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Thread: Cipro X 8

  1. #1
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    Cipro X 8

    My husband has been on Cipros 8 times in the past year for bladder infections. I know this because we have a package sitting on the kitchen table ready to take with us to a specialist appointment on April 13. Sean's family doctor gave us copies of everything for the past year.

    It's probably at least that many for each of the other two years since his injury.

    I don't hold out much hope from the specialist because we've been down that road before to no avail.

    He has just finished a 7 day round of long-lasting Cipro for the Pseudomonas bacteria. We're pretty sure it's not gone. His spasms are very bad, and there was sediment in his urine for this morning's IC. I know sediment is not always a sign of infection, but for him it usually signifies it's starting again. I will take a sample in Monday, but it's always the same old story ~ he gets a couple of samples that come back inconclusive and then he gets a positive one.

    I do not know what to do anymore. It is a never-ending circle of bladder infections for him ~ from the day of his injury.

    I think we have tried everything ~ cranberry, garlic, vitamin C, alka selzer, D-mannose. I sterilize everything, use a new catheter each time. He has had every test known to man ~ no stones, prostate is fine. It just doesn't make sense to me why this is happening.

    I don't even know what I'm asking. I am at a complete and total loss, and I'm getting very worried. Where do we go from here? With that many doses of Cipro in him ~ I can think that he very well may be resistant to it now. It absolutely makes him feel like shit when he goes on it ~ sicker than the infection itself. BUT, when Sean refused to take it the last time, the doctor said Cipro was the only option for this infection (well other than an IV antibiotic ~ which he has done before too).

    Anyone with any other suggestions?

    This is absolutely preventing him from having any sort of "normal" life since his injury ~ and I know that he is pretty much giving up.

    If anyone can offer us any other avenues to explore we would be extremely grateful.

    Shelley

  2. #2
    Shelley, i sure do wish that i had an answer.. i'm pretty much in the same boat, not quite as many uti's, but still. Cipro has become my best friend, not bothering me at all and knocking the bacteria out quickly. i do all the ''remedies'' that you guys do too hoping that it's helping...? my primary Dr. put me on Macrobed full-time about a year ago and i finally (6 mos. later) checked it out and found out that prolonged use was bad.. i took myself off of it.. IMO, i don't think that there is a simple answer. everyone is so different, some hardly ever getting uti's, some always.. just another crappy side-affect of SCI...





    Life isn't like a bowl of cherries or peaches. It's more like a jar of jalapenos--What you do today might burn your ass tomorrow.

    If you ain't laughing, you ain't living, baby. Carlos Mencia

  3. #3
    Senior Member NWC4's Avatar
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    Hi Shelley,

    Yeah, Pseudomonas is a bear to get rid of and sometimes it's all you can do to keep it in check.

    Here are links to a couple products I've found useful:
    Kidney Plus
    http://www.theherbalist.com/kidney_plus.html
    Kidney Tea
    http://www.theherbalist.com/kidney_tea.html

    UTI Max
    http://trinityclinicpharmacy.com/xca...9&cat=0&page=3

    I have also found strong lemon water or homemade lemonaide (w/very little sugar) helpful. In high quantity.

    And last, but not least a teaspoon of cream of tarter (yeah the white powder for baking) in a glass of warm water. My nurse told me about this old wives tale years ago... makes ya pee like crazy.

    Hope something here might help.

    Hang in there you two.

    Blessings to you.

  4. #4
    I'm not sure what your husband's level of injury is, but he may be having high pressures in his bladder that are contributing to bladder infections. One strategy you apparently haven't tried is to use an indwelling catheter and have him drink, drink, drink. This would help to wash the bacteria out of the body before it can cause an infection. Some people on this forum think that indwelling catheters are an invention of the devil, but there really are situations where their use is appropriate and offers the best shot at a "normal life."

    RAB

  5. #5
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    Thanks for a few new suggestions you guys.

    We haven't tried the lemon water ~ that might be good for him to sip on through the day. He does drink lots of water.

    I will check on the links as well NWC4, thanks!

    RAB, my husband is C6/C7 complete. He has had urodynamics done fairly recently and said everything was fine ~ no high pressure. Sean has used an in-dwelling catheter during his stays in the hospital, and it always seemed to have the same result ~ infections, but I will talk to the specialists about possibly trying for a while to see if it makes a difference. He always drinks lots and lots of water, and when I do his IC's there is usually only a small amount left in his bladder.

    Jeff, I think it's strange that you can take cipro with no side effects. My husband has such a hard time with it, and the longer he's on it, the worse he gets. A urologist once suggested to Sean that he try a daily dose of macrobid as well, but after researching a little, we came to the same conclusion as you ~ that it's not such a great idea.

