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Thread: Leg/Stomach Spasms

  1. #1

    Leg/Stomach Spasms

    I am trying to quit baclofen for my spasms because I'm up to 30mg 3x a day so it is time to consider a pump, I do not want that. I have tried Flexeril but that experiment went very bad, side effects and very little sleep because of spasms.

    I have gone back to baclofen but now my dr. has given me a script for soma 350mg tablets, I assume I take three a day, is this the max dose? My family doctor isn't very familiar with SCI. I will start trying those after Labor Day probably, it is my accident anniversary so I don't need spasms and side effects on top of everything else.

    Will the soma help or is there a combination I should try or should I just break down and get a pump, the baclofen does work very well? I also have neuropathic pain in my lower legs, the doctor said soma might help that as well. I did try neurontin for three weeks but felt no difference, was told to stop.

    I did originally have a script for zanaflex but insurance denied it, I think after I try everything else they may cover it.

    Thanks for any advise,
    Dave
    C5/C6 complete
    http://www.davegrotzinger.com
    http://www.daves-webdesign.com

    "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

  2. #2
    I'm pretty sure the maximum dose for baclofen is 80 mg per day. 350 mg three times a day would definitely be an overdose.

  3. #3
    I'm on 30mg 3x a day of baclofen. The 350mg 3x a day is soma which will hopefuly replace baclofen.
    Dave
    C5/C6 complete
    http://www.davegrotzinger.com
    http://www.daves-webdesign.com

    "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

  4. #4
    Quote Originally Posted by dgrotz
    I'm on 30mg 3x a day of baclofen. The 350mg 3x a day is soma which will hopefuly replace baclofen.
    i think 30mg 3x a day is max on baclofen. dunno if soma can replace it. baclofen is sposed to be the best thing for spasms. as for the pump..i had one..got a staph infection so they had to take it out. it definitely relaxed everything but it does bulge out on your side. i move around a lot an it really hindered movement. ive just decided to deal with it. when i had the pump..legs were dead an heavy. at least the spasms help make em jump up to where im tryin to put em,lol.

  5. #5
    Quote Originally Posted by rollin64
    i think 30mg 3x a day is max on baclofen. dunno if soma can replace it. baclofen is sposed to be the best thing for spasms. as for the pump..i had one..got a staph infection so they had to take it out.
    80mg. a day is max for oral baclofen and I do agree it is the best for spasms but I don't wanna get a pump for that very reason, I seem very prone to infections. I really need to know what other options there are, my doctor sure doesn't know and specialists prescribe stuff insurence won't cover and tells me to follow up with PCA because they don't want to take the time to fight with insrence, I would fight with ins. but they won't talk to patients just doctors.

    Thanks
    Dave
    C5/C6 complete
    http://www.davegrotzinger.com
    http://www.daves-webdesign.com

    "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

  6. #6
    Although 80 mg of baclofen is the maximum recommended dose, I have seen many patients on significantly higher doses without any side effects beyond feeling a litle sleepy. You know that you shouldn't stop baclofen abruptly, don't you. That can cause some really nasty things like psychosis and seizures.

    Soma and flexeril are not effective with spinal cord injury type spasms. Tizanidine (Zanaflex) and diazepam (Valium) are effective with SCI spasms. Some doctor who knows something needs to go to bat for you with your insurance company to get either or both of these agents. Why don't you want a pump? I find that they work miracles with spasms and leave people with clear, alert minds in ways that oral meds can't.

    RAB

  7. #7
    RAB thanks for the reply. I am aware I need to change meds slowly and use caution. I do not want a pump because it will require surgery and also open a new site for infections. I seem to be quite prone to infections, frequent UTI's, occasional skin infections from SP tube site, and an unexplained blood infection a few months ago. Are these unfounded concerns? The payoffs do sound good but I feel the risks are to great.

    Thanks,
    Dave
    C5/C6 complete
    http://www.davegrotzinger.com
    http://www.daves-webdesign.com

    "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

  8. #8
    bump, please help
    Dave
    C5/C6 complete
    http://www.davegrotzinger.com
    http://www.daves-webdesign.com

    "I knew all the rules but the rules did not know me guaranteed..." - Eddie Vedder

  9. #9
    Once the surgical incisions are healed (one on the belly, one on the back), there is very little chance of infection as long as whoever fills you pump uses good sterile technique.

    RAB

  10. #10

    Spasm drugs

    I take 30mg of Baclofen 4x daily with 8mg of Zanaflex,and 75mg of Dantrium 3x daily. I am maxed on the Zanaflex and Baclofen. The Dantrium was what helped me level off the intensity of the spasms. Recently, they have begun to lessen in number of spasms(slightly). I take 2 valium and 1 Flexeril at night. This has calmed them down at night. However, after my recent gall bladder surgery, the spasms have gotten jumpy again. I think this may be due to the fact Im shutdown from rehab for 3 wks while the surgical stitches heal up. Lotta stuff to read,Hope any of this can be of some use....John

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