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Thread: Moms with SCI

  1. #61
    Hi Katem, I'm so sorry to hear about your daughter. Could you post your e-mail address here or email it to me.

    Thank you.

  2. #62
    Senior Member
    Join Date
    Oct 2001
    Location
    Canada
    Posts
    112
    Hi Seneca
    My e-address is chickie6789@shaw.ca

  3. #63
    Thanks Kate, I sent you an e-mail.

  4. #64
    Member
    Join Date
    Oct 2001
    Location
    Maryland
    Posts
    69
    Hey, is it okay if I join your group? I am just ending my first trimester (with twins!!), and I am starting to get a little nervous about how I am going to handle work, two infants, daycare, the house, the cats, and the rest of my crazy life.

    I am 35 and a T11 para, with complete spinal instrumentation. I am really active and work full time. I tried for a few years to conceive, but we just weren't able to make it work. I don't have a regular period, so I went to a reproductive endocrinologist for help. He did the usual workup and found that my hormones were all screwed up. We tried the traditional fertility drugs, but they didn't work at all. So we decided on IVF, even though it is pretty expensive. I took 2 weeks worth of hormones, did daily blood draws and ultrasounds, had my eggs retrieved, fertilized and return to me. It took 2 cycles, but now I am expecting twins! I am still so excited, but tired and naseated all the time. Oh, I should mention that before we tried IVF I spoke with my orthopedic surgeon, urologist, pain specialist, high-risk o.b., and internist to make sure that everything was okay, including the list of medications that I am currently taking. It seems like a lot of this is uncharted territory, because there isn't a lot of info on drugs and pregnancy. Nor is there a lot of info on multiples with SCI women, but I am okay with it.

    How did you manage your pregnancy and work? How long did you take off from work for maternity leave? Did you return full time? I can't imagine not working (believe it or not, I love my job!), but I am not sure that I have the energy to do it all. My husband is absolutely wonderful and has always been a great help around the house, so I know that I can count on him for everything, but he works long hours as well. We don't have family in the area, so I can't expect help from them.

    How was labor and delivery? I was told that with twins and spinal instrumentation that I will have to have a planned c-section, which is fine with me. How did you survive the last months of pregnancy? I can't imagine gaining the 50 pounds the doctors recommend and still being able to get in/out of my car, running errands, or even getting around the house easily. How much exercise did you do in the last 2 trimesters? How did you manage bladder and bowels? I haven't had any problems yet, but I was told to expect accidents and UTIs as a fact of life.

    Anyway, I think I've asked more than enough questions for now. Thanks all!

  5. #65
    Senior Member KLD's Avatar
    Join Date
    Jul 2001
    Location
    California
    Posts
    866

    Assistance

    Chipper, many of the moms with SCI that I know have decided that the best course (if you can afford it) is to have PCA assistance during their last trimester and then for 6-8 weeks after the birth.

    Many have reported problems in their last trimester with inability to do their own bowel and bladder care, lower extremity dressing, range of motion and transfers. Some have problems driving (reaching the hand controls), and skin breakdown due to dragging during transfers can be a problem as well.

    A PCA helping after the birth can help you with your own care so that you have the time and energy to take care of your babies. Although a nanny may be an option for the childcare, if you are able to care for the babies yourself it will improve your bonding with them and provide you with much gratification.

    Be sure you have checked out these sites as well for more information and tips:

    http://www.lookingglass.org/

    http://www.disabledparents.net/

    http://www.cilt.ca/Parenting/PDN.htm

    http://boards.parentsplace.com/messa...ability21.html

  6. #66

    Wow

    Hey
    The info here is great. I just found out that I am pregnant.Due in July. It wasn't planned ( my bf and I just met 2 months ago ) but it is wanted. I'm excited but really nervous! Things are going to change so much... BTW, I'm 20, C 7/8, injured Aug. 2001. I look forward to your guy's advice which I am sure I will need.

    "Learn from yesterday, live for today, hope for tomorrow"
    ~ Anon

  7. #67

    congrats emi

    I just found out I'm pregnant, too, and due in july.
    I'm c5/6 complete, 35yrs old, injured 12 yrs.
    I've been married for 5 yrs and was wanting this to happen.
    maybe we can compare notes along the way.

    peace,
    alissa

  8. #68

    Sweet, congrats to you too.

    Originally posted by alissa:

    I just found out I'm pregnant, too, and due in july.
    I'm c5/6 complete, 35yrs old, injured 12 yrs.
    I've been married for 5 yrs and was wanting this to happen.
    maybe we can compare notes along the way.

    peace,
    alissa
    Have you been sick yet? When in July are you due? I'm due on the 19th...I'm definitely looking forward to having someone going through the same thing!

    "Learn from yesterday, live for today, hope for tomorrow"
    ~ Anon

  9. #69
    Wow, congratulations guys. I hope you both have happy, healthy pregnancies!

  10. #70

    Congrats to emi???

    I don't understand why some of you are congratulating a 20y/o girl on accidentally getting knocked up by her boyfriend of 2 months.

    I'll just say good luck, and hope you can provide a good life for your child!

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