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Thread: Constant sleepiness

  1. #11
    Quote Originally Posted by SCI-Nurse View Post
    I have worked with patients with narcolepsy, have you??? The person falls asleep in the middle of activities or even when talking, not just feels sleepy or tired.

    (KLD)
    Since sleep studies are recommended for either sleep apnea or narcolepsy diagnosis, the good news is that if the original poster finds a doctor who will order a sleep study and he goes to a reputable sleep lab, they will likely find the cause of his symptoms and can prescribe appropriate treatment, despite speculation that all any of us do on this site, given the very limited information we get here.
    Last edited by gjnl; 11-09-2018 at 12:05 AM.

  2. #12
    Senior Member
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    Quote Originally Posted by Mize View Post
    Are you taking anything like oxybutynin or baclofen?
    If you can get your doc to prescribe modenifil that prevents sleepiness with zero speediness.
    10mg per day of oxybutynin... would this still make a sleepy effect? It's a very low dose

    today I had a 20-min nap after lunch in the bathroom (can't find a place to nap in college), I woke up, got a coffee, and was with ZERO sleepiness for the rest of the day

    I'll certainly consult my doc to do a sleep study...

  3. #13
    Even a quick read of the page you referred to shows the symptoms don’t really align w/ narcolepsy. And one google search shows 200k ppl are affected by narcolepsy vs 22m for sleep apnea. Possibility technically, but very unlikely as sci nurse said. Its not speculation if it’s based on evidence

  4. #14
    I felt the same way for a long time. My doctor attributed it to the meds I was taking, specifically baclofen/lyrica/lexapro.

    Recently he prescribed wellbutrin xl. It?s an antidepressant, but works differently than most in that it increases energy levels rather than decreasing them. Apparently it?s often paired w/ lexapro for that reason.

    So far it has actually worked really well. I still take a nap here and there but I no longer feel like I?m battling drowsiness all day long.

  5. #15
    Quote Originally Posted by Nick047 View Post
    Even a quick read of the page you referred to shows the symptoms don’t really align w/ narcolepsy. And one google search shows 200k ppl are affected by narcolepsy vs 22m for sleep apnea. Possibility technically, but very unlikely as sci nurse said. Its not speculation if it’s based on evidence
    I get it "Nick047." But on a site like this, we deal in possibilities based on minimalistic descriptions of symptoms. It is not unusual for posters to leave out what may be considered very important descriptions of their symptoms. When doctors work up a diagnosis, it can take quite a while and some very probing questions to get a patient to share everything that is going on with them. Then there are tests and analysis of the tests to consider.

    Excessive sleepiness can be a symptom of:
    ---Hyperinsomnia
    ---Sleep Apnea
    ---Insomnia
    ---Anemia
    ---Underactive thyroid
    ---Depression and Anxiety
    ---Some nutrient disorders
    ---Undiagnosed Heart Disease
    ---Too much stress and work in your life
    ---Narcolepsy (currently a drug company is running television advertisements for a new drug treatment)
    ---Diabetes
    ---Gluten intolerance and Celiac Disease
    ---Fibromyalgia
    ---Chronic Fatigue Syndrome

    The list of diseases or conditions that present with excessive sleepiness as a symptom is endless. Possibly some of the easier and less expensive (than a sleep study), tests and physical work ups should be considered before a sleep study is prescribed. Sleep studies are difficult, at best, for a person without a spinal cord injury. Add into the mix the need to for special mattresses, reposition, cath, etc., and the sleep study is a big deal for someone with a spinal cord injury.

    There are lots of possibilities. Yes, sleep apnea is way more common than narcolepsy, but a doctor will decide what the greatest probability of the disorder is and work through the problem systematically. None of us can do that here, that is why when we offer an idea, it is only a possibility that might be considered. But, the expression of that possibility is just that an expression of a possibility, not an attempt to diagnose.
    Last edited by gjnl; 11-10-2018 at 08:09 PM.

  6. #16
    I had a narcoleptic carer once. Lol

  7. #17

  8. #18
    I think that this has gotten a little off track. I would suggest that we keep it in line and on track.
    ckf
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  9. #19
    I have been dealing with an extreme sleep disturbance for the last two years, I have spoken to a couple different docs about it including sleep specialist. Sleep apnea is the first item they want to rule out.
    Naps are great, start looking for places to take a nap during the day, 20 to 30 minutes is supposed to be prime. I used my car as my napping place many times. Sleep is very important, I need to work on mine.
    I have also been Rx'd 10mg oxybutynin for the last 5 months, which is not making the problem any better
    cauda equina

  10. #20
    If you can find out the cause of the fatigue, that is the preference. In order to do that, it may take some time. In the meantime, the suggestion of a 20-30 minute nap when you are generally more fatigues may help. I would also recommend that you stay away from excess caffeine as a way of managing it.
    ckf
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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