEyedVAGirl View Post
    Thanks! I'm sure I will have my phone in the hospital and be looking for something to get into while laying there, so I'm sure I'll be on the board LOL, Thank god for my IPhone

    I know right ;D

    do you have problems in your arms too

    yes it sometimes does get worse as we age. Mine has.

    Me too..so sorry. You are in my prayers

    very old...it's been years but I still said a prayer for your surgery! ;D
    Last edited by SCI-Nurse; 04-26-2013 at 09:23 AM.

  5. #25
    Super Moderator Sue Pendleton's Avatar
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    Who said you can't have surgery? I mean is it not an effective treatment or insurance?

    And yes, many of our threads are several years old.
    Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow."

    Disclaimer: Answers, suggestions, and/or comments do not constitute medical advice expressed or implied and are based solely on my experiences as a SCI patient. Please consult your attending physician for medical advise and treatment. In the event of a medical emergency please call 911.

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