Older Members Still Around?

[Domosoyo]

Welcome back Todd!

[fuentejps]

u having to much fun in te sunshine

vicky, yes florida is wonderful, absolute paradise for this ole quad.

[SCIfor55+yrs.]

Hey LeTodd,
To some of us, you are still a "newbie". Lol Glad you checked in. You do bring back memories.

[nevada]

Going on 17 years now and this site was a lifesaver for me after my injury. I have learned so much information relating to SCI here. I miss the old site pre upgrade the chat room was a major source of help relating to SCI let alone a chance to talk to Dr. Wise. I miss some of the older members like 1FineRN and of course Dogger may he rest in peace. I come here every day just to see if there is something that I have questions about and just to keep up on whats going on in the world of SCI

[stephen212]

I think I was on Spinewire before becoming a charter CareCure member. Next month will mark my 36 year anniverSCIry. Added a chronic lymphocytic leukemia (CLL) to my health-illness portfolio in 2014 but was fortunate to have never become particularly symptomatic and was treated to complete remission using breatkthrough "novel" agents that did not require chemotherapy. I presently lead a monthly support group for people with CLL in Los Angeles through a nonprofit called the CLL Society. Something will take me down. Eventually.

[Le Todd]

Yes! It was on the 10th anniversary of her death. She'll be forever young and beautiful to us.

Indeed!

[Le Todd]

Welcome back Todd!

Thank you.

[Le Todd]

Hey LeTodd,
To some of us, you are still a "newbie". Lol Glad you checked in. You do bring back memories.

Haha! I found you all later, despite being injured eight years prior. I’d written to Dr. Young about my depression attributed to living with a spinal cord injury. He suggested I join and the rest is history.

As for memories: I hope mostly good.

[Le Todd]

I think I was on Spinwire before becoming a more or less charter CareCure member. Next month will mark my 36 year anniverSCIry. Added a chronic lymphocytic leukemia (CLL) to my health-illness portfolio in 2014 but was fortunate to have never become particularly symptomatic and was treated to complete remission using breatkthrough "novel" agents that did not require chemotherapy. I presently lead a monthly support group for people with CLL in Los Angeles through a nonprofit called the CLL Society. Something will take me down. Eventually.

Stephen, that’s so lovely of you to lead such a group. May I ask by chronic, do you mean it’s never in remission?

[stephen212]

Stephen, that’s so lovely of you to lead such a group. May I ask by chronic, do you mean it’s never in remission?

"Chonic" means that it's indolent -- progresses slowly; not acute. It's an extremely heterogeneous disease (comes in many different flavors), about 25% of people with CLL never require treatment. But I am in a complete remission meaning that there is no detectable disease. (As I tell some people, now I can go back to just being paralyzed.)

I may relapse at some point -- years from now -- and if that happens it should be easily managed. I am, however, susceptible to secondary cancers (skin cancer is the biggest risk for CLLers),
but hey, no one lives (or should want to) forever.