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Thread: Is Botox the solution ?

  1. #1

    Is Botox the solution ?

    Hello everybody,
    Its been a long time since I was active the last time here but I need your opinion on botox injection.

    Ive been suffering from ecoli and klebsiella infections for 5 years now. Always leaking after 300ml or less if the infection is bad. This brings me to total inactivity even though i have a very active sport and bodybuilding life.

    Now im taking nitrofurantine everyday which disinfects my bladder along with 3x5mg oxybutinin daily.
    This has brought me to a neutral point but i still leak!

    After researching online i found the botox injection which seemed good to me. Went to my doctor in the rehab center and he also suggested we could try since i suffer from an overactive bladder.

    What i want to know from you guys is the side effects that i could have and if this is really the perfect solution like i heard.

    I cant immagine yet having a flaccid bladder who can contain urine until i decide to void.

  2. #2
    Senior Member
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    Cincinnati, Ohio, USA
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    Botox is a game-changer for me. I'm an engineer and Oxybutinin severely hampered my thinking and made me perpetually sleepy.
    I've done two rounds of botox so far and the first lasted a bit over 5 months and I'm approaching that mark again. When I start leaking I'll go back to Oxybutinin and pads for a few days leading up to the next injections. I'm an ASIA A so I don't need any sedatives or pain meds during the procedure.
    T3 complete since Sept 2015.

  3. #3
    Like any treatment, botox works for some and not for others. I have seen great things from it - including decreasing bladder spasticity. The effects from the injections can last anywhere from a couple of months to several months. One potentially major side effect is that botox contains botulism toxin. It can cause ascending paralysis. There are also antecdotal reports of after several treatments with it, the effects may wear of.

    It certainly has changed the lives of many on this site and is definitely worth looking into. You want to go to a provider who has experience with the procedure and is comfortable with the potential problems that come with a spinal cord injury.

    ckf
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  4. #4
    For me it worked twice, sort of the third time and not at all the fourth time I did it.

    Either way you're probably gonna piss blood for a couple days and your bladder might spasm like crazy (mine did) cuz it's just been jabbed with a needle dozens of times.

    If it works for you, it is a pretty damn good fix. Not really and side effects to speak of (other than damage due to shoving a big thick tube up your urethra and injecting into the bladder muscle), because the medicine stays locally and just paralyzes the bladder muscle.

  5. #5
    This made me think it twice. Looks pretty painful which ports a lot of risk of other infections. Im already dealing with a lot of discomfort because of them.

    My doctor today put me on a list which will go for months.
    Is there a more specialised clinic to do this intervention ?

  6. #6
    Senior Member
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    The first time I had blood for about 24 hours. The second for less than 12. No other bad side effects.

    SCI Nurse: please explain about ascending paralysis. If the botulism toxin can only paralyze a bladder for 6 months, what is the botox doing to cause ascending paralysis?
    Or is ascending paralysis only an issue when the doctor makes a mistake and accidentally pushes the needle entirely through the bladder an into surrounding tissue? There's a mark on the needle, easily seen by the integrated camera, that must be visible for the injection to be "safe." I assume that mark corresponds to the average bladder thickness.
    T3 complete since Sept 2015.

  7. #7
    Senior Member
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    This is a good resource and makes it clear that paralysis from Botox is/should be temporary:
    https://en.wikipedia.org/wiki/Botuli...n#Side_effects
    T3 complete since Sept 2015.

  8. #8
    Senior Member
    Join Date
    Sep 2001
    Location
    middle georgia
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    I am scared to dead of that botox as its botulism I lost a really nice mare to that we put her to sleep but it was killing her. while I was at hepards 2 dummyies came in from Miami paralyzed due to botox

    yeah no thank you

  9. #9
    Martin, I was having a similar situation and changed urologists. The new doctor gave me 20 mg of Oxybutynin and 25 mg of Myrbetriq and my capacity went up to anywhere from 450/500 to 600 or so cc. I also instill Microcyn (off label) twice a day to keep colonization under control.

    Quote Originally Posted by Martiniani77 View Post
    Hello everybody,
    Its been a long time since I was active the last time here but I need your opinion on botox injection.

    Ive been suffering from ecoli and klebsiella infections for 5 years now. Always leaking after 300ml or less if the infection is bad. This brings me to total inactivity even though i have a very active sport and bodybuilding life.

    Now im taking nitrofurantine everyday which disinfects my bladder along with 3x5mg oxybutinin daily.
    This has brought me to a neutral point but i still leak!

    After researching online i found the botox injection which seemed good to me. Went to my doctor in the rehab center and he also suggested we could try since i suffer from an overactive bladder.

    What i want to know from you guys is the side effects that i could have and if this is really the perfect solution like i heard.

    I cant immagine yet having a flaccid bladder who can contain urine until i decide to void.
    T6 complete (or so I think), SCI since September 21, 2003

  10. #10
    I mentioned the ascending paralysis becasue it is a potential issue. And it does not seem to be related to the physician doing the procedure, although that could certainly be a part of it. While it is very uncommon, I would be remiss in not telling you about it. I should have been more clear on the fact that it is very uncommon. My apologies

    ckf
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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