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Thread: Baclofen pump problems and questions

  1. #61
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    Andw rdf you said ejeculation. How? I sem to have up/down disease with mine. Tried viagra once but i was woreout and cost is WAY TOO HIGH?

  2. #62
    I work with a relative with a baclofen pump. Our problem is locating the insertion point to refill the pump. We have a diagram and they use the little electronic device to program it. But, they have a heck of a time hitting the right spot. They just poke that needle in over and over. After many multiple tries from several nurses and interns, they send us down to xray and hit it right away. Is this common? Can we skip the poking pain and go stright to the xray? How do we find someone will to do it this way?
    Thnks

  3. #63
    Senior Member rdf's Avatar
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    They should be using a template to locate the insertion point. It's a little plastic thing that fits right over the pump. They usually miss a time or two even then, but it really helps. I thought it was standard procedure to use a template.
    Quote Originally Posted by quad care View Post
    I work with a relative with a baclofen pump. Our problem is locating the insertion point to refill the pump. We have a diagram and they use the little electronic device to program it. But, they have a heck of a time hitting the right spot. They just poke that needle in over and over. After many multiple tries from several nurses and interns, they send us down to xray and hit it right away. Is this common? Can we skip the poking pain and go stright to the xray? How do we find someone will to do it this way?
    Thnks
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  4. #64
    They use a template, it just doesn't seem to do the trick. They still can't find it.

  5. #65
    Senior Member rdf's Avatar
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    Well, some nurses are just better than others, I guess. That's been my experience. But they've never gotten it on the first try, even after 15 years. I'm sorry your friend is suffering pain. Can't they deaden the area where they insert the needle beforehand?
    Quote Originally Posted by quad care View Post
    They use a template, it just doesn't seem to do the trick. They still can't find it.
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    Thanks!

  6. #66
    Senior Member McDuff's Avatar
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    Next time that they get it right, especially if in xray as they can tell you easily, ask "which way does it point?"

    There is a "bump" on one side and this is how they align the template. I can tell them, "mine points at 1:30", they know to start at that clock point and it helps them so that they can narrow it down better. I have been getting hit in only 1-2 times for awhile now.

    I assume they are trying it when he/she is laying down, the tighter the area the easier to find the spot. Long term, having excess fat around the pump area is bad, much harder to find the spot. If the person is heavy(not saying they are ), have them try using the longer needle that is also included in the kit.

    You might have to get proactive, tell them if you don't get it in 3 tries, send us to xray, I'm not a damn pin cushion!
    "a T10, who'd Rather be ridin'; than rollin'"

  7. #67
    If they are still having problems getting it, you might try getting a prescription for EMLA cream, which numbs the area. You put it on about an hour before the refill cover it with tegaderm and it does numb the area.

    CKF

  8. #68
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    my pump had a kink took the 3 dye test to find it meanwhile it would never work it od me several times dam near died i quit taking it but after a yr i may have to start

    but it can dump a huge amount in your system be careful like the others you know your boby

  9. #69

    Recall

    In July of 2011 there was a recall on the Medtronic device from THE FDA, please check your serial # at http://SynchroMed2battery.medtronic.com
    I'm a Mother of child with CP who had a pump placed in him in 2007. I never believed it helped him. He can't talk but every time about 2 weeks before it's time for a refill he is up sometimes for 7 to 10 days just out of his head. I've complained over and over to his doctor only to have them increase his dose. He is now at 1000 a day and due for a refill at the end of this month. I have asked his doctor to take it out but he won't. His alarm has gone off 2 weeks before it was due for a refill and one time while in the hospital after a CT and MRI , they never came to check it like they usually do, so i asked them to come to the room to check it and it wasn't on! He has had 2 die test only to be told they couldn't see the tubing directly behind the pump. My son was droped 3 and 1/2 feet at school out of a lift in 2008 ; full impact on his bum, he couldn't brace him self, no motor control. When he got to the hospital they said he was fine. My son has been bedridden sence. I ask for them to check the catheter, they claim theres nothing wrong, I question that as will.

  10. #70
    Senior Member darrel's Avatar
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    It took about a year and a half to get my dosage to where I like it. I am at 660 mics/day for the last 4 years. I tried another increase that they did not really want to give recently but I had them back it back down because I had trouble walking at night. I have 2 different settings one for day and one for night (had more spasms at night). I also take 6mg tezitadine (generic zanaflex) three times a day and then 8 mg and a Valium at bedtime for my upper body (pump is only good for lower extremity's from where your cath is placed) yes it does stop the spasms but you still want a few for tone

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