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Thread: Never-ending Bloating and Constipation?

  1. #41
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    I feel best and have no symptoms when I eat just vegetables with seeds and nuts, but this is not a healthy diet. I continue to lose weight since 2012. I'm finally going to see an gastroenterologist in the hope of either good advice and/or getting tested for SIBO.

  2. #42
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    Quote Originally Posted by August West View Post
    Just want to clarify two things:

    1. The right amount of fiber from fruits veggies is good but too much or any from wheat may cause bloating.
    2. When I said dairy can be the culprit, the exception is yogurt and kefir. In moderation it can help your symptoms.

    Have you tried a cleanse? Just lean meats and veggies for a week can help to reset your gut. Then you can introduce foods one by one to test them.
    This is my doctor?s recommendation.

  3. #43
    I’m still on the hunt for the solution.
    My diet could not be any more restrictive without hitting malnutrition.
    Seeing a variety of specialist – but something for me is connected with bloating, low blood levels, severely low sodium levels in the blood (perhaps due to kidneys), and blood pressure.

    My gut feeling (no pun intended) is that there’s some sort of chemical reaction happening in my stomach. This reaction is causing distention and thus leading to additional problems. Has anyone else experienced almost instant bloating?

    Sometimes I can watch my stomach double in size just from eating Minute amounts watermelon or pineapple. I’m looking at all possibilities and if I find the answer I will quickly comprehensively update this thread. Thank you all for your different suggestions – I’ve integrated a variety of them.

    This is a fantastic community.

  4. #44
    I found that dried prunes work the best over any stool softener.
    "Yesterday's History,Tomorrow's a Mystery"

  5. #45
    In terms of diet – I am gluten-free, lactose-free, on a low fodmap and keeping sugars low i.e. even watching pineapple consumption. This is not fun but beats pain. However, still having symptoms which lead me to believe that my problem is not diet related. I don't throw out the fact that it could be a chemical imbalance caused by mind-body trauma. So – reading the "Divided Mind" by Dr. Sarno; I'm not sure if I completely believe that our mind can cause changes in our G.I. tract or cause pain but it does not seem completely unreasonable.

    15 years of injury without any of these symptoms and then losing my mother, brother, and 14-year-old dog all within less than two years has been difficult consciously and subconsciously.

    In the meantime – I'm considering magnesium citrate but waiting for the exact recipe from a doctor. Thank you everyone here for your different opinions and I am integrating them and have a long list that I bring/share online with physicians.

  6. #46
    When I saw this topic today, I cringed a bit, then read through the posts to find that my GJ posted about the event he had in November 2018. That event, as it turned out wasn't as benign as it seemed when he wrote about it. I believe his case is pretty rare, a twisted sigmoid colon and 18 inches of redundant colon removed. He had regular PET and CT scans because he was 13 years in remission from non-Hodgkins lymphoma and was current with the 7 year plan suggested to him for colonoscopies. Nothing out of the ordinary ever seen on these tests.

    But I will repost, here, what I wrote about how he died, in case some of you missed it. I don't want to make anyone paranoid or over concerned about bloating and constipation. Most problems are fairly temporary and are resolved with taking a look at fluid intake, diet, activity, etc.

    If you have already read this, sorry to be redundant.

    On Friday, (July 19) morning, GJ awoke with an extremely bloated and rigid belly. As the day progressed he became more and more uncomfortable. He was transported to the ER about 4:00PM, and diagnosed with a volvulus, a twisted sigmoid colon, which created a blockage.. Something like this happened in November just before Thanksgiving, but went undiagnosed because it resolved itself before a CT scan was done and was not evident at the time of the scan given in ER.


    Since admission, he had three procedures, the last one (July 26) resulted in a colostomy.


    I stayed at the hospital, in GJ's room on a roll away bed for these many days. We expected he would be released vey soon, but his condition deteriorated rapidly during the afternoon.


