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Thread: $100K Donation for Chronic SCI Research

  1. #1
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    $100K Donation for Chronic SCI Research

    My family is new to SCI, our 17 year old is 1 year post injury. I read everyday on this site and other sites about the research that is being done to cure paralysis caused by SCI. We held a golf tournament last year and raised and donated $45k to SCI research on the west coast, where we live.
    We are planning our second event for September of 2006 and hope to raise $100K.

    That's not much money when you hear about what it costs to fund research and clinical trials but we are trying to do what we can to help our son and all the rest of you that are suffering from paralysis.

    My question is, who is doing the most promissing work on chronic SCI and where would this donation do the most good?

    Thank you for your comments.

  2. #2
    I'm not sure who would be the best to make this donation to, but
    I do appreciate the effort you are making. Thank you.

    Also, maybe Geron? www.geron.com

  3. #3
    Thank you for your help.

  4. #4
    Thank you for your contribution to the SCI cure effort. Have you considered supporting the W.M. Keck Center for Collaborative Neuroscience?
    Daniel

  5. #5

    Thumbs up

    Wow, we'd be well there by now if everyone followed by your example!

    I asked this same question a while back. In my opinion, Dan's right about the keck centre, but the NTT project led by John Mcdonald also desperately needs funds for their trials in Columbia. There is a thread about them but its been kinda hijacked about legislative issues - the gist was that they proposed a <7 year timeframe in their last 2 newsletters.

    Heres a link with some info

    http://www.linksforcure.com/nttproject.htm

    The donation part is slightly outdated so (from another thread)

    Money should NOT be sent to Barnes Jewish, it should be sent to KKI indicating that the money should go to Dr. McDonald's NTT research.

    Geron don't seem to have an action plan for chronic injuries, as yet anyway
    Last edited by Cherry; 04-09-2006 at 03:00 PM.

  6. #6
    Also, I just watched Ricky's video on youtube and I have to say he's a real inspiration. He's getting on with his life but at the same time you guys acknowledge the cure is within reach and are helping to get it here quicker. Good on you and we can only hope that others realise the two can come hand in hand.

    Best wishes to your family

    Jen

  7. #7
    Senior Member spidergirl's Avatar
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    Hmmm your on the west-coast, well don't give to Dr. Keirstead (Reeve/Irvine)- he works for Geron- bc his main priority is acutes. (chronics are second and he will work on that maybe in about 5 years)....DO YOUR RESEARCH.

  8. #8
    Senior Member spidergirl's Avatar
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    Quote Originally Posted by Buck_Nastier
    I'm not sure who would be the best to make this donation to, but
    I do appreciate the effort you are making. Thank you.

    Also, maybe Geron? www.geron.com
    Au do contraire

  9. #9
    Senior Member roshni's Avatar
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    Quote Originally Posted by dan_nc
    Have you considered supporting the W.M. Keck Center for Collaborative Neuroscience?
    Great idea!!!

  10. #10
    NTT (chronics) would be my choice.

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