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Thread: Books/Resources for Spouse/Caregiver

  1. #1

    Question Books/Resources for Spouse/Caregiver

    Do you know of any good books/resources for spouses/caregivers and the effects of chronic disability in a marriage? My middle aged hubby and I want to get some support to avoid burnout. We are still very much in love and want to keep it that way.

    I am a long-term paraplegic, 32 years, and things have been going downhill for me physically for the past few years. I was an independent paraplegic when we married, so it is the complications of the long term disability as opposed to the paraplegia that is problematic for both of us.

    Any ideas you have will be welcomed.

    Thanks!

  2. #2
    The best reading I have found has come from the post in this forum.....


    kinda gives you a reality check, let us know if you find anything.....

  3. #3

  4. #4

    here are more links

    Thanks for the replies and links! Some folks on Braintalk forums provided these and I pass them along with their blessings:

    Books
    http://caregiver-information.com/Bo...neral_books.htm

    Caregiver.com: For Caregivers, About Caregivers, By Caregivers
    http://www.caregiver911.com

    Caregiver Information
    http://caregiver-information.com

    Caregiving
    http://www.craighospital.org/SCI/METS/caregiving.asp

    Caregiving & Equipment
    http://lifecenter.ric.org/topic/2/

    CaringRoad
    http://www.caringroad.org

    Family Caregiving 101
    http://www.familycaregiving101.org

    Information Center for Individuals with Disabilities
    http://www.disability.net

    Long-term Care Givers: For Better and For Worse
    http://www.craighospital.org/SCI/ME...mCareGivers.asp

    National Caregiver Resources
    http://lifecenter.ric.org/content/1...opic=&subtopic=

    National Family Caregivers Association
    http://www.nfcacares.org

    PN/Paraplegia News: Resources
    http://www.pvamagazines.com/resources/index.php?pub=1

    Well Spouse Association
    http://www.wellspouse.org

    WheelchairNet: Personal Issues
    http://www.wheelchairnet.org/WCN_Living/personal.html


    I was just searching for something on another site and came across a page that has links to resources for caregivers to people in chronic pain. I thought I'd pass it along too:

    http://www.partnersagainstpain.com/...sid=16&aid=7674

    Take care all!

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