    About 4:30 PM, July 29, GJ had a swallow evaluation to help decide the best way to administer nutrition. The evaluation took about a half hour. It is thought that he aspirated fluid into the lungs. He was having a great deal of trouble keeping the oxygen levels up even though he was on oxygen supplementation. Try as he may be could not get up phlegm without severe coughing and a lot of suctioning. The hospitalist was still on duty and called in a rapid response team to deal with the breathing issues. They were unable to do what GJ needed in the hospital room and took him to ICU.


    In ICU they set him up on a BiPAP which operates as a positive pressure breathing machine, much like a C-PAP that people use for sleep apnea.


    Friday, July 30 the BiPAP breathing system was removed and replaced with a high pressure cannula breathing system. The change released GJ from the BiPAP mask, a medieval instrument of torture. We could resume taking to each other and I could see his grizzly beard. Hard to imagine GJ with a 15 day growth of facial hair.


    The absolute high point of the day was that his medical team decided how to get nutrition into him. An NG (nasogastric) feeding tube was placed that would deliver some high protein, high carbohydrates nutrition. I'm just hazarding a guess, but I'd say he had lost 10-15 pounds, existing on Dextrose and Sodium Chloride IV. Quite a crash diet. Nutrition was delivered 24 hours a day.


    As time passed in the ICU his blood pressure, oxygen and general physical condition were very unpredictable.


    On August 4, he started the day doing pretty well, but that didn't last long. Eventually, the oxygen delivery systems weren't sustaining enough oxygen in body tissues and air flow in his lungs was almost imperceptible. Doctors wanted to intubate and place a trach. GJ said absolutely not, the only way he could then communicate, by lifting his head from the pillow and vehemently shaking his head "no." There was a discussion between me, his doctors and GJ shaking his head in either positive or negative gestures. In labored words, he told the medical staff he was dying, he couldn't live on ventilators, he was tired and didn't have the physical reserves to continue the fight to get well. He told them he was ready to die, no further life sustaining measures and medical heroics.


    Doctors started morphine and anti anxiety medications. In the middle of the afternoon he was transferred out of ICU into a quiet, private room and placed on Comfort Care. Morphine and comfort medications were administered and when he was sedated enough the breathing machines were removed and he was placed on regular hospital oxygen. After about 30 minutes, there were no more signs of respiration and no vital signs. He was pronounced dead at 10:20 PM, August 4.


    He died four days short of his injury day, nearly 37 years ago at age 74.

    Last edited by gjnl; 08-18-2019 at 10:02 PM.

  7. #47
    I am so sorry. He and yourself have contributed so much this community. You've always been there for so many people and it saddens me to even read any of this. I'm completely bewildered – at this point. I've been told I have IBS-C and then in ileus and then told that I don't have an alias and then that I just have large amounts of air in my stomach and I don't really have constipation. Going to keep asking and plugging away at trying to figure this out but I can't thank you enough are just some of your thoughts.

    You are an important part of the community. Thank you for your thoughts and if contributed to. the current health of so many people. Even just for the right now. The future is. so uncertain

  8. #48
    Quote Originally Posted by Chaz19 View Post
    I am so sorry. He and yourself have contributed so much this community. You've always been there for so many people and it saddens me to even read any of this. I'm completely bewildered – at this point. I've been told I have IBS-C and then in ileus and then told that I don't have an alias and then that I just have large amounts of air in my stomach and I don't really have constipation. Going to keep asking and plugging away at trying to figure this out but I can't thank you enough are just some of your thoughts.

    You are an important part of the community. Thank you for your thoughts and if contributed to. the current health of so many people. Even just for the right now. The future is. so uncertain
    GJ and I were not religious people, but we did have a belief in a spirituality of the universe that is best expressed by the original Star Wars sentiment..."The Force Be With You."

    A favorite acronym (most know GJ's feelings about acronyms, but he tolerated this one) EGBOK, Everything's Going (to) Be OK. Actually, I had a bracelet with those initials on it, but alas, lost it a couple of days before GJ passed. Maybe just as well. But generally, I still have a very strong belief, that EGBOK...looking forward without GJ in my life, I have to believe EGBOK. Life is hardly bearable without him. Sorry that my grief is palpable.

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