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Thread: Neck Pain

  1. #1

    Neck Pain

    I?m new to the forum and hope someone might have had this issue or might be able to provide some info. C3/C4 complete asia a. Ever since I was in the hospital after I had my collar removed I?ve had this pain at the back of my neck right around the level of injury. Doctors told me it a side affect of my injury and surgery, I?m fused from c2 to c5. Pain medication and physical therapy helped alittle. About six months ago the pain started to get worse. My therapist and doctors thought it was from overworking the muscles in my neck. Adjustment where made to my power chair. I used an asl head array but they added sip and puff to limit neck movement, which I hate using sip and puff. This still hasn?t helped the pain, which is at a 7/10. I know pain comes with the territory of an sci but any advice is appropriated, kinda at a loss with this.

  2. #2
    Is your pain neuropathic pain or is it orthopedic (musculoskeletal) pain? They are managed differently. What have to tried for management?

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  3. #3

    CT scan?

    I am injured at C6 and the orthopedic doctor did a bone fusion taking bone from my pelvic bone from C5 to C7 to stabilize my neck. I woke up wearing a halo for 3 months then to a somi brace then a soft collar. I never felt any pain but I do know what shoulder pain feels like.

    The year 2013 I had pneumonia that didn't want to go away and I had to see a pulmonologist who had me take a battery of different tests one being a CT scan. The CT operator showed me the image especially my fusion (Normally they don't but I told him where I worked and he allow me to see it.).

    You didn't say what type of fusion you had? A bone fusion or titanium rod/brace with screws?

    A bone fusion should not give you any pain but if you have titanium hardware you just might experience pain. Talk to your team of specialists and request a CT scan of your fusion. Your hardware may be giving you the pain.

    Just my honest opinion.

    Ti
    Last edited by titanium4motion; 09-13-2019 at 10:34 PM.
    "We must overcome difficulties rather than being overcome by difficulties."

  4. #4
    Senior Member
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    If your having that much pain, request an MRI. When I push my wrecked body to hard, I suffer for 2 - 4 days. Just my life. Balancing activity, what is enough, what is too much, has been my problem.

    Many hospitals and/or doctors are reluctant in giving copies of MRI/CT/X Rays. It is even harder to get if it's a Workers Comp. claim.
    However, if you tell them, "you have no right to keep my records (of any kind) a secret from me, the patient, the boss", you can get a copy, eventually. It is true and unfortunately you may need to emphasize your rights a second time. Sometimes there will be a fee, expect it, be happy if there is none.
    I have been there with Workers Comp and Medicare. I didn't push the issue hard w/WC, should have but pain increases when I get angry. Anger was the next phase in acquiring MY MRI from them (next phase-lawyer if necessary). An issue unrelated to my current situation.
    After C3 injury many years later, my neurosurgeon was an easy request. He gave me 3 CD's of 3 MRI's (3 different requests). Post injury, pre laminectomy, and post laminectomy. All free. One CD is of complete spine. I have looked at them on my computer.

  5. #5
    Orthopedic pain but the neuropathic pain has been managed pretty well. Doctors have raised the dose on methadone. Really hasn’t helped.

  6. #6
    Luckily I didn?t have to wear a halo but did have a collar on for 8 weeks. I have a rod and plate fusion. My surgeon thought it was the better route. I didn?t give it a thought that the fusion might be the problem. I?ll definitely have to give my doctor a call tomorrow and see if I can have a CT done. Thanks for the advice.

  7. #7
    Opioids are not a very good treatment for neuropathic pain. Have you tried gabapentin (Neurontin) or pregabalin (Lyrica)?

    NSAIDs are good for orthopedic or muscular pain, but can also interfere with bone healing, and should not be taken frequently as they can cause damage to both your liver and kidneys long term.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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