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Thread: UTI getting worse.

  1. #1

    UTI getting worse.

    5 years post injury T9 and still struggling with UTI.
    Last urine-culture analyse showed 300.000 load of Klebsiella pneunoma infection.
    Until this day ive been self catheterising with no success because ive almos always had accidents and could keep more than 300ml max in my bladder. *in cases of infection no more than 100

    Its 3 months that im forced to use a folley catheter which limits my activity a lot. Im 24yo and hopefully trying to be a father....infections obviously are a big obstacle in my fertility.
    Since im not staying more than 2 weeks without an infection and doctors prescribing every times antibiotics i wanted an opinion from you guys.
    From doctors i keep hearing that i should treat it with antibiotics and drink a lot of water.
    Been using simple antibiotics in the beginning now im on a hospital kind of antibiotic because every other one was resistant.
    What cure do you suggest ? Is it a problem that im switching from folley and intermittent catheter program time to time ?
    And is there a way to increase my bladder capacity and remove infections from my life ?

  2. #2
    Have you tried Ellura? You have to start after infection treated with antibiotics?
    What meds did you try to increase bladder capacity? or Botox?
    What is the pressure? High pressure can contribute to UTI.
    Gentamycin/saline instillation- intermittent cath then put amount in twice a day.
    Have you taken a longer course for 2-3 weeks? Prostatitis? bladder or kidney stones?
    CWO
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  3. #3
    Quote Originally Posted by SCI-Nurse View Post
    Have you tried Ellura? You have to start after infection treated with antibiotics?
    What meds did you try to increase bladder capacity? or Botox?
    What is the pressure? High pressure can contribute to UTI.
    Gentamycin/saline instillation- intermittent cath then put amount in twice a day.
    Have you taken a longer course for 2-3 weeks? Prostatitis? bladder or kidney stones?
    CWO

    I had not heard Ellura before. Checked it online and going to try after finishing my cure with Ceftazidima antibiotics.
    I have used oxybutinin 5mg when intermittent cathing but recently quit since im using a folley cath.
    Urodynamics were done and they told me i have a high bladder pressure but told me it is ok using oxybutinin only. I asked for a botox injection therapy myself and am currently on a waiting list for them to call me. Dont know how long that will take.

    I had not heard before about the gentamycyn saline instillation too.....Can you tell me more about this ?
    I have no stones in my bladder or kidney....recently did 15 days of niddle antibiotics

  4. #4
    Oxybutynin 5 mg how often- 10 mg three times a day is max or long acting 30 mg once a day or some prefer to split and take every 12 hours. Some can’t take the side effects and long acting doesn’t have the peaks like short acting. Recent research shows concern for dementia. FDA has not made a black box warning. I tell my patients and they decide- switch to Trospium, May need Mirgabetron with it or there is Botox. The worry about pressures are the chance of backing up in to the kidney and over a period of time can cause kidneys damage. Think of it like your blood pressure- (bladder pressure) - want it within a certain range - a little high ok but it too high. It rarely happens now because urodynamics is the test to check your pressure before any issues. And it is the first to be picked up. After I change a bed, have person comeback in 3 months for UDS to check pressure and see if within the range. Always start at low dose and go up if needed. So Oxybutynin 5 May be good for you. Most renal failure in SCI is from uncontrolled Diabetes, hypertension- just like the rest of the population. CWO
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  5. #5
    Ive been on oxybutinin 5mg three times a day unsuccesfuly. Maybe i need the max dose ?
    I think i might have a high pressure since my bladder becomes strong and contracted when i have more than 250ml in my bladder. I start feeling dizy , hot and cold and thats the moment when my bladder leaks.
    Going to talk with my medic all the topics mentioned above but urodynamics seems to be a must havent done one check in two years.

    Some time ago I passed a sepsis. A high infection which had gone into my blood and it was life threatening. After being dismissed from the hospital the doctors amond other meds suggested to divide by half my oxybutinin dose because they thought it had some side effect in my bowel program.
    They told me it might be an incomplete bowel movement that caused all these infections because the bladder wall is near the bowel and the bacteres can pass.
    Myself I think it is the overuse of catheters because my bladder cant hold urine.
    If i fix my bladder to be calm i could use less catheters therefore less bridges for bacteres to pass

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