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Thread: Summer Open House will feature doctors/clinicians participating in the clinical trial

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    Summer Open House will feature doctors/clinicians participating in the clinical trial


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    Senior Member lunasicc42's Avatar
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    excellent. Will it be videod or anything... Any way for us to see
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    Senior Member lunasicc42's Avatar
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    And when do we get to hear from the patients in the trial
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


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  4. #4
    Quote Originally Posted by lunasicc42 View Post
    excellent. Will it be videod or anything... Any way for us to see
    Quote Originally Posted by lunasicc42 View Post
    And when do we get to hear from the patients in the trial
    We can't video, but will have a few of our Summer Program Students write up a summary to post here.

    You won't hear from those that participate in the trial, unless they choose to share, after it is published. Nor will you hear anything from me. I shared updates about the ChinaSCINet Trial and was accused of hyping the results.

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    Quote Originally Posted by Jim View Post
    We can't video, but will have a few of our Summer Program Students write up a summary to post here.

    You won't hear from those that participate in the trial, unless they choose to share, after it is published. Nor will you hear anything from me. I shared updates about the ChinaSCINet Trial and was accused of hyping the results.
    What if you guys broadcast the audio only?

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    Senior Member Moe's Avatar
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    Quote Originally Posted by lunasicc42 View Post
    And when do we get to hear from the patients in the trial
    The previous patients or the future ones? My understanding is we can't hear anything from the old ones "Because they live too far!" mabe better luck in the US network?
    Last edited by Moe; 06-09-2018 at 07:44 PM.
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    Senior Member khmorgan's Avatar
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    Quote Originally Posted by Moe View Post
    The previous patients or the future ones? My understanding is we can't hear anything from the old ones "Because they live too far!" mabe better luck in the US network?
    It was my understanding that video or audio recordings violate patient medical confidentially. So, why not ask them if it is okay? Well, they might not want to reveal their medical condition, but might consent under pressure. Hence, they should not even be asked when the only purpose is to help resolve curiosity or skepticism of some people here.

  8. #8
    Quote Originally Posted by Jim View Post
    We can't video, but will have a few of our Summer Program Students write up a summary to post here.

    You won't hear from those that participate in the trial, unless they choose to share, after it is published. Nor will you hear anything from me. I shared updates about the ChinaSCINet Trial and was accused of hyping the results.
    I have to say that feel that you are putting a far too positive spin an the accusations made against about your statements regarding trial results. My position is not based on fact but rather I am huge fan of irony

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    Senior Member Moe's Avatar
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    Quote Originally Posted by Moe View Post
    This is a multi-billion dollar industry that has been fed tons of money in our behalf for decades. That being said it's becoming obvious to me now that the biggest threat is if all SC victims disappeared or got all cured suddenly. Labs, researchers, universities would lose billions if it ended. So it makes sense that they maintain hype and postpone timelines.

    Nothing personal, your not to blame at all, just my 2 cents, I'll print every page of this tread and eat all the words if proven wrong.
    Quote Originally Posted by Jim View Post
    We can't video, but will have a few of our Summer Program Students write up a summary to post here.

    You won't hear from those that participate in the trial, unless they choose to share, after it is published. Nor will you hear anything from me. I shared updates about the ChinaSCINet Trial and was accused of hyping the results.
    just for the record, in case if it's in reference of what I posted earlier, I'm not aware of any member/admin here to represent worldwide SCI research, probably I miss-interpreted or misunderstood from I wrote, I didn't meant to accuse anybody in particular and even specified "nothing personal, not to blame at all".
    Last edited by Moe; 06-12-2018 at 09:59 AM.
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    Jim, my aunt lives about 30 minutes from this. Can she attend or is it just sci people?

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