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Thread: Colostomy bag advice needed

  1. #11
    Senior Member pfcs49's Avatar
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    You install the flange which is adhesive coated, and forget it until several (4 in my case) days later when you change it. The pouch snaps onto the "flange" of the flange, like some kitchen storage lid, The U shaped tabs you see are where you pull on it to unsnap it.
    Last edited by pfcs49; 12-04-2019 at 10:55 PM.
    69yo male T12 complete since 1995
    NW NJ

  2. #12
    Quote Originally Posted by beckman View Post
    I use a similar disposable pre-cut closed end pouch from convatec. I usually change them once or twice each day.

    Yes diarrhea is a big challenge.

    How do you empty the drainable pouch if you have watery diarrhea, Rainman? As a quad I can change the disposable pouches fairly easy especially at home, but I can?t drain the disposable pouches into the toilet. It would be very helpful if I could figure a way to drain them especially when out of the house
    I have some fingers use in my right hand.

  3. #13
    Quote Originally Posted by pfcs49 View Post
    CUT TO THE CHASE!:

    I use Hollister 14803 flanges and 18363 bags. I'm T12, 72yo, got the colostomy in 2012 when I had my first (in 24 years) and last butt wound, stage 4 ulcer.
    Initially I was given and used sticky puttylike stuff to make a peripheral ring before sticking the flange on. It was a time consuming PITA! After 6 months or so I stopped using it (as well as barrier film, 3M Coloplast), and never looked back. I change the flange every 4 days when I shower but sometimes life gets in the way. I've gone 6 days more than once. Occasionally, especially when dealing with thick but creamy shit, a flange will begin to delaminate from the skin and I'll change it early. This is noticeable. When you remove the bag, using toilet paper to clean the site, you'll get present to the weirdness of the wipe (good prose, eh?) as you are pushing shit into the crevasse of the delaminating flange. When you pull it off, you'll see how far it got. You'll quickly get present to when to worry! (and I rarely do-these things are pretty bulletproof with proper technique)

    I don't carry much stuff in my wheelchair pouch, just a couple spare bags, 3 or 4 folded up paper towels, a couple alcohol wipes and a flange that I pre-cut the opening to size.

    After 17 years of bowel programs ruling my time, I wish I had done this a long time ago! IMO it is clearly an improvement in quality of life and lifestyle. And, with my suprapubic catheter, superman don't need no fucking bathrooms! (they do have some use however )
    Many thanks pycs49 for your advice and the pictures as well, always super helpful to see what it will look like when I was sitting down. quick question, are you able to button your jeans? If so, is the bag above your jeans? Also, even though when I lay down and probably a size 36 can I purchase size 40 pants and I still can't seem to button them without squeezing my SP tube like crazy and put crazy pressure on my sacrum. Are you able to button your pants or do you leave your pants unzipped and open?

    And I am a C4/c5 quad and I have a little bit of a tino pinch with my left hand, I had tendon transfer surgery, but am not sure if I'm able to handle changing the bag on my own with just one hand. How often do you seem to change your bags?

    Quote Originally Posted by SCI-Nurse View Post
    I would agree that a 2-piece appliance is much easier to manage than a one-piece. Who recommended that one-piece to you?

    You may also want to select a pouch that has a charcoal filtered vent to manage gas with much less odor. There are also good products that you can put inside the bag (liquids) that will reduce odor. A good CWOCN can recommend a specific product.

    You should be seeing a good CWOCN (ostomy nurse) prior to your surgery, who should be marking your stoma site, and recommending products for you to use initially. Often a one-piece system is used immediately after surgery, but then transitioned to a 2-piece as the stoma matures and heals (and usually shrinks). The CWOCN should also see you in the hospital post-op, and be available to you for consultation for at least 3 months after your surgery.

    (KLD)
    And think you KLD, I appreciate the advice and I'm actually going to go end of this pretending like I don't know anything and see what she recommends.

    And to all who had responded, thank you very much your feedback it relieved at least a little of my anxiety of having this procedure performed.

  4. #14
    Senior Member pfcs49's Avatar
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    pukkap: If so, is the bag above your jeans? Also, even though when I lay down and probably a size 36 can I purchase size 40 pants and I still can't seem to button them without squeezing my SP tube like crazy and put crazy pressure on my sacrum. Are you able to button your pants or do you leave your pants unzipped and open?
    I button and zip my jeans. They're pretty much where they were 25 years ago. The waist and goes over the bag but just under the
    attaching flange.
    When the chocolate factory opens, I'm mindful of it and discreetly monitor things. 90% of the time the poop is in chestnut sized spereoids. I'll hook my right thumb under the waistband to pull it a little clear of the bag and flick the shit-balls into the lower baggage area.
    If things get a little unmanageable, I may unbutton my pants and pull my shirt to outside of them; my fanny pack hides all and you wouldn't know my shirt was untucked.
    And, there's always a bathroom to dodge into if things get a little out of hand. Don't worry! They will and you'll manage them! That's what gimps do!

    If you'd like, I can post more photos that would show where the appliance is shirt on/shirt off and have my wife take them so it's clearer than the selfie.


    Last edited by SCI-Nurse; 12-05-2019 at 01:39 PM.
    69yo male T12 complete since 1995
    NW NJ

  5. #15
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    pukkap I am a quad I manage easily but c6c7 I use 2 ps wafer or flange but I use the bag type where I peel of and just stick to wafer the snap kind like pfcs has I could not hande not strong enough hands
    I am a gal and they sit right below pants but I wear pull up elastic waist I have had 13 years never an accident in public only 3 ever at home and it was my fault for not being better prepared
    I always lay a garbage bag over lap protects me just in case

  6. #16
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    Quote Originally Posted by SCI-Nurse View Post
    I would agree that a 2-piece appliance is much easier to manage than a one-piece. Who recommended that one-piece to you?
    (KLD)
    An ostomy nurse recommended a one-piece closed end disposable for me. As a quad it is the easiest to use. Works great unless I have lots of diarrhea.

    Quote Originally Posted by TheRainman View Post
    I have some fingers use in my right hand.
    how do you empty your drainable bag and into what when you have lots of watery diarrhea?
    Last edited by beckman; 12-06-2019 at 01:58 PM.

  7. #17
    I take one Immodium a day for loose or watery stool. Has worked for me for years.

  8. #18
    Quote Originally Posted by beckman View Post
    An ostomy nurse recommended a one-piece closed end disposable for me. As a quad it is the easiest to use. Works great unless I have lots of diarrhea.



    how do you empty your drainable bag and into what when you have lots of watery diarrhea?
    Kitchen trash bag.

  9. #19
    Quote Originally Posted by beckman View Post
    An ostomy nurse recommended a one-piece closed end disposable for me. As a quad it is the easiest to use. Works great unless I have lots of diarrhea.



    how do you empty your drainable bag and into what when you have lots of watery diarrhea?

    why do you think you one piece system is better for quad? And what happens when you have a lot of diarrhea? Will the bag ever pop off if it is too full?

  10. #20
    Quote Originally Posted by vjls View Post
    pukkap I am a quad I manage easily but c6c7 I use 2 ps wafer or flange but I use the bag type where I peel of and just stick to wafer the snap kind like pfcs has I could not hande not strong enough hands
    I am a gal and they sit right below pants but I wear pull up elastic waist I have had 13 years never an accident in public only 3 ever at home and it was my fault for not being better prepared
    I always lay a garbage bag over lap protects me just in case
    Thank you for the advice, do you mind me asking what kind of bag do you use? And how often do you have to change it?

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