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Thread: Spinal cord stimulater

  1. #1
    Senior Member flying's Avatar
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    Spinal cord stimulater

    Anybody had any luck with a stimulater? I'm getting one in January. Like everybody else, we'll it seem like it anyway, I have neuropathy so bad, it's more disabling then my paralysis.
    They say there better then in the past, but maybe that's just salesmen talk. My hardware is in the way of placing the paddles (leads) at T8 which is supost to be the right spot, for the lower legs. So I'm really thinking twice about the whole process.
    Any ideas?
    T12L1 Incomplete Still here This is the place to be 58 years old

  2. #2
    I had one put in back in 2015. I'm T6 complete, with severe neuropathic pain. The lower paddle they put in did nothing for the pain in my legs/feet, just made my muscles spasm when I turned it up. The upper paddle they put in above my injury level seemed to help some at the time, but I was still in a lot of pain from the surgery. However after I fully recovered, I couldn't really tell any difference even after they adjusted it many times. Not sure if it was a placebo effect at first or what. So I used it for a few years, then eventually stopped charging it. So it's still in my back but I don't use it.

    i would obviously rather not have it in hind sight, but I couldn't go the rest of my life knowing there was an option out there that may help with my pain and me not try it, so that's why I did. Like everything else I've tried for my pain though, it just didn't work for me. If you can, it may be worth doing a trial, just so you'll know if it works or not. I had too much scar tissue at my injury level that they couldn't run the trial leads up my back so I had to have the paddles surgically put in just to try it.

  3. #3
    Senior Member flying's Avatar
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    Quote Originally Posted by Brad09 View Post
    I had one put in back in 2015. I'm T6 complete, with severe neuropathic pain. The lower paddle they put in did nothing for the pain in my legs/feet, just made my muscles spasm when I turned it up. The upper paddle they put in above my injury level seemed to help some at the time, but I was still in a lot of pain from the surgery. However after I fully recovered, I couldn't really tell any difference even after they adjusted it many times. Not sure if it was a placebo effect at first or what. So I used it for a few years, then eventually stopped charging it. So it's still in my back but I don't use it.

    i would obviously rather not have it in hind sight, but I couldn't go the rest of my life knowing there was an option out there that may help with my pain and me not try it, so that's why I did. Like everything else I've tried for my pain though, it just didn't work for me. If you can, it may be worth doing a trial, just so you'll know if it works or not. I had too much scar tissue at my injury level that they couldn't run the trial leads up my back so I had to have the paddles surgically put in just to try it.
    Thanks for the response. I'm surprised that more people have not tryed them, on this site. I know a lot of us are in (I'm ready to end it all) pain. It's a big step, but not as big as ending it all.
    T12L1 Incomplete Still here This is the place to be 58 years old

  4. #4
    Senior Member alan's Avatar
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    I had one for a year in 1986-87. The stimulator position was revised three times during that year, in an effort to provide me some. I never got any relief, so the thing was removed.

    I'm ready to be guillotine, or otherwise euthanized, or just to take a trip to one of the city's bad neighborhoods (they're very proficient at murder.)
    Alan

    Proofread carefully to see if you any words out.

  5. #5
    Senior Member NW-Will's Avatar
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    I'm constantly being offered this by the pain doctors ( to be honest I get suspicious as they seem like they are trying to sell it too hard)
    I've yet to meet anyone who has had it done, who seems enthusiastic about it.
    I'm still really curious so look forward to your thoughts and experience and which device you go forward with.

    I did have RFA (radio frequency ablation on my spine) and I would have that again.
    http://sci.rutgers.edu/forum/showthr...s-opinions-etc

    There are at least 3 companies offering these devices.
    It seems Doctors must get a sweet deal from one of the companies. I've seen 3 different pain doctors and they've all pushed a different product, always trash talking the competition.
    I always have to ask now, for interest and fun, how many they have had to remove, and which brand they have to remove the most often, obviously it is never the brand they are pushing.

    Medtronic
    https://www.medtronic.com/us-en/pati...r-implant.html

    St. Jude Abbott
    https://www.sjm.com/en/patients/chro...b-d0dd6899eb3a

    Boston Scientific
    http://www.bostonscientific.com/cont...r-systems.html


    and this randomly showed up for me
    https://www.pintas.com/our-blog/2014...harm-than-good

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    Senior Member flying's Avatar
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    Hey, thanks for the response. My pre surgery date is on January 3rd. I'm really going to grill the surgeon about the hole deal. A lot of people get relief for spinal cord stimulaters, but a whole lot don't. Hate the medical sales pitch, gets in the way of real results.
    T12L1 Incomplete Still here This is the place to be 58 years old

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