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Thread: small syrinx/cyst at c4 and c5 level

  1. #1

    small syrinx/cyst at c4 and c5 level

    In November 2011 , I had reeling sensation when I got up from the bed in the early morning. I have cervical spondilosys since 2000 year. Also I have Tinnitus since 2009. I have middle ear problem also. So I approached my Ortho and he has taken xray of the cervical spine and told me that some of the discs are degenerated/fused. It is BPPV .Refered me to a ENT. He has prescribed Stugeron and Vertin. Then after 4 days it was subsided. Later the Ortho suggested MRI of the cervical spine to see the present status of the discs. Accordingly I have undergone the MRI. The Radialogist giving his detailed report, mentioned that there is a small syrinx in the size of a small rice grain.

    1. my Ortho refered me to a neurologist. Regarding syrinx, the Neuro said that this may be a cyst since tumor in that region at this age of 70 is very rare. Even if it is cyst, it will grow over a period of time and some times people may not know about the presence of the cyst in their body and will pass off their life. He also said that the syrinx is very small and you need not think of a surgery or whatsoever and just forget about it until and unless I experience symptoms, then I can go for further evaluation and a contrast MRI, as the present cyst is asymptomatic, Also he told me that it does not appear to him as a syrinx. So I just left the matter there.

    1. So far seven long years have passed without a symptom . I have never experienced headache at any time or weakness in the limbs.

    I have Type II diabetes since 2010. BPH since 2014. BPPV since 2011,IHD 1977 . BP since 1981 .Thyroid since 2012 Ti nnitus since 2009. I am taking medicines for IHD,BP,Diabetes,BPH. All are under control. I am now 75 year old
    Firstly1. I wish to know your valuable opinion in the case . 2. I wish to know the most commonest symptoms that the patients with this syrinx/cyst come to you, so that I can keep an eye on , if I know before hand. 3. Do you think that the cyst /syrinx might have desolved over this period or will it be there doramantly.

  2. #2
    That size is too small to worry about. Surgery or drainage is controversial and our neurosurgeons only do if pt. is losing function.
    As long as it isn't enlarging rapidly which sounds like it isn't I wouldn't worry.
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  3. #3

  4. #4
    While I am thanking the super moderator SCI Nurse for her quick reply i wish Dr Young to see my question and give me a reply. I do not know whether I am doing a wrong in seeking another opinion from Dr Young apart SCNurse.If so please forgive me

  5. #5
    I can ask Dr. Young for his opinion on this, but I don't think it will be any different. The size and growth period of the cyst are the keys to the advice given.

    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  6. #6
    Thank you for your kind advise. I am happy with your advise and eloboration. I once again thanking you.

  7. #7
    I concur with the SCI nurse as your syrinx (cyst) is too small to worry about.

    I began having symptoms (bad pain and spasms) beginning in 1989/1990 when I was working making working horrible. Ironically, the discomfort was in my abdomen which threw everything off. I went 4 1/2 years wondering what was wrong with me. Then in 1994 my right people became dilated and stayed fixed. That was it for me as I had had it. The only thing I need what to do was to call Craig hospital which I did. A neurosurgeon told me to get an MRI because it sounded like syringomyelia (specifically posttraumatic syringomyelia since it was post injury) which I had never heard of and it frightened me. So I went to have an MRI and it showed a lengthy syrinx (cyst) from my cervical area down my spine.

    I went to three different neurosurgeons to get their opinions. One of them suggested bringing it into the peritoneal cavity (stomach area) while another suggested draining into the pleural cavity (lung cavity) while the third neurosurgeon suggested his "baby" of a surgery that he had called his own. He made it sound great by saying that his surgery was located at the base of the brain and it would drain into an ocean of spinal fluid which made perfect sense. What he neglected to tell me was that he knew basically nothing about spinal cord injuries and was primarily a brain surgeon. Because he made everything sound so good and I was young and ignorant along with my common-law husband and my sister I chose this surgery. Huge mistake!

    Actually, the surgery went great but after I went home it failed within a month. My AD went off the wall and he was five hours away from where I lived. I called down there (New York City) but he said it couldn't possibly be the surgery failing. Then when I called again explaining my circumstances they told me to drive down (no easy feat when my AD was so bad) to have another MRI taken to see what might be going on. I took Procardia on the way down which helped my blood pressure. Upon arrival someone was ready for me for the MRI and, sure enough, a blood clot was found to obstruct the shunt he put in to drain the cyst.

    He went into tried to repair this but I am but I ended up staying two weeks and the damn neurosurgeon never came in... he just kept sending his residents in. All this while cerebral spinal fluid was draining out of the back of my head. They kept sewing it up but every time they did my blood pressure and heart rate went off the wall. Again, this went on for two weeks with me just laying there going through all of this. Finally, I had a fever of 105? whereby I went delirious (which of course was from meningitis). My common-law husband finally yelled and said to get the damned neurosurgeon in there to take care of everything or I was going to die. Ironically, he came in and took me back into surgery and KNEW EXACTLY WHAT TO DO! He had left open a "burr hole" where he took the shunt out and never so it up because in his words later he said it usually closes up by itself.

    After he did that everything was okay but he said that since we had gone this far we might as well drain the CSF fluid into my pleural cavity... which is what he did.

    Not too long after coming home I contacted an attorney. I talked to him for over two hours telling him all of this and he wondered why I had not contacted him or an attorney before. In any case, he was gung ho to go after this neurosurgeon but after he said that I never heard from him again. To make a long story short, I finally called down there and his nurse said that it was not feasible to go after this neurosurgeon. This is because this neurosurgeon was the best known neurosurgeon in the entire New York City area. In fact, when I first went down there they called him "King ___." He was considered a King down there and there was nothing more I could do.

    Several years ago I found out that he was beginning to retire after being found out about something else and someone he was training ones carrying on for him. I can't remember the details now. But after I married my husband and telling him my story (not the common-law husband I was with during the time) he said he hoped that this particular neurosurgeon lived a long, long, long time.

    Believe me, your cyst is much too small to worry about especially at your age. I was only 30 years old or 31 when I went through this.

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