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Thread: Anyone take Fentora for noncancer related pain? Can it still be prescribed off label?

  1. #1

    Anyone take Fentora for noncancer related pain? Can it still be prescribed off label?

    Hello everyone,
    Just wondering if anyone in the group takes Fentora for noncancer related pain? Last time I took it was 2013 when my doctor was able to write off label prescriptions for it but then my insurance stopped covering it. Also, with the many fentanyl related deaths lately, it's even harder to get the medication. Thing is, I have new prescription drug insurance and Fentora is in the formulary. I'm waiting to hear back from my Dr. about getting a prescription for it but thought I'd also post here to see if others have Fentora prescribed to them? I was taking Fentora to treat breakthrough neuropathic pain. FYI, I have an intrathecal pump which has baclofen and hydromorphone. The baclofen helps the spasms tremendously but the hydromorphone isn't doing much for the pain, I still get a lot of breakthrough pain. I've tried many different oral medications to treat the breakthrough pain over the years (OxyContin, oxycodone etc.) but the Fentora was the only one that really worked.
    Thanks in advance for any info you can provide!
    Dan G. in CT

  2. #2
    Senior Member Tim C.'s Avatar
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    Maybe try fentanyl patch , I?ve been on it 10 years or since before it went generic. Generic I found to dissipate within 48 hours like clockwork instead of the 72 hours it is supposed to be .
    I tried the Fentora after I tried Actiq. Actiq will kill your teeth , and the Fentora is a tiny quick dissolve that gets put under your tongue; I did not find relief, and there?s a great danger of abuse because of that so i gave it up after one week.
    I?ve been on the hundred microgram patch and oxy for breakthrough And I stick to dosage control without variance In the slightest bit. The doctor trusts me And with all the Stigma these days I would never break that trust.

  3. #3
    Thanks for the reply Tim. I did try the fentanyl patch but unfortunately, it messed with my breathing. My doctor then put me on Actiq for a little over a year before switching to Fentora. How long ago was it when you last took the Actiq? Thanks again.
    Dan G. in CT

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    Senior Member Tim C.'s Avatar
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    quad, if I can help you by reflecting back on my own struggles I'm happy to do so. there seems like a limited , thankfully, population of us sci that have to contend with high level pain as well as our paralysis.
    Beginning in my first 6 mos. I was treated using Actiq, as off-label off course, for extreme limb pain that did not respond to the usual phys rehab, baclofin, neurontin, gabapentin, lyrica, opioid, psych-SSRI-type etc, and we tried everything else tooo......spinal stimulators, accupuncture, old-school weed,.....only to eventually learn that pain management was just as it suggests;....MANAGE TO LIVE WITH PAIN.
    Holy shoot, if only it didn't literally shut you down.....like 'put you in a dark, quiet corner, blanket wrapped around you, rocking back and forth, screaming mad crazy' kind of pain.
    I traveled halfway around the damned globe seeking relief ....so yes, I was on Actiq, to limited relief, usually after a morning BM to ramp down the painful rectal spasms brought on by supposits, and digital stimming, and then as the pained peaked other times of the day, until the limited relief stopped being worth the constipation issues, and besides, it became too easy for caregivers to throw them at me when they watched me wretch in pain, claiming they couldn't witness my suffering without trying to help]?].
    so before I ended up over-using I tapered myself off of it, substituting the transdermal for the pop. somewhere in between I was put on the fentora....recognizing that truly was for palliative care.
    the patch is safer, albeit not 72hr in generic copy.
    steer clear of Actiq.

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