Hi, all I'm a lurker, and have been mesmerized reading thru the threads. There has been a lot of comment about and from adult Mitro experiences, but I am looking for more info about Mitro and children.
Anika (7yo), my daughter, is T7/T8 para, three years post-injury, and her Drs have suggested I think about the Mitrofanoff Procedure for her. Reading the threads, I get the impression that it is a rough surgery, an awful recovery, and for most, the best thing they ever did...
So how do a Mom and Dad, making decisions for their child know the right answer? Her paralysis is a direct result of a stroke on her spine during a surgery to repair a spinal cord defect, and I am certainly not anxious to put her under the knife again, BUT, the resulting benefits (assuming nothing goes wrong THIS time) would be such a blessing.
By reading thru the threads, I have been able to compile a list of questions to ask her Drs. I'm worrying about the things I am NOT thinking about!
Share with me, please, some of the questions you would want answered, or your advice on how to go into this wisely. Any input is welcome! Thanks, Dawna