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  1. #1
    Senior Member lurch's Avatar
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    Hypothetical question

    Ok so if you were a billionaire and you go to your polo match this weekend and fall off your horse and sustain a spinal injury what would be your course of action?

  2. #2
    Um, exactly what Christopher Reeves did but with more money.

  3. #3
    Senior Member Moe's Avatar
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    Quote Originally Posted by lurch View Post
    Ok so if you were a billionaire and you go to your polo match this weekend and fall off your horse and sustain a spinal injury what would be your course of action?
    Quote Originally Posted by Sythellri View Post
    Um, exactly what Christopher Reeves did but with more money.
    Quote Originally Posted by Jim View Post
    You would do exactly what Cristopher did, support Wise.
    Despite all the donations since his injury from 1995, he died as a quad in 2004. Even if he had a longer life and died 14 years later (2018) he would still die as a quad. So far donations just made walking people rich while I'm sitting like a duck dreaming to walk again. But yet I got to be careful to not to sound like an "ungrateful prick"...

    Still no follow-up data from the patients that "live too far"? I got a bunch of used laptops, cell phones and other I.T. equipment to donate if it helps communicate with them... I'd even donate a car, gas money, hiking and mountain climbing gear for someone to collect data... I just find it really odd that nobody seems to care about it. Even more odd that they weren't that far to come down to get experimented, but yet too far now (all of them) for a simple follow-up.
    Last edited by Moe; 06-22-2018 at 02:45 PM.
    "Talk without the support of action means nothing..."
    ― DaShanne Stokes

    ***Unite(D) to Fight Paralyses***

  4. #4
    Quote Originally Posted by Moe View Post
    But yet I got to be careful to not to sound like an "ungrateful prick"...
    Aaah man, you weren't careful enough.
    "I'm manic as hell-
    But I'm goin' strong-
    Left my meds on the sink again-
    My head will be racing by lunchtime"

    <----Scott Weiland---->

  5. #5
    Senior Member lurch's Avatar
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    Well thanks for all the piss take replies. This is the exactly sort of defeatist attitude and lack of imagination that keeps us in chairs. Are you seriously telling me that in the year 2018 with One Billion dollars in your pocket that you could not somehow circumvent some of the red tape and legislation that is in place? I know this was not a "serious" thread but to be honest I expected more from some of you.

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    Quote Originally Posted by lurch View Post
    Well thanks for all the piss take replies. This is the exactly sort of defeatist attitude and lack of imagination that keeps us in chairs. Are you seriously telling me that in the year 2018 with One Billion dollars in your pocket that you could not somehow circumvent some of the red tape and legislation that is in place? I know this was not a "serious" thread but to be honest I expected more from some of you.
    Uhhh… I tried my best.

  7. #7
    Senior Member Moe's Avatar
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    Quote Originally Posted by lurch View Post
    Well thanks for all the piss take replies. This is the exactly sort of defeatist attitude and lack of imagination that keeps us in chairs. Are you seriously telling me that in the year 2018 with One Billion dollars in your pocket that you could not somehow circumvent some of the red tape and legislation that is in place? I know this was not a "serious" thread but to be honest I expected more from some of you.
    Jokes aside, what did you expect, really?? even If someone would say 'yes' how would you know for sure? Plenty of clinics out there that claim unproven results that charge a lot of money... Yes reality has a way to kick right on the face and knock off wishful thinking bullshit. No need to take it personal as no intent was made to disrespect you. I blame myself for my injury, and yes I'm frustrated too with stories and hypes from DECADES of donations and research and still NADA...

    what scares me as mentioned on a previous post, is researchers of a particular field do research and teach research for a living... (duh) When a magical cure comes by, they're all threaten to loose their jobs, so is the whole market, hotel conference halls, events, fund raising, sponsors, big pharma, wheelchair manufacturers.... that's my opinion and my belief that they're going to stay in this 'comfort zone' forever.

    Even if a billion dollars would find a real cure, it would kill the goose of golden eggs of this multi-billion dollar industry. I predict treatments and devices to improve the lifestyle to be more realistic since it keeps the person 'dependent' of goods and services repeatedly. As long as SCI exists, money keeps pouring in to the fat pockets of highly paid greedy walking people, it's disgusting....

    This is my vision of a possible reality, nobody has to agree with it as I could be wrong...
    Last edited by Moe; 06-22-2018 at 11:08 PM.
    "Talk without the support of action means nothing..."
    ― DaShanne Stokes

    ***Unite(D) to Fight Paralyses***

  8. #8
    Quote Originally Posted by lurch View Post
    Well thanks for all the piss take replies. This is the exactly sort of defeatist attitude and lack of imagination that keeps us in chairs. Are you seriously telling me that in the year 2018 with One Billion dollars in your pocket that you could not somehow circumvent some of the red tape and legislation that is in place? I know this was not a "serious" thread but to be honest I expected more from some of you.
    Few things to keep in mind:

    - no rat has been cured yet either from acute or chronic SCI
    - most SCI research is still "acute oriented" and not relevant to cure chronic SCI
    - the academic system is not set to deliver a cure for SCI and is also totally inefficent (long time, lots of money, little progress) as structure to produce essential descoveries such has how to turn on regeneration in a damagen spinal cord
    - there is much more to say, these are just the main points that comes to my mind at teh moment

    So I would set up a research organization that does SCI CURE research 24/24 7/7 365/365. That could potentially put the academic system out of business and drive money to who can deliver the needed descoveries in a much faster and cheaperway.

    At the same time I would set up an X-prize approach to find a cure.

    Just my two cents.

    Paolo


    -
    In God we trust; all others bring data. - Edwards Deming

  9. #9
    Quote Originally Posted by lurch View Post
    Well thanks for all the piss take replies. This is the exactly sort of defeatist attitude and lack of imagination that keeps us in chairs. Are you seriously telling me that in the year 2018 with One Billion dollars in your pocket that you could not somehow circumvent some of the red tape and legislation that is in place? I know this was not a "serious" thread but to be honest I expected more from some of you.
    I was out of the country for many years and just come back to USA. I am very interested in this thread about finding a cure for chronic SCI. I have a question and hope someone can have an answer. I suffered T-11 incomplete SCI from removing a schwanomma tumor in my spine in the year of 2006. What can I do to improve my condition. Can you give me any recommendations ? Thanks for your input.

    Steve

  10. #10
    Wait 2 weeks and go to an AMRI (advanced magnetic research institute) clinic to get magnetic therapy. One of the main problems with a spinal cord injury is necrosis (cell death due to swelling). The original injury may be small, but the cellular death due to swelling and inflammation around the outside of the original injury continues and grows from the time of injury for maybe 5-6 more months. The magnetic therapy dramatically reduces the swelling and inflammation, thus less overall damage with resulting less paralysis. Would have to pay out of pocket for maybe 125 to 150 hours.

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