Page 1 of 2 12 LastLast
Results 1 to 10 of 17

Thread: kill the giant

  1. #1
    Senior Member alan's Avatar
    Join Date
    Jul 2001
    Location
    Baltimore, MD
    Posts
    6,722

    kill the giant

    It's time to kill the giant that's twisting my spine sideways, and squashing the vertebrae together. That bastard giant (no name yet - Adolf, Josef, Saddam, Mao all would be be fitting) also scraped all the skin off my hands, and off my body from the upper back and chest down and keeps pouring alcohol on me, broke all the bones in my back and shoved them through what's left of my flesh, glued my fingers, legs and toes together, and scooped a chunk out of my gut. And a few other things.

    Where do I find a hit man for giants (or one for me, even?)

    Alan

    "Was it over when the Germans bombed Pearl Harbor?"

    [This message was edited by alan on 07-16-04 at 08:28 PM.]

  2. #2
    Senior Member alan's Avatar
    Join Date
    Jul 2001
    Location
    Baltimore, MD
    Posts
    6,722
    Things are totally screwed and sharper (especially my right side, from my foot up to my shouler), and nobody knows why. And the damn bone on bone rubbing in my back. I'd love to get out and see some specialists, but I can barely even stay up in the chair for long these days. I'm depressed and disgusted, and my mind is going.

    Alan

    "Was it over when the Germans bombed Pearl Harbor?"

    [This message was edited by alan on 07-19-04 at 08:16 PM.]

  3. #3
    Alan, please hang in there. Wise.

  4. #4
    Senior Member alan's Avatar
    Join Date
    Jul 2001
    Location
    Baltimore, MD
    Posts
    6,722
    "We must hang together, or we will surely hang separately."

    I'm trying, but there's only so much torture a human can take (which is the whole point behind torturing people.) Nake no mistake, this is torture.

    Alan

    "Was it over when the Germans bombed Pearl Harbor?"

  5. #5
    Junior Member
    Join Date
    Jul 2002
    Location
    Wahoo-NE-USA
    Posts
    27
    Alan

    I'm not a doctor, but my husband was a c5-6-7 and had been in sever pain for 2 years. He always described it as the feeling of sharp pain before your feet ar legs woke up when falling asleep. This was constant from his mid back to his toes. We had a nurse suggest Methadone and after being on it for two weeks he made the comment that for the first time since his injury 6-6-02 he had no pain other than a small throb in his left thigh. So maybe you could speak to your doctor about the side effect and his/her thoughts on it.

    This is just an idea. I know Bob was in so much pain in the chair or in bed.

    Cara

  6. #6
    Your post seems to indicate your husband has passed on. I am very sorry your husband was in so much pain.

    People are always surprised that pins and needles can hurt. It often gets passed over in a list of CP pains. Your husband's experience matches that of so many.

    Clearly we need a better term than pins and needles, as people do not associate that term with much pain.

    Any pain or discomfort in the body can become neuropathic if the nerves involved become injured. The pain of diminished circulation is not severe in normals, but in nerve injury the nerves appear able to recruit and sensitize other fibers and make them begin autonomous, automatic firing. This spreading hyperalgesia is thought to occur in the dorsal horn and dorsal root ganglion of the cord. It is not limited to the level of injury, but picks up all fibers from below: or, if the descending tract of cranial nerve V is injured, the neuropathic pain extends upward to the head

    Heightened sensibility is the hallmark of sensory nerve injury. That is what central pain is. Oddly, it is always accompanied by some sensory loss. Injured pain nerves are apparently designed to fire powerfully when injured. Growth factors attempting to maintain nerve function repair pain function only too well, by taking over the gene expression until huge amounts of pain chemicals pour out and inflict serious torture long term on the individual. The firing is not helpful over the long haul, and indeed can be life threatening. We do not see with the eyes, the terrible process going on at a molecular level, but the process is absolutely measurable in rats, who can be sacrificed. Capsacin reproduces some of the burning of CP, so it can be used to inform researchers what CP is like.

    All skeptics have earned the right to have a little capsaicin subcutaneously so they can see how they deal with having CP in one little tiny area of the skin. I know of no one who has done this twice, it is unnecessary.

    Capsaicin releasss Substance P and stimulates the VR1 receptor, aka vanilloid receptor. PhD's who do this work do not question CP, rather they question the ethicality of making rats suffer so.

