Page 1 of 3 123 LastLast
Results 1 to 10 of 27

Thread: What do you wish people knew about SCI?

  1. #1

    What do you wish people knew about SCI?

    There was a topic close to this a while ago. Most of the post echoed a statement like, "I'm still a person". We all know that. I am hosting a Spinal Cord Injury Information booth at a local festival on Sept 10. At this booth I plan on having info about; injury prevention, injury levels/function, complete vs incomplete, stats, the daily life of a spinal cord injured person (including B&B), current programs, therapies, research, and legislation effecting the quality of life and the prospect of a cure for paralysis, and everything in between.

    What specifically would you like people to know about SCI? What do you wish you knew before you got hurt? Can you point out any documents that sum up the info that you want people to have?

  2. #2
    Quote Originally Posted by jplw
    There was a topic close to this a while ago. Most of the post echoed a statement like, "I'm still a person". We all know that. I am hosting a Spinal Cord Injury Information booth at a local festival on Sept 10. At this booth I plan on having info about; injury prevention, injury levels/function, complete vs incomplete, stats, the daily life of a spinal cord injured person (including B&B), current programs, therapies, research, and legislation effecting the quality of life and the prospect of a cure for paralysis, and everything in between.

    What specifically would you like people to know about SCI? What do you wish you knew before you got hurt? Can you point out any documents that sum up the info that you want people to have?
    that we,men. still get erections and lead normal active sex lives.
    Bike-on.com rep
    John@bike-on.com
    c4/5 inc funtioning c6. 28 yrs post.
    sponsored handcycle racer

  3. #3
    Accessibility issues, and how many places really aren't accessible that AB seem to assume are.

    Sim

  4. #4
    Senior Member keps's Avatar
    Join Date
    May 2005
    Location
    United Kingdom
    Posts
    5,355
    That paraplegia is not always from the waist down.

  5. #5
    Moderator Obieone's Avatar
    Join Date
    Aug 2001
    Location
    Manitoba,Canada
    Posts
    5,630

    That every sci is unique ...

    even when its at the same level!!!!

    ... that it makes a difference if you are an old codger like Shaun or a young whiper snapper like Josh or Noah

    ... that it's not "just" about not being able to walk

    ... money matters

    Obieone

  6. #6
    Senior Member Aly's Avatar
    Join Date
    Feb 2005
    Location
    Radford, Va
    Posts
    2,112
    Just because the injury level sounds close or similar it does not mean that they can always do the same things. You body structure and things of that nature can help or hurt your ability to perform certain tasks. Just because something works for one person doesn't mean it works for everyone.

    Oh wait I want people on this board to be able to realize that!
    www.cawvsports.org
    The trick is in what one emphasizes. We either make ourselves miserable or we make ourselves strong. The amount of work is the same. ~ Don Juan Matus
    We are Virginia Tech… We must laugh again… No one deserves a tragedy… We are strong, and brave, and innocent, and unafraid…We are better than we think and not quit what we want to be…We are the Hokies…We will prevail, we will prevail, we will prevail. We ARE Virginia Tech! ~ Nikki Giovanni

  7. #7

    Talking

    Quote Originally Posted by Aly
    Just because the injury level sounds close or similar it does not mean that they can always do the same things. You body structure and things of that nature can help or hurt your ability to perform certain tasks. Just because something works for one person doesn't mean it works for everyone.

    Oh wait I want people on this board to be able to realize that!
    realize what?????????
    Bike-on.com rep
    John@bike-on.com
    c4/5 inc funtioning c6. 28 yrs post.
    sponsored handcycle racer

  8. #8
    Thanks for your replies. I will have info on sexual function, injury levels and complete vs incomplete, and economics. I will put up more on accessibility issues and age. As far as far as it's not "just" about not being able to walk, I found this http://www.liebertonline.com/doi/pd...eu.2004.21.1371 .

  9. #9
    Strictly speaking for myself...1-that im not fragile and breakable and 2-im not angry and bitter.

  10. #10
    Senior Member Scorpion's Avatar
    Join Date
    Jul 2001
    Location
    Los Angeles
    Posts
    5,896
    Quote Originally Posted by Shaun
    Strictly speaking for myself...1-that im not fragile and breakable and 2-im not angry and bitter.
    I hear ya, bro.

Similar Threads

  1. Replies: 8
    Last Post: 02-13-2005, 09:12 AM
  2. Replies: 1
    Last Post: 01-18-2004, 02:38 PM
  3. Into the unknown
    By Max in forum Cure
    Replies: 0
    Last Post: 12-19-2003, 07:03 PM
  4. Replies: 6
    Last Post: 12-16-2002, 04:07 PM
  5. relationship re:SCI & thyroid
    By franroty in forum Care
    Replies: 4
    Last Post: 12-02-2001, 08:04 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •