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Thread: Beware...Mom Bragging...

  1. #31
    Monkey, I know how you feel. Believe me, it does get better. It's so gradual sometimes you don't really notice, but it does get better. Your husband has the potential, once things settle down, to become very independent, I'm sure.
    The key phrase is, once things settle down!

    Since my post, Brianna had some severe pain in her abdomen; she was taken to the hospital from her doc's office, thinking it was appendicitis. But it wasn't, just a horrendous UTI. So they sent her home; she rested over the weekend in bed (except for getting up for meals) and lo and behold, had a "lovely" pressure sore the size of a fifty-cent piece on the sole of her heel! How did she manage that? Good question.

    So, in the meantime, her doc didn't buy the notion that her pain was from the UTI. Xrays and an MRI later...they found "something" on the MRI. The doc left a note for his nurse to "get her to a neurosurgeon ASAP." The nurse wasn't really able to explain clearly the MRI results; something about a bone fragment...I'm just not sure. So I'm pacing, waiting for the neurosurgeon to see Bri and really explain all this!

    Two steps forward...one step back...but even so, you're always moving forward.

    Suzanne...I remember those days!! So glad to hear about Richard!
    ____________________________
    "God warns us not to love any earthly thing above Himself, and yet He sets in a mother's heart such a fierce passion for her babes that I do not comprehend how He can test us so."
    ~Geraldine Brooks, "Year of Wonders"


    "Be kind...for everyone you meet is fighting a great battle."
    ~Philo of Alexandria

  2. #32
    Senior Member poonsuzanne's Avatar
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    Quote Originally Posted by monkey
    for giving me a little hope in this very daunting situation. My husband is a T8,9,10 complete and 11 months post. He spent 8 months in the hospital and rehab (due to many complications) and so has been home only a few months. I swear that many days I don't know how we are going to make it thru this. We have started counseling and I am hoping that that will help us. I am his primary caregiver and some days am so tired and stressed out, I can hardly see straight. Our son is in college 5 hours away and our daughter is in 7th grade. Our support group is huge, thank God.
    I was wondering how you or any other caregiver deals/dealt with the day to day stuff. Your post has given me much hope and I would love to hear more stories about how you all have made it thru this. Some days i can see us a few years down the road.

    Does anybody else have any inspiring messages? I am sure that I am not the only one who could benefit from them.

    Thanks again SCI Mom. This site is awesome and I wish I had more time to be on here.
    Dear Monkey,

    I know how hard it is for you to go through this! You're courageous and admirable. I am sure he will become independent soon but do not force it to happen. Try your best to to stay in the best attitude you can because he is the one who suffers most intolerably. I always reminded myself, compared to my son's misfortune, my sacrifice is too trivial to mention. Remember you are the one he cares most, without your support, it will be like the end of the world to him!!

    Suzanne
    Suzanne

  3. #33
    Senior Member
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    Monkey-
    I too am T-10,11 complete Fused from T-12 to T-8. I also have 3 titanium rods that are from T-12 to just under my arm-pit level.(not sure what "T" that is) along with 14 screws in my spine. Never coming out. My specialist said it won't make a difference. I was injured in 2003. It was extremely hard for me also. But honestly it does get better. You have to think not "why me" and "I can't" But "I can" and "I will". You still can but have to come up with creative ways on doing things when having a sci.

    If you can just try things, you'd be amazed at what you can still do.

  4. #34

    Praying for Bri

    Vickie,

    Thanks for sharing in the great successes of your daughter, I'm hoping the best for mine as well. Independence seems so foreign, but shes only 15.

    I'm posted new pics, Sarah is T5 incl., 1.5 yrs post.

    http://carecure.org/forum/showthread...566#post432566
    Rick

    GO FORWARD! 2 FIGHT! PARALYSIS!

  5. #35
    Rick, thanks for the kind words. I think you pinpointed one of the major differences between spouses and parents/children with SCI. As parents, we are always striving to make our children independent. It's expected. So when SCI comes along, once we brush the dust off, we start over again. I felt a sense of urgency; Bri was 18 when she was injured, and I knew I wouldn't sleep soundly again until I felt she could survive on her own.

    But with a spouse, the push for independence after an SCI is totally different, isn't it? You can't/shouldn't/don't want to play the parent role with your spouse. I'm sure it's a difficult road at times! (Actually, I'm in both roles since my husband has an SCI too...but he's recovered a tremendous amount. I sometimes forget he was ever injured!)

    Gosh, at 15 independence does seem far away, I'm sure! I'm also certain she'll do just fine.
    ____________________________
    "God warns us not to love any earthly thing above Himself, and yet He sets in a mother's heart such a fierce passion for her babes that I do not comprehend how He can test us so."
    ~Geraldine Brooks, "Year of Wonders"


    "Be kind...for everyone you meet is fighting a great battle."
    ~Philo of Alexandria

  6. #36
    update on Bri please
    Every day I wake up is a good one

  7. #37
    Hey cheesecake...good to hear from you!

    Brianna sees the neurosurgeon on April 13th. So we'll hopefully know more then.

    Friday she was hospitalized with two blood clots in her leg, one behind her knee and one in her thigh.

    Neverending....

    I'm leaving now to go see her. I'll update when I can..

    Vicky
    ____________________________
    "God warns us not to love any earthly thing above Himself, and yet He sets in a mother's heart such a fierce passion for her babes that I do not comprehend how He can test us so."
    ~Geraldine Brooks, "Year of Wonders"


    "Be kind...for everyone you meet is fighting a great battle."
    ~Philo of Alexandria

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