    Motor nerves are not known to increase the frequency of action potentional (voltage spike from sodium flow inward) firing in response to THEIR OWN injury. However, muscles may become tetanic or spastic if HIGHER upper motor neurons are injured. Muscles would like to contract but are inhibited by higher centers. We do not know if pain fibers would "like" to fire, but it appears so. Whether higher centers give positive or negative feedback is not well worked out. I suppose one could look at central pain as pain tetany. Spread out through the system, pins and needles can nearly drive a person insane.

    "Pins and Needles" almost certainly comes from visceral afferents which travel with blood vessels. CP people who have it also show blotchiness on the palms, feeling of swelling in feet and hands, etc. just like those with injury to a peripheral nerve in RSD. Visceral afferents are thought also to transmit the pain of what used to be called reflex sympathetic dystrophy, but RSD is now called CRPS.

    Because pins and needles is often amenable to opiate therapy it is also assumed it comes from the posterior cord. Posterior cord pains are the most intense of the Central Pains but they tend to evolve and frequently to respond to medication. There is at present no satisfactory treatment for pains which come from the anterior cord, such as burning dysesthesia, a bizarre poorly localized, "fat" burn.

    May your husband rest in peace, free of the tears of his ordeal here. I am sure you miss him. Thank you for honoring his memory.

    [This message was edited by dejerine on 07-21-04 at 02:30 PM.]

  7. #7
    Senior Member alan's Avatar
    Join Date
    Jul 2001
    Location
    Baltimore, MD
    Posts
    6,722
    Cara,

    I've been on methadone (and morphine, and OxyContin, and probably hundreds of other meds.) No joy. I'm glad your husband found relief.

    Dr. Young,

    It's getting awfully tough to hang in. I can't go out, because even without a shirt I can't tolerate riding in the van (I feel every stop, start, and little bump in my back and abdomen, and the latter effect quickly makes me nauseous on top of everything. 10 minutes is too much. I used to have no problem riding for an hour or more.) It's gotten to the point where I'm having the same problem riding in my chair - between the back pain and scoliosis, I always had trouble driving it, but now I can't go far because I feel all the imperfections in the street or lawn (I used to cruise around my neighborhood every nice day - now, I can barely make it down the street or into the back yard.) And the pains keep intensifying and spreading, so this will only get worse (I've even had to cut down my arm and leg range, because moving appendages pulls on the back and abdomen, respectively.) It's harder to breathe and talk than it used to be.

    This is one of the few places I still type - between the scoliosis making reaching the keys problematic, and the shoulder pains limiting my arms, I'm unable to type like I used to.

    There are no adequate words to describe these sensations. My "pain diary" at painoline.com is but a glimpse into this hell. Yet the MRIs say my cord is stable all these years. I'm going to take a long nail and pop that damn hole - thanks to the laminectomy, there's no back of C-5 in the way.

    Alan

    "Was it over when the Germans bombed Pearl Harbor?"

  8. #8
    Sorry, Alan

    There are few things more demoralizing than to have someone enthusiastically endorse something and find out it doesn't do squat for you.

    I wish I could come up with some practical way to make life easier for you. I can tell you are desperate or you wouldn't be listening to dummies like us.

    The only thing left I can think of is persistence. If you call medicare daily for help with your problems, maybe you will weary them and they might do something.

    Good luck to you, and all who suffer.

    [This message was edited by dejerine on 07-22-04 at 12:20 AM.]

  9. #9
    Senior Member alan's Avatar
    Join Date
    Jul 2001
    Location
    Baltimore, MD
    Posts
    6,722
    If I didn't have photographic evidence to the contrary, I'd swear the hole in my cord is growing. The pain is now all the way to the top of my back, and all areas keep getting sharper. The damn back bones keep rubbing, and I feel as crooked as the pictures on the scoliosis sites look (the right side is so far forward of the left when sitttng, it's ridiculous. I need to shove a pole up my butt to my neck to straighten me out.) I used to sit 15 hours a day - now 10 is stretching it.

    Padding doesn't stop the transmission of road bumps, unfortunately. And voice typing is out, because of the breathing/talking difficulty caused by the abdominal pain. It's a mess.

    Alan

    "Was it over when the Germans bombed Pearl Harbor?"

  10. #10
    Senior Member solarscar69's Avatar
    Join Date
    Oct 2003
    Location
    Missouri
    Posts
    383
    "I'm going to take a long nail and pop that damn hole - thanks to the laminectomy, there's no back of C-5 in the way."


    Awww..... Thats gross man.

    faster than a speeding ticket

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •