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Thread: Any clever ideas for adaptive equipment when recovering from a pressure sore?

  1. #11
    Senior Member ChesBay's Avatar
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    Quote Originally Posted by SCI-Nurse View Post
    This is a good time for him to work on learning to prone (lay on his stomach) and get his knee and hip contractures stretched out. He needs to be properly positioned for this, with his genitals and bony areas (hips, knees, feet) bridged with pillows or pieces of foam. Is he getting home nursing or PT? They could show him how to do this and build up time proning as he stretches out and gets used to it.(KLD)
    A lot of good advice in this thread. Wishing your son a speedy recovery.

    I do agree wth KLD, a good time to make the best of a situation and relieve pressure while getting a valuable stretch by lying on his stomach.

  2. #12
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    True, and I ordered one last night....

    (FYI Gumtree in Australia is great for buying and selling locally, where you can view before buying, but sellers generally don’t want to mail things, as it’s a lot more effort (and cost) than mailing in the US for example. And Sydney is a long way from Perth!)
    Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

  3. #13
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    Quote Originally Posted by ChesBay View Post
    A lot of good advice in this thread. Wishing your son a speedy recovery.

    I do agree wth KLD, a good time to make the best of a situation and relieve pressure while getting a valuable stretch by lying on his stomach.
    Thanks ChesBay...yes, getting him to lie on his stomach has been a struggle for a while now, so we are definitely making the most of this “opportunity”!
    Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

  4. #14
    Gordy, sorry for the huge delay, just got back home today due to a family emergency....do you still want pics?

  5. #15
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    Quote Originally Posted by Moongazr View Post
    Gordy, sorry for the huge delay, just got back home today due to a family emergency....do you still want pics?
    No worries Moongazr, we probably don’t need it now, as my son has worked out the important stuff, like gaming...! But thanks.

    Hope the emergency turned out ok.
    Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

  6. #16
    I understand the pains of having to be in bed laying flat, although I'm a C4 I use a portable cart with rollers that I put a monitor arm to attach my monitor, and I pull it right beside the bed and swing arm out so I can see the monitor. I do use voice controls for everything and it works out (sometimes not so well when DragonDictate "freaks out" and just start sending random commands, especially when I'm trying to change the channel and it'll start sending commands and sometimes I wound up ordering a movie from on-demand! Decided to go ahead and watch it Black Panther, good movie) but there are so many options that are available and doable even in Australia
    C4 incomplete since 1985

  7. #17
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    Well, almost 6 months since we noticed our son’s pressure sore. It?s been a long six months.... He’s spending a few hours in his chair each day now, but still spending a lot of time lying on his front. The sore has healed over, but the skin is still to fully grow back, so he still has a dressing on it full-time.

    All I can say is thank you to whoever invented gaming! It’s kept him in touch with his mates, and kept him sane! (Not sure the same can be said for my wife though!).

    One interesting thing - if he’s in his chair and his sore is getting some uncomfortable pressure (eg from a fold in his pants), he experiences a level of constant pain just beneath his left shoulder blade (ie around the level that he gains feeling - he’s T6 complete). The sore is on the left side. As far as we are concerned, it’s a really good thing, as it gives him warning that something isn’t right. With the exception of a couple of headaches when the sore must have been developing, he’s never experienced AD, so I’m assuming the pain isn’t AD related. Has anyone else experienced “pain relocation” like this?
    Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

  8. #18
    Glad he is healing. What treatment is being used for the wound for the last bit of healing?

    Pain like this is called referred pain, and it can happen in people who are AB as well as those who have SCI/D. A common example is left arm pain in someone who is having a heart attack, or right shoulder pain in someone who has gall bladder problems.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  9. #19
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    Quote Originally Posted by SCI-Nurse View Post
    Glad he is healing. What treatment is being used for the wound for the last bit of healing?

    Pain like this is called referred pain, and it can happen in people who are AB as well as those who have SCI/D. A common example is left arm pain in someone who is having a heart attack, or right shoulder pain in someone who has gall bladder problems.

    (KLD)
    Thanks KLD.

    It currently gets cleaned/soaked with Prontosan (for 15 minutes), then Mepilex Border Flex is used as the dressing.
    Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

  10. #20
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    Quote Originally Posted by Gordy1 View Post
    Well, almost 6 months since we noticed our son?s pressure sore. It?s been a long six months.... He?s spending a few hours in his chair each day now, but still spending a lot of time lying on his front. The sore has healed over, but the skin is still to fully grow back, so he still has a dressing on it full-time.

    All I can say is thank you to whoever invented gaming! It?s kept him in touch with his mates, and kept him sane! (Not sure the same can be said for my wife though!).

    One interesting thing - if he?s in his chair and his sore is getting some uncomfortable pressure (eg from a fold in his pants), he experiences a level of constant pain just beneath his left shoulder blade (ie around the level that he gains feeling - he?s T6 complete). The sore is on the left side. As far as we are concerned, it?s a really good thing, as it gives him warning that something isn?t right. With the exception of a couple of headaches when the sore must have been developing, he?s never experienced AD, so I?m assuming the pain isn?t AD related. Has anyone else experienced ?pain relocation? like this?
    Another 6 months on...can’t believe how long skin takes to grow...it’s only just fully covered the pressure sore area. That’s over a year since the sore appeared...a fifteenth of his life!

    Thankfully his life has been back to normal since early 2019. No more referred pain, which we’ve taken as a good indicator that his butt isn’t feeling pain any more. He’s back to full-on sports again (parabadminton being the main one) and has put a bit of weight back on, which is good, as he lost a bit when doing nothing last year.

    No more prontosan/dressing changes, but he is now using a duoderm patch for protection, as the area is still redder than the surrounding area. Dr and nurses at his last check-up were ecstatic at the condition of his butt, which was a bit amusing to see/hear!
    Gordon, father of son who became t6 paraplegic at the age of 4 in 2007 as a result of surgery to remove a spinal tumour.

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