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Thread: ready to give up from the pain.

  1. #101
    Senior Member alan's Avatar
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    Cheesecake,

    Any idea what meds they're using? Ain't no way I could tolerate traveling to Massachusetts (heck, it's an achievement to get to Owings Mills, 10 minutes away. A 20 minute ride is a major accomplishment.)

    I hope they come up with something for us.

    Dejerine,

    At this point I'm not going anywhere. Without an idea of how I'd do it, I couldn't do myself in if I wanted to.
    Alan

    Proofread carefully to see if you any words out.

  2. #102
    i wish like hell i could make the trip to try the paintrials. it's an unrealistic travel for me though.

    cheescake? when they say...inpatient stay. does this mean like stuck in a hospital bed for a week or so? and once you're done with the program. if the meds or whatever help you, are ya just SOL on continuing with the treatment after you come home?

    oh yea....i wish i could give up from this horrible, constant, 24/7 pain too. but theres nothing to do but wake up an keep living this life everday. they put dr. kevorkian away so his help is no longer available.
    Last edited by rollin64; 11-04-2006 at 12:31 PM.

  3. #103

    From Paintrials

    Hi everyone,
    While some of the drugs that we are researching are investigational (new), some are already on the market. Your response to the study drug will help you and your doctor find out which types of pain meds that you best respond to.

    Our study coordinators are available to speak with you if you want to discuss our studies in detail (1-800-722-5520 X15-7246 or call 617-525-PAIN)

  4. #104
    Quote Originally Posted by paintrials
    Hi everyone,
    While some of the drugs that we are researching are investigational (new), some are already on the market. Your response to the study drug will help you and your doctor find out which types of pain meds that you best respond to.

    Our study coordinators are available to speak with you if you want to discuss our studies in detail (1-800-722-5520 X15-7246 or call 617-525-PAIN)
    thanks for the info.

  5. #105
    I read some of these posts and felt compelled and qualified to post.

    I kilt myself 3 times, wasn't difficult, no worse than being conscious when I broke my neck and had to take that last deep breath -- of water. The last time was easiest because there were no meds, go figure. Just drove my chair over a cliff, big deal. Ironically, my docs took notice and finally listened to me. And no, it was not a cry for help as most would say. They kind of patched up the situation, making it more livable, but boy do they owe me!

    But that's not my point. We have dysesthetic pain, and any real pain causes this to be exasperated many times over (arse digging, catheters including superpubic, constipation & laxatives, etc., etc.). Just a light touch on the leg is enough to make me scream.

    So, you are in real pain and end up taking meds for it, meds that have their own side effects, some unique to the individual, constipation almost universal. Many will say quit taking drugs altogether, but we know that's not possible.

    The biggest move I made to relieve pain is a colostomy and urostomy. The dysesthetic pain persists, but it is not exasperated by arse digging and catheters anymore.

    I don't have to take pain meds to survive that shit anymore, either, so constipation and laxative problems aren't so much a problem if my watch my diet, eat more fruit than anything.

    The ostomy's work good if placed properly, there is no such thing as "bowel care" anymore!, no wrenching catheter & catheter changing! I used to bleed and have AD during both procedures, so bad it took nifedipine, so you see, I'm not bullshittting.

    Think about doing it; many of my buddies at the VA have opted for ostomy's.

    Best of all, my caregiver just loves how much easier it is. I think that's what scares people away from it; the fear of maintenance... that and the horrible surgical procedure, but it was worth it for me.

    The most impressive thing anyone ever said to me about suicide was: "Do you want to die?". No, I don't, so won't go down without a fight!

    Good luck, Matt

  6. #106

    Smile

    Tim,
    I know your post was a while ago so I hope you have found some kind of resolution or a least a little relief. I can only suggest one way that actually has worked for me that I see NO one mentioned yet. The power of PRAYER is amazing! I am a christian but not a religous freak or anything like it. I don't pray enough myself. I am not even any good at praying. If you just ask God to take it away HE WILL! I am a C6-7 incomplete post 3 yrs from a severe auto accident. In addition to arthritis all over, I have had serious nerve pain as well as back, neck, stomach, shoulder and I have had a UTI since 6 months after my injury. It has gone to my kindneys 9 out of 10 times. That causes some serious pain! I simply want to suggest to you to try it. It can't hurt. I hope you believe in God. Don't give up. We will be paid 10 fold for all of our suffering It's been promised!
    Keep your chin up and try to think positive thoughts.
    Michelle~
    p.s. I am sorry If I sound like miss cheery, positive, everythings great. I do realize it is hard to be positive when your in pain. I do understand and I am just trying to help.
    Last edited by Pinkshel; 11-15-2006 at 03:01 AM.

  7. #107
    Pray hard, Cuss hard, crank the music... Survive!

  8. #108
    I know if I'm in real bad pain it helps to pull my legs up, and hold them in a quite room. Plus I pray for God to take my pain away. The pain pills don't help some time and they only takes the edge off. At night is the worst for me after a long day in the chair 18 hours or more. Hang in there you are not alone.

  9. #109
    Pinkshel,
    I am so glad that you posted that. You are right. I don't go to Church regularly either but I spend a lot of time talking to God and it works. Just keep the Faith.
    Mary
    I want to Rock you Gypsy soul and together we will flow into the Mystic.
    Van Morrison

  10. #110
    Tim
    I was going through a dark time in my life. I was deppressed and in pain the same way you are.
    I took every pill I had one night. Sixty some nuerontin, forty zanax, fifty baclofen and numerous others. In the morning my wife heard me trying to breathe and called 911. I was rushed to the hospital where they were having trouble keeping my heart going. I spent 5 days in intesive care and then in a mental health ward for a week. I can't believe I pulled through.
    I learned of the hurt I put my family through and worse I learned children of a parent that commited suicide have a 400% higher rate of suicide themselves. It becomes an acceptable way of dealing with problems to them.

    That snapped me out of that frame of mind in a hurry. I know this might not help with your physical pain but please keep trying. Suicide is such a drastic decision and the hurt you can give others is to great to imagine.

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