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Thread: Is there a walking quadrapalegic forum

  1. #1
    Senior Member mj23's Avatar
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    Is there a walking quadrapalegic forum

    If so is it on care cure? If not where can I go?

  2. #2
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    Cue words in Google search

    MJ23,
    Welcome to CareCure. I'm not an expert, but try entering cue words such as walking, step, braces, etc., for any area of interest in the Google Search provided on the upper right side of the site.
    You'll find para and quad info together unless you are looking at topics more specific to each - hands, respiratory function/breathing, autonomic disreflexia are more quad specific.
    Walking may have more to do with your Asia Score, A,B,C,D sometimes related to / called complete or incomplete.
    Rehab centers including Sit Tall Stand Tall, Neuro Institute, Project Walk, Neuroworx, SciStep and others offer programs which may assist your efforts.

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  4. #4
    Senior Member mj23's Avatar
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    thank you

  5. #5
    Just curious -- it seems from all the postings about walking quads, those that did regain the ability to walk had very fast recovery post-op.

    Are there any walking quads who recovered more slowly, perhaps not showing movement for a month or longer? Any ASIA A's that were reclassified ASIA Bs and then later regained ambulatory movement?

    Do any of you recall experiencing aching in your legs from using the standing frame initially?

    Thanks,

  6. #6
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    Asia A

    Initially, my son talked about tingling in his legs when standing and no other sensation.

    As he began to walk with braces about 2 years out, he talked about "referred" pain - when he would fall on an arm or his backside, he would get a headache. Obviously, he was still without specific sensation.

    He is now 3.5 years since injury and when he fell on his backside recently, it was very clear what he hit. Likewise, his stomach was sore for the very first time since injury following a rigorous rugby practice and weight workout. He was not sick and there were no changes in bowel or bladder - just sore muscles. He was thrilled!

  7. #7
    Senior Member mr_coffee's Avatar
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    Brighter days, when you say the ability to walk, do you mean like how 'im talking with a KFO and forearm crtuches or do u mean non asissted? I didn't get any movement for 3 months post op. Then my right toe moved and it went all uphill from there.
    Injured:10-16-04
    C7/C8, T1 incomplete;


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  8. #8
    Mr Coffee,

    Thanks for your reply. I meant on crutches, not non-assisted. Wow - 3 months post op. That gives me renewed hope as we're not even 2 months since surgery. Still no movement yet, but he now can feel me tickle his feet, although it's kind of a delayed response which is odd.

    Thanks.

  9. #9
    Senior Member mr_coffee's Avatar
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    Yep, don't give up hope, the doctors and PT's where like, statitics show that no, your not going to walk...and my mom said, fuck the statics, he is going to walk and thats what I did. It sucks when the in-patient PT's arn't giving you postive feedback, thats what you need the most, not unrealistic hope, but somthing to push towards.
    Injured:10-16-04
    C7/C8, T1 incomplete;


    For stalkers convenience:
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  10. #10
    Senior Member feisty's Avatar
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    I've been out of the hospital for exactly 1 year as of yesterday, and I was an Asia B, full sensory and no movement below the chest, and now I'm an Asia C that's working on standing and walking unassisted.

    I've tried the KAFO's and I'm able to walk between the paralell bars with them, but I'm working on retraining my knees to not need braces.


    Everyone's recovery takes time, and everyone's recovery goes at different speeds. I know i'm super impatient with myself, but it doesn't necessarily do me any good... patience and hard work will get you the farthest. good luck!
    An administrator made me remove my signature.

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