First time poster here so bare with me.Let me just say what a releif it was to find this site, now at least I can search for some answers.
I popped on the net today to see if I could find some answers to my re accuring bladder stones and found this thread.
I go in every 12-14mth to have mine removed and they are just a never ending drama for me.I have an IDC and have been in a chair for the past 12yrs and have always suffered from stones since my accident but have noticed that they have become significantly worse since starting neurontin 2yrs ago, I am now having my cath changed every 9-10day instead of every 3-4 weeks which is an absolute pain.I also take Dantrium for spasms and at a recent appt with my urologist he was saying that taking the two drugs together can cause an increase in calcium.
I also take cranberry caps, garlic, vitamin C and Hiprex everyday, can't really say if any of these are having much of an effect but are probably helping in some way.I know that having a healthy bladder means that the ph levels need to at the correct level at all times but it is so hard to find that happy medium with all of the other drugs that we are on.
I will definatley we going out tomorrow REMOTE and getting the ingredients for you cocktail, I am open to any and all sugguestions so thanks for yours.
I started working out at the gym 8mths ago as my urologist sugguesting using exercise to try and distribute the calcium to area's where it is needed more rather than the bladder, but again as of yet I can see no improvement.
My UTI's are few and far between until I start to get really bad stones, then the stones themselves start to become infected and the viscous cirlce of events start.Oh the joys!
What are the dosage sugguestion for taking Vit C, I am only on 1000mg a day and by the sounds of I should perhaps be taking more so what would you all suggest would be a suitable dose for me?
I am will to try whatever and hope that we all get rid of these darn stones sooner rather than later.