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Thread: 23 yrs post, I may have heterotypic ossification again??/!

  1. #11
    Senior Member pfcs49's Avatar
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    NW NJ ***********T12 cmplt since 95
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    STILL waiting! Any spinal nurses want to give me feedback?
    I want to get a bone scan and hopefully more information from it?
    I see Dr Kirshblum this Thurs.

    EDIT Why is this post not showing as a new post?
    Is that why no one responds?
    Last edited by pfcs49; 03-10-2019 at 09:59 PM. Reason: looking for help!
    69yo male T12 complete since 1995
    NW NJ

  2. #12
    Three-phase bone scintigraphy is the most sensitive type of bone scan for early detection of HO. Dr. Kirshblum is very familiar with this syndrome and can no doubt guide you through both diagnosis and treatment most ably.

    http://jnm.snmjournals.org/content/43/3/346.long

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  3. #13
    I would get a second opinion if you are concerned about this surgeon not concerned about the HO.
    You have experts in your corner with Dr Kirschblum go to him with your concerns
    you do need an examination and labwork to determine the activity of the HO
    previous imaging studies to compare with current one are helpful as well
    a girdlestone procedure removes that ability to have ROM in your hip completely

    pbr
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  4. #14
    Senior Member pfcs49's Avatar
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    NW NJ ***********T12 cmplt since 95
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    Thanks, guys!

    Question: "a girdlestone procedure removes that ability to have ROM in your hip completely" Is that what you meant?

    My understanding is that Girdlestone results in lot of motion but not very functional hip-which is pretty uneccesary. I can't stand but I DO need to put my pants on.
    Given my current situation, getting the right leg into my pants is almost not possible because my leg won't hardly lift up.
    69yo male T12 complete since 1995
    NW NJ

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