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Thread: Preservation of Upper Limb Function

  1. #1

    Preservation of Upper Limb Function

    I wanted to refer everyone on this forum who is selecting wheelchairs or other equipment and their features and is concerned about doing this with awareness of protection of their shoulders, elbows and wrists to this post on the Care forum.

    (KLD)

  2. #2
    So those of us who are injured and have ACTUAL day to day wc experience are incapable of providing sound advice concerning this information?

    God forbid something isn't addressed in the almighty Care forum...

  3. #3
    Senior Member
    Join Date
    Jan 2005
    Location
    South Carolina
    Posts
    397
    Obed,
    That's not a very fair thing to say to one of our great SCI nurses. She never implied anything like that at all. We are capable of telling others what has worked well for ourselves, and advising them about the many options availible to them. But when it comes to the bio-mechanicals, I have to wonder just how many of us are medically qualified to advise other members?

    Linda H.

  4. #4
    Linda, you said it. Nurse, not biomechanic.

    And excuse me for disagreeing with the omniscient.

    As far as fair KLD and the other nurses RARELY if ever acknowledge ANYTHING said by any members or those actually living with sci day to day as being right. If its not in their world or what "they've experienced" then its wrong or doesn't exist.

    A little humility, once in awhile, would go a long way. This thread, imo, is yet another example of the exact opposite.

    We're all entitled to our own interpretations of the various threads/people Linda. And considering that you just registered in January of this year you simply haven't been around here long enough to experience the condescension.

  5. #5
    For some, ignorance is bliss.

    A resource was offered, and rejected. Everyone makes a choice. No one is forcing information or scientific research on you. You also disrespect the professionals who also have a SCI who served on this panel of experts. Each to his (or her) own.

    (KLD)

    [This message was edited by SCI-Nurse on 06-01-05 at 11:08 PM.]

  6. #6
    i think these studies are bs myself....

    As ive said before kld has great book knowledge, but to me lacks real world experience.OLD SCHOOL .but imo most "sci specialists" do.....

    If u havent lived it you dont have a clue. The best "sci specialists" would agree...

    Linda H, you sound like alot of newly injured sci, but your profile says your 12 years post; that buy into the "sci specialist" bs. im surprised by your comments.

    "Man is bound to follow the adventurous promptings of his scientific and inventive mind and to admire himself for his splendid achievements" Carl Jung

  7. #7
    Senior Member
    Join Date
    Jan 2005
    Location
    South Carolina
    Posts
    397
    Fuentejps& Obed,
    Yes, I am 12 years post injury, and yes I do tend to listen to my SCI specialist. It could be that I am lucky to get my medical care from the VA, that I have recieved such good advice and health care over the last 12 years!!! Don't get the ideal that I haven't had to go to battle to get the equipment and medcine I've needed from time to time. I was stuck with one of the worst power chairs ever made for 5 years, thanks to the head of prosteadics at my old hospital. Once your stuck with a chair like that one you've got it until it's condemed, which finally happened 2 years ago.

    Thanks to the wonderful medical care of all my "SCI specialist" at the VAMC in Augusta,GA I haven't had to spend any time as a inpatient, and darn little time doing out-patient care as well! BTW a couple of the caregivers on the SCI team there are members of our SCI family, so they do know what it is to "live the life". Of course, the fact that patients are truly considered a part of their health care team in the system there makes the difference as far as I'm concerned. I've recieved care at other VA's where that was given a lot of lip-service, and that was all it was given. In all honesty, even with all the problems with the budget they're stuck working with, I know that the VA's SCI health care is one of the best systems in the world, and I've never met a more patient dedicated team of caregivers than the crew in Augusta!!!

    Linda H.

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