I am a fairly new SCI and am still trying to adjust to my new life in a chair, and I wanted to say how helpful this site has been for me - it is a wealth of knowledge and is packed full of resources. I feel like I am learning so much more helpful information from this site compared to what I am learning in therapy. I highly respect my PT and the entire medical field for that matter, don't get me wrong, but there is no substitution for getting advice from someone who has lived it first hand!
Before I get ahead of myself, let me give a brief bio. Yesterday marked my 5 month anniversary from when I was injured surfing in Maui, Hawaii. I have been diagonised with an extrememly rare SCI known as Surfers Myelopathy. The readers digest version of SM is that it is a non-traumtic (atraumtic) spinal cord injury cased by a hyper extension of the mid to low back, which makes for lots of swelling in my spinal canal, but no breaks in my spinal column, problems with my discs, or cuts in my spinal cord...why I am not walking, nobody knows. There are approximately 30 people within the last 15 years that have been diagnoised with this condition. In fact, the odds of winning the lottery are greater...lucky me and to bad I didn't play the lotter instead that day . I am optimistic and hoping for a full recovery, but is that only wishful thinking as I have not been given ANY type of prognosis at this time? I guess that is another draw back of having a rare condition; nobody wants to say one way or the other.
My main question right now is if anyone ever heard of this type of SCI and, better yet, does anybody know of someone who has been given this diagnosis? I know that every level of injury is different as well as the healing process from person to person, but I just wish I had some timeline that I could reference so that I can compare. Is there an average timeline for return (ex. 6, 12, 24 months)? Or is it all just "wait and see"?
Thanks for taking the time to read my post and I look forward to seeing what other great information people have to share.
P.S. Never go surfing, it's overrated! It's like having to climb up a mountain before you can ski/snowboard down it and the sad thing is that's the best part about it.