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  1. #1

    Exercise & Recovery Forum

    There has been discussion originally posted in the Announcement & Feedback forum about the possibility of establishing a forum for people who have recovered substantially after spinal cord injury. I just changed the name of this forum to Exercise & Recovery. This should provide a place and "home" for members of CareCure who have recovered through exercise to post their experience and to discuss how they facilitated and maximized their recovery.

    One question is whether and how to draw the line between exercise-induced "recovery" and "cure" of spinal cord injury. Some may argue that exercise is a form of therapy and cure. But, in some ways, it is different. A majority of people with "incomplete" spinal cord injury will recover without specific treatment to regenerate or remyelinate the spinal cord. There is ample evidence that intensive repetitive exercise such as treadmill walking and electrical stimulation assisted activity will restore function in people with spinal cord injury.

    There was some concern that people might get the impression that exercise alone will restore function and some people may be disappointed exercise does not. Exercise is necessary for recovery but not always sufficient for recovery. In other words, for some people, particularly those with "incomplete" spinal cord injury, exercise will facilitate and even extend recovery. However, for some people exercise will restore function. That is why therapy is necessary. Note that "curative" therapies are likely to require exercise and training to maximize recovery.

    People should continue to post about therapies and "cure" related discussion in the Cure Forum. Recovery that is exercise-related or non-therapeutically gained should be posted here. If there is confusion or this change does not help, we can always change it back. Thanks.

    Thanks.

    Wise.
    Last edited by Wise Young; 02-03-2006 at 11:45 AM.

  2. #2
    Dr.Young,

    In your opinion, what would be the best exercise program to follow for people that are anticipating a 'curative' therapy? Thanks.

  3. #3

    What exercise?

    Dr. Young,

    What is the best exercise for droop foot, balance and hyperextension in the knee area?



    Quote Originally Posted by Wise Young
    There has been discussion originally posted in the Announcement & Feedback forum about the possibility of establishing a forum for people who have recovered substantially after spinal cord injury. I just changed the name of this forum to Exercise & Recovery. This should provide a place and "home" for members of CareCure who have recovered through exercise to post their experience and to discuss how they facilitated and maximized their recovery.

    One question is whether and how to draw the line between exercise-induced "recovery" and "cure" of spinal cord injury. Some may argue that exercise is a form of therapy and cure. But, in some ways, it is different. A majority of people with "incomplete" spinal cord injury will recover without specific treatment to regenerate or remyelinate the spinal cord. There is ample evidence that intensive repetitive exercise such as treadmill walking and electrical stimulation assisted activity will restore function in people with spinal cord injury.

    There was some concern that people might get the impression that exercise alone will restore function and some people may be disappointed exercise does not. Exercise is necessary for recovery but not always sufficient for recovery. In other words, for some people, particularly those with "incomplete" spinal cord injury, exercise will facilitate and even extend recovery. However, for some people exercise will restore function. That is why therapy is necessary. Note that "curative" therapies are likely to require exercise and training to maximize recovery.

    People should continue to post about therapies and "cure" related discussion in the Cure Forum. Recovery that is exercise-related or non-therapeutically gained should be posted here. If there is confusion or this change does not help, we can always change it back. Thanks.

    Thanks.

    Wise.

  4. #4
    I am sorry that I did not respond to these questions earlier. I don't know the answers to the questions. Wise.

  5. #5
    Quote Originally Posted by Faye M. Mays View Post
    Dr. Young,

    What is the best exercise for droop foot, balance and hyperextension in the knee area?
    Faye - what is your level of injury? Is this problem on both legs, or just one? I am a physical therapist and have worked with people with SCI for 8 years.

    If you have muscle activation, you can strengthen it. If the muscle doesn't turn on you have to accommodate for it. It sounds like you have weakness in your hip and quads, but may have some muscles that aren't activating...

    The level of injury also guides strengthening. For example - if your injury is a lower motor neuron, which means it is below the level where the spinal cord ends (around L1) then electrical stimulation would not be useful.

    You can email me if you'd like more guidance not on the chat board.

  6. #6
    Sit on the floor with your legs straight out in front of you then flex your foot so your toes move towards your body and your heels lift off the ground,Hold for about 5 seconds then stretch your foot in the opposite direction and curl tour toes under as tightly as you can. Hold for another 5 seconds and repeat the full range of movement as many times as you can.




  7. #7
    What are your suggestions on working towards the recovery of walking. I am six months into it and i can move my legs, laying down, from an VOLUNTARILY!!! Is this good. Im asking for any advise
    dockey07@hotmail.com

  8. #8
    I am sad to see that noone has utilized this forum for the reason you have outlined. I have an incomplete SCI at C5-C6. I walked fairly quickly (one and 1/2 months.) I was fairly sedentary for the first four years or so due to severe chronic pain. I also used an AFO due to foot drop on my left side. In 2000 I went to graduate school and was forcd to walk long distances which was therapuetic. I also gained 70 pounds due to a medication I was taking for a different issue so I started doing water aerobics as best as I could due with severe hyperreflexivity as an attempt to lose wieght. In 2003 I began to walk 21/2 miles a day with a coleague who wasn't going to slow down for me, and I learned to keep up. Eventually my foot drop decreased. About two years later I started doing spin classes at the gym which was perfect as it didn't require balance. I eventually began long distance cyling. Eventually a friend talked me into doing a sprint triathlon program and I was able to finish two. My biggest problems are spasticity when running and overheating. SOmetimes I sweat, sometimes I don't. I also fatigue badly at times. Sometimes my left leg becomes spastic and I can't walk for a few days. Right now I am unable to train due to spasticity and fatigue. I have no peers so I don't know what is normal and what isn't. Its been hard. I want to get better at my sport, but I am going backwards right now.

  9. #9
    Member harpo2's Avatar
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    exercise through increasing neuropathic pain?

    Hello, Kittyshrine,
    I see you had a period of chronic pain through which you did not exercise. Looking back, would you have exercised through the pain? I have periods of lesser neuropathic pain where I increase my exercising - walking, stretching, light gardening. After a period I find the pressure related pain in feet/buttocks increasing to a higher level, so I ease back to minimal exercise. I am concerned that if I maintain my exercise regime the increased level of pain may become the norm and that, while I am improving physically, I may be regressing in the pain department. What do you think?

  10. #10

    in reply to Harpo

    Interesting question: I don't really remember how I moved from chronic pain to working out. I think the best thing is to find a doctor who can advise you and take it easy. You may want to find a level of exercise that does not cause you to flare too much and sustain that level for some time and then increase slowly. I must admit complete and total frustration trying to find guidance or help in this respect from the medical community. I really recommend pool therapy and then when you can tolerate it, aqua aerobics when you can tolerate it. One big thing is to modify everything. If you can't do a move or bounce due to spasticity or hyperreflexivity, do what you can.

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