    Thanks everyone, we'll keep trying new ideas and plodding along one-day-at-a-time.


    Shelley

  6. #6
    Quote Originally Posted by shelley
    when I do his IC's there is usually only a small amount left in his bladder.
    Shelley - not criticising but your husband should be able to cath himself at his level with practice.

    We are more resistant to our own bacteria. I suffered from utis while others were cathing me - however careful they were.

    Only had one since I learnt to cath myself. Surely not a co-incidence......
    C5/6 incomplete

    "I assume you all have guns and crack....."

  7. #7
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    Quote Originally Posted by shelley
    Thanks for a few new suggestions you guys.

    We haven't tried the lemon water ~ that might be good for him to sip on through the day. He does drink lots of water.

    I will check on the links as well NWC4, thanks!

    RAB, my husband is C6/C7 complete. He has had urodynamics done fairly recently and said everything was fine ~ no high pressure. Sean has used an in-dwelling catheter during his stays in the hospital, and it always seemed to have the same result ~ infections, but I will talk to the specialists about possibly trying for a while to see if it makes a difference. He always drinks lots and lots of water, and when I do his IC's there is usually only a small amount left in his bladder.

    Jeff, I think it's strange that you can take cipro with no side effects. My husband has such a hard time with it, and the longer he's on it, the worse he gets. A urologist once suggested to Sean that he try a daily dose of macrobid as well, but after researching a little, we came to the same conclusion as you ~ that it's not such a great idea.

    Thanks everyone, we'll keep trying new ideas and plodding along one-day-at-a-time.


    Shelley
    Considering how sick your husband is all the time, why do you think Macrobid once a day is such a bad idea, what scares you?
    Pharmacist, C4-5 injury but functional C6 (no triceps/flexors)

  8. #8
    Senior Member LaoziSailor's Avatar
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    Quote Originally Posted by shelley
    ...snip...
    He has had urodynamics done fairly recently and said everything was fine ~ no high pressure.
    ...snip...
    I see you are in Pickering so I'm suspecting all the procedures were done at Robson?
    Robert would also have referred your hubby to East General?
    Han Tacoma

    ~ Artificial Intelligence is better than none! ~

  9. #9
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    RehabRhino my husband cannot cath himself. My husband is usually so sick he cannot get out of bed and when he does he is so dizzy he feels like he will pass out. He is lucky to have 1 or 2 days a month when he is feeling fairly decently. I am sure that you know that everyone's injury is different. He was so sick through his whole rehab that he barely received any benefit from it at all. We both certainly wish that he was able to be more independent, but unfortunately circumstances have not allowed that. I am glad that you are able to cath yourself, but it has not been possible for him.

    At rehab they told us that once you get home and get used to the germs in your surroundings, you will stop having infections ~ this has not been true in his case.

    JGNI, we thought taking Macrobid on a regular basis was a bad idea because it is my understanding that bacteria become immune to the antibiotic and become stronger bacteria ~ is this not the case? I thought that it had been discussed on this site that taking a daily dose of antibiotics was not good for you in the long run.

    Yes, LaoziSailor, Sean was at Lyndhurst for his rehab. He is regularly seen at the Robson Clinic, and has also had tests done at Toronto Western. He has never been referred to East General ~ is that a possibility. We have another appointment on April 13th at Robson.

    What scares me about this whole issue is that he keeps getting infections, and the Cipro does not seem to ever completely get rid of it. I am wondering if he has built up a resistance to Cipro, and if so, where do we go from here. After all he has been through, I don't want to loose him from complications of a bladder infection.

    Please don't judge whether my husband should be doing his own IC's. I really don't think that is the issue.

    Thanks everyone!


    Shelley

  10. #10
    Quote Originally Posted by JGNI
    Considering how sick your husband is all the time, why do you think Macrobid once a day is such a bad idea, what scares you?
    this is what i read at my 6 month mark on macrobid....

    Warnings: Acute, subacute and chronic pulmonary reactions have been observed in patients treated with nitrofurantoin products (see Adverse Effects). If these reactions occur, the drug should be withdrawn and appropriate measures taken. Reports have cited pulmonary reactions as a contributing cause of death.

    Chronic pulmonary reactions (diffuse interstitial pneumonitis or pulmonary fibrosis, or both) can develop insidiously. These reactions occur rarely and generally in patients receiving therapy for 6 months or longer. Close monitoring of the pulmonary condition of patients receiving long-term therapy is warranted and requires that the benefits of therapy be weighed against potential risks..






    Life isn't like a bowl of cherries or peaches. It's more like a jar of jalapenos--What you do today might burn your ass tomorrow.

    If you ain't laughing, you ain't living, baby. Carlos Mencia

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