Did you Know...
- The US Government spends an average of only $400 per ALS patient per year

- 80% of all patients die within 5 years

- ALS can strike anyone, anywhere and anytime

- The 1 FDA-approved drug for ALS patients extends a patient’s life by only 3 months

- Average age of onset is 48 years old

- People don’t get ALS... Families get ALS!





Welcome to the ALS Registry
http://www.patientslikeme.com/registry
This is the registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) patients. I originally started it as a mailing list and it is now being maintained on the PatientsLikeMe site. If you are a Person with ALS (PALS), you can add your name by signing up for a PatientsLikeMe account and filling out your profile.
it will be more then just a registry for pals, you can have you own detailed profile page.
If you have any questions email PatientsLikeMe ateval(unescape('%64%6f%63%75%6d%65%6e%74%2e%77%72 %69%74%65%28%27%3c%61%20%68%72%65%66%3d%22%6d%61%6 9%6c%74%6f%3a%73%75%70%70%6f%72%74%40%70%61%74%69% 65%6e%74%73%6c%69%6b%65%6d%65%2e%63%6f%6d%22%3e%73 %75%70%70%6f%72%74%40%70%61%74%69%65%6e%74%73%6c%6 9%6b%65%6d%65%2e%63%6f%6d%3c%2f%61%3e%27%29%3b')) support@patientslikeme.com.
You can help by passing this info on to other PALS.
http://www.patientslikeme.com/registry
Thanks,
Bobby Brannigan (PALS, diagnosed 1994)
robertb@mitchell.main.nc.us
ALS IS NOT PREJUDICE
WHERE EVER, WHEN EVER, WHO EVER