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Thread: Hey Wise or Nurse!

  1. #1

    Hey Wise or Nurse!

    I got a copy of the neurosurgeon's report to my doc. He is doing a reconstruction of the subarachnoid space with lysis of the scar. He said if we are unable to do this I will require a syringoperitoneal shunt. He also said there are a lot of septa with-in the synrix. What is septa?

    The other thing I hope you can answer, I've faxed and e-mailed him with some of my concerns, I will also phone him in the morning, he better phone me, I go in on Tuesday. But here is the question:

    The mri shows the synrix from t7-8 up to the cervicomedullary junction, so ok, here it is. I had a head injury at the time of my sci, I have also had a few concussions and whiplashes, and I kinda remember brusing a vertabre in my neck also. So, is it not possible that the synrix could have started at the cervical area and went downwards instead of t7 upwards? I thought that you can't see scar tissue on a mri. What I don't want to happen is he goes in and takes out a little bit of scar tissue and it doesn't work, and I have to go back in and have my head cut open a few months later, cause that's where most of it was.

    What do you think of my alternate theory, I know that it's the most obvious being from the t7 up but ? Is there not a way of knowing for sure before going in there? Or does he already know and I'm just being paranoid?

    Thanks so much again, you guys have helped me so much already.

  2. #2
    Monkeygirl,

    Septa just means membranes. What your neurosurgeon means is that your syringomyelic cyst is not just a cavity filled with fluid but that there are membranes within the cyst that is separating and producing little pockets of fluid.

    The procedure that has been used by the Miami Project team is to expose the spinal cord, remove all adhesions between the spinal cord and dura. If they do not find adhesions, they will place a catheter into the cyst and drain it. They may put the other end of the tube either into the subarachnoid space (the space where the cerebrospinal fluid usually surround the spinal cord) or into the pleura (the space in your chest just outside of the lungs), to drain the cyst. In several reports, described in other postings here, this procedure has produced long-term collapse of the cyst for five or more years in about 70-80% of patients. Here are some connections to earlier postings on the subject:

    http://carecure.org/forum/showpost.php?p=11557
    http://carecure.org/forum/showpost.php?p=13792
    http://carecure.org/forum/showpost.php?p=65391
    http://carecure.org/forum/showpost.php?p=65391

    Wise.

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