Hi Stephen,
Got a question for you about the Peristeen system. I'm a C5 / C6 which I believe is similar to your injury level. Do you use the system on your own, or do you get help from a caregiver? Assuming you figured out how to do it on your own, I'd love to hear about how easy or difficult that is. My injury is only a little over a year old, so I'm sure you've got a whole lot more usable function and control, but I'm curious if this system might be something I could use independently. I'm sure I'm not the only one who would say that the bowel program is the single hardest thing that I've come to deal with. I would love to find an effective, reliable, and independent way to nip this in the bud. Your glowing review gives me hope!
Thanks,
Emmett
Emmett,
My injury level is lower than yours -- T4 complete -- I'm able to use the Peristeen independently. The Peristeen's "magic" is coupled with much digital stimulation and pressure applied to my abdomen to ensure that I expel all of the water that's been instilled. It might be a failure of imagination on my part, but I don't see how I could duplicate my current approach with the Peristeen with a caregiver. I get a lot of information from the digital stim (the tone of the rectal sphincter tells me when I'm done) component of this "enterprise," without which I'd be "flying blind."
Emmett,
I'm C4/C5 incomplete and have been using Peristeen for the past five years or so. I do need help inserting the catheter and instilling the water, but after that it's just me waiting for the inevitable. It's really no big deal. I've never done digital stim in my 43 years so you might not need that either. It might be worth giving it a try. It changed my life. It's not perfect, but it's so much better than what I was doing before. I purchase my supplies from a company in Canada since that whole training session is pretty silly IMHO. Catheters last about 1 month, while the bags last about 6 months.
-- David