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Thread: Older Members Still Around?

  1. #31
    Senior Member Domosoyo's Avatar
    Join Date
    Sep 2009
    Location
    Minneapolis, MN
    Posts
    1,011
    Welcome back Todd!

  2. #32
    Quote Originally Posted by vjls View Post
    u having to much fun in te sunshine
    vicky, yes florida is wonderful, absolute paradise for this ole quad.
    Bike-on.com rep
    John@bike-on.com
    c4/5 inc funtioning c6. 28 yrs post.
    sponsored handcycle racer

  3. #33
    Hey LeTodd,
    To some of us, you are still a "newbie". Lol Glad you checked in. You do bring back memories.
    You will find a guide to preserving shoulder function @
    http://www.rstce.pitt.edu/RSTCE_Reso...imb_Injury.pdf

    See my personal webpage @
    http://cccforum55.freehostia.com/

  4. #34
    Senior Member nevada's Avatar
    Join Date
    Aug 2002
    Location
    north dakoa
    Posts
    722
    Going on 17 years now and this site was a lifesaver for me after my injury. I have learned so much information relating to SCI here. I miss the old site pre upgrade the chat room was a major source of help relating to SCI let alone a chance to talk to Dr. Wise. I miss some of the older members like 1FineRN and of course Dogger may he rest in peace. I come here every day just to see if there is something that I have questions about and just to keep up on whats going on in the world of SCI

  5. #35
    I think I was on Spinewire before becoming a charter CareCure member. Next month will mark my 36 year anniverSCIry. Added a chronic lymphocytic leukemia (CLL) to my health-illness portfolio in 2014 but was fortunate to have never become particularly symptomatic and was treated to complete remission using breatkthrough "novel" agents that did not require chemotherapy. I presently lead a monthly support group for people with CLL in Los Angeles through a nonprofit called the CLL Society. Something will take me down. Eventually.
    Last edited by stephen212; 09-13-2019 at 10:05 PM.

  6. #36
    Quote Originally Posted by Bonnette View Post
    Yes! It was on the 10th anniversary of her death. She'll be forever young and beautiful to us.
    Indeed!


  7. #37
    Quote Originally Posted by Domosoyo View Post
    Welcome back Todd!
    Thank you.


  8. #38
    Quote Originally Posted by SCIfor55+yrs. View Post
    Hey LeTodd,
    To some of us, you are still a "newbie". Lol Glad you checked in. You do bring back memories.
    Haha! I found you all later, despite being injured eight years prior. I’d written to Dr. Young about my depression attributed to living with a spinal cord injury. He suggested I join and the rest is history.

    As for memories: I hope mostly good.
    Last edited by Le Todd; 09-12-2019 at 05:18 PM. Reason: Added a sentence.


  9. #39
    Quote Originally Posted by stephen212 View Post
    I think I was on Spinwire before becoming a more or less charter CareCure member. Next month will mark my 36 year anniverSCIry. Added a chronic lymphocytic leukemia (CLL) to my health-illness portfolio in 2014 but was fortunate to have never become particularly symptomatic and was treated to complete remission using breatkthrough "novel" agents that did not require chemotherapy. I presently lead a monthly support group for people with CLL in Los Angeles through a nonprofit called the CLL Society. Something will take me down. Eventually.
    Stephen, that’s so lovely of you to lead such a group. May I ask by chronic, do you mean it’s never in remission?


  10. #40
    Quote Originally Posted by Le Todd View Post
    Stephen, that’s so lovely of you to lead such a group. May I ask by chronic, do you mean it’s never in remission?
    "Chonic" means that it's indolent -- progresses slowly; not acute. It's an extremely heterogeneous disease (comes in many different flavors), about 25% of people with CLL never require treatment. But I am in a complete remission meaning that there is no detectable disease. (As I tell some people, now I can go back to just being paralyzed.)

    I may relapse at some point -- years from now -- and if that happens it should be easily managed. I am, however, susceptible to secondary cancers (skin cancer is the biggest risk for CLLers),
    but hey, no one lives (or should want to) forever.

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