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Thread: Dr. Young in Boston Nov 19

  1. #1
    Senior Member
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    Dr. Young in Boston Nov 19

    Hi,
    If this info has already been posted than please remove it. We have not been on CC for a bit so I don't know if it was already posted.

    Check out www.BMC.org/rehab/conference.html
    The New England Spinal Cord Injury Center at Boston Medical Center is presenting
    Stepping Forward - Staying Informed
    Understanding the Science
    Impacting the Politics
    Weighing the issues of Spinal Cord Injury Research

    held Saturday, Nov 19 th The Boston Conference and Exhibition Center in Boston.

    Our good friend and the big guy at Boston Medical Center rehab dept, Dr. Steve Williams, is, in my opinion, the best friend the SCI community has in Boston and is working hard for the SCI community to be heard here in Boston.

    In addition to Dr. Young other keynote speakers will include Dr. John McDonald, Congress James Langevin of Rhode Island and many other distinguished speakers. Again, check out the web site.

    Our experience in the Boston area has been one of disappointment when it comes to knowledgeable SCI care and active research. Hopefully, this conference will get the attention that Dr. Williams and his hard working staff have been trying to bring to the area.

    Hopefully, many of you in New England can be there. See you there????

  2. #2
    Great, Chuck. Thank you for the information. We'll link it to the U2FP website, also. It should be a good conference.

    Susan

  3. #3
    Boston Dad-
    Thanks so much for posting this information. My son, Noah, was paralysed at the C7 level in February in a skiing accident. Although he lives in Colorado and so will not be able to join us at the conference, my husband and I will be there. I just signed up! We live in Southern New Hampshire.
    I am very much looking forward to hearing Dr. Wise and his collegues speak. I would not have known about this opportunity without your post.
    Again, my deepest thanks.
    Sincerely
    Mimi Wight

  4. #4
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    Wise @ Boston

    Baring any difficulty with WC transportation from Dover, NH, I’ll be there to attend.

    Looking, forward!

  5. #5

    Sounds good

    I will plan on going.

  6. #6
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    Boston Conference a HUGE SUCCESS

    I was late, but glad I made the event from a lot of perspectives.

    Missed Wise's words, and gladly met him later between Speakers.

    I'm going to Beijing! The rest are details.

    Greater Boston folks are greeeeaaaaaaaaaaaaaaaat!

    Tony

  7. #7
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    New England Finally on the SCI Map

    Dr. Steve Williams, Chief and Chairman ad interim of the Department of Physical Medicine and Rehabilitation at the Boston Medical Center & Boston University School of Medicine along with Claudine Dejoie, Program Coordinator Specialist, of BMC (and staff) organized and presented an absolutely fabulous conference.

    This conference, in my opinion, was the awakening of a medical giant...the Greater Boston medical/ intellectual community and the opportunity for those in the New England SCI community to bond and become a political force . Many of us in the SCI community have been dismayed at the lack of attention the SCI community has received in this, one of the the "medical meccas" of the world. This is about to change.

    Dr. Wise Young, as always in his most humble way, brought the words of "Hope" and "Cure" to many who have not heard these words. He gave a wonderful presentation about the history and the future of SCI research. Doctor Young is a tireless crusader for us in the SCI community. Beyond his work in the laboratory Dr. Young is organizing the world community on our behalf. We could see the passion in Dr. Young's voice coming from very tired eyes. I want to make it very clear to all members of the CC community that in my and my family's opinion, that this one man is making a difference in all of our lives. Certainly, as with Christopher Reeve and the thousands of other dedicated doctors and researchers out there, this search for a cure and improved quality of life can not and does not lay on the shoulders of one person, but Dr. Young is the maestro and the messenger. Dr. Young brought his message to Boston yesterday...Dr. Young thank you.

    Beside Dr. Young, Congressman James Langevin of RI, came straight from the airport and on only four hours of sleep and spoke of his work for stem cell research in Washington. He could have blown off this conference and gone home to rest but he pushed himself because he is passionately driven to make a difference. Attorney Bernard Siegle, Executive Director of the Genetics Policy Institute, another man of passion spoke of their work in educating and promoting the science of ESC theraphies. Dr. Susan Harkema gave a positive presentation of her work with treadmil locomation that has shown tremendous success in getting people on their feet and moving.Dr. John MacDonald was there to give a presentation of the wonderful benefits of FES.

    I have to publicly apologize to the members of the speakers forum as I took some of their time to address the need for people to get political active and to get to work on passage of the CRPA. It just needed to be said.

    I made some great contacts with other people in the area who I will be speaking with in the near future to help keep this awoken Boston Medical Giant moving. Dr. Williams and company thank you for picking up the SCI torch here in New England. We are finally on the map.
    Last edited by bostondad; 11-21-2005 at 01:00 PM.

  8. #8
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    Afrangos

    Afrangos,
    It was hectic yesterday. Wish I had met you. Curt were you there?

  9. #9
    My husband and I were at the conference, as well. I want to join Boston Dad in his ringing kudos for Wise Young. His presentation was esp. informative for those who were obviously not aware of the various trials and treatment modalities happening around the world. In his gentle and most humble way, Wise brought renewed hope to many people yesterday. This man is truly an angel and a tireless advocate for the cure. There were many SCI "families" in attendence. Wise told me that 90% of those attending were, in fact, SCI families. He had expected to be speaking mostly to scientists and practitioners and had to ad lib his presentation somewhat to address the "civilian" crowd.
    I was particularly affected by the call to action from all the speakers for the SCI community to organize for political advocacy. Speaking as the mother of a newly injured son, I know how difficult and all consuming life after SCI becomes. Adding involvement in political action, trips to DC, to various state houses, letters to pols, etc., etc, is just more than many can handle. This is probably much of the reason the SCI community has not been more effective in this arena.
    Despite the difficulty, however, we need to get it together and get it done.
    Yesterday was a proud kickoff in the Boston area and I, for one got motivated. I even got a hug from Wise.
    BTW: Hi Wise...it was wonderful to speak with you and to meet you face to face.
    Mimi Wight

  10. #10
    It sounds awesome...Seems like we get there, one by one, Mimi. Welcome to the land of the cure-mongers. Now help us figure out how to get the word to the next bunch! You're in good company in Boston. Chaz, Chuck, Tony, Bob Mulcahey...great advocates all.

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