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Thread: T10 Complete able to move legs with hip flexors?

  1. #1

    T10 Complete able to move legs with hip flexors?

    Hello All,
    Not sure if this is the right section so please feel free to move. I am a newbie that supposedly was has a T10 Complete injury, my injury took place on Feb 2nd of this year so I am a bit over four months into this. I spent six week at in-patient therapy at Burke Rehabilitation in New York. In the last 8-10 weeks I started to get feeling back in the skin of my legs, now at good 2/3rds down my thighs, and buttocks and during the last week of my stay my PT was pretty sure she felt a little activity in my hip flexors. As I continued in out patient PT I started to use Craig Scott braces and kind of shuffled my left leg with no action on my right leg until 10 days ago where I "walked" with walker and actually got the right leg to "go". Since then she has done a few sessions in the Zero-G for gate practice. My last PT session was a evaluation to see how things are going and I surpassed all my goals that she had set by a good margin. The last evaluation of the day was to check on my hip flexors, I laid on my side, legs bent, and asked to pull my leg up to my chest....and guess what? I freaking moved my leg a good 3-4 inches on my own power. I accused her of helping me which she denied (It is a good thing we like each other). After my accusations she got some sort of low friction pad to put between my legs to do it again so she could be hands off. Boom every time I was able to move my leg 3-6". We tried the other side (right) and I was able to do the same thing but I was not quite as strong. I am also getting trace movements of the muscle above my knee on the inside as well as being able to move my muscles in the top of my butt cheeks. I will say that PT session was pretty darn cool considering what my surgeon had told me just a couple month prior.

    With all that said I am not one to go chasing things which do not make sense and I am very much a realist when it comes to my injury and don't really believe in miracles. This morning I was on my side and the better half told me to move my leg and with no help I freaking moved my left leg a good 6" again and it got us talking. Obviously something is going on here which according to the initial diagnosis was never suppose to happen. I am not a fan of the Dr. I had at Burke and to be honest I do not think he has the knowledge to offer me any insight. I do wonder however if it would be worth talking to a specialist about these changes and see if there is anyway in seeing if I can get more stuff to come back over what my PT is doing? BTW, I cannot say enough good things about the PT's and OT's I had a Burke.

    I am not sure what all this progress is going to get me and I know I will not be dancing a jig anytime soon but I also want to make the most of my progress.

    Would love to hear your thoughts.

    Cheers,
    Jim

  2. #2
    Most return occurs during the first 3 months post injury, if return is going to happen, but for those who get some return, it can continue (but at a slower rate) for two years or even more.

    Keep working at your therapy as long as you can get funded. Talk with your PT about when you may want to have a repeat of your ASIA exam. We recommend it at 3 and 6 months and then every year thereafter.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  3. #3
    Great that your getting some movement. I was curious have you been able to control your bladder at all. It took me able 3 months before things started to work, it's not normal but I get by with very little leaking and cathing once before bed.

  4. #4
    Quote Originally Posted by stacyd View Post
    Great that your getting some movement. I was curious have you been able to control your bladder at all. It took me able 3 months before things started to work, it's not normal but I get by with very little leaking and cathing once before bed.
    Hey there,
    Interesting that you ask this. So I have had VERY little issues with incontinence since my accident with regular cathing till a few days ago when I got cocky and decided I could wear regular boxers. Since then I have had a few "accidents" where the volume of pee has been much larger then anything I have experienced. I had not seen a urologist because everything has been so good but I am making an appointment today to talk to someone about the issue. It has crossed my mind that the new activity may have something to do with this. I am not sure what this has to do with anything but yesterday I was cathing and I needed to get the twig and berries out and sorted and while doing so I experienced pain in the berries like someone had kick me there.

    I have to say I am a pretty frustrated, everything had been going pretty darn smoothly and then all of a sudden I have peed myself more in three days then I have in 4 months....WTH? I have felt strong and positive literally 98% of the time but this has done nothing good for the head.

    Cheers,
    Jim

  5. #5
    Have you previously had urodynamics done? It is common for your bladder to change significantly (neurologically) during the first 3 months post injury even without any return. You are still coming out of spinal shock. Our urologists would not do urodynamics sooner than 3 months; more often 6 months, due to this. It is likely that you are now developing a spastic bladder which is causing you to leak urine. You most likely need to be put on some anticholenergic medication by your primary care physician or the urologist if you can see them soon.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  6. #6
    Negative on the urodynamics. I just made an appointment with a well regarded urologist who's works with a lot of paras but the appointment is not until the first week in June. What I find strange is the fact that I went pretty much from no issues to full on peeing myself in two days, is it common for the bladder to change that drastically that quickly?

    Did I mention I am frustrated.....

    Thanks for the insight.

    Cheers,
    Jim

  7. #7
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    Quote Originally Posted by LJH View Post
    Hey there,
    Interesting that you ask this. So I have had VERY little issues with incontinence since my accident with regular cathing till a few days ago when I got cocky and decided I could wear regular boxers. Since then I have had a few "accidents" where the volume of pee has been much larger then anything I have experienced. I had not seen a urologist because everything has been so good but I am making an appointment today to talk to someone about the issue. It has crossed my mind that the new activity may have something to do with this. I am not sure what this has to do with anything but yesterday I was cathing and I needed to get the twig and berries out and sorted and while doing so I experienced pain in the berries like someone had kick me there.

    I have to say I am a pretty frustrated, everything had been going pretty darn smoothly and then all of a sudden I have peed myself more in three days then I have in 4 months....WTH? I have felt strong and positive literally 98% of the time but this has done nothing good for the head.

    Cheers,
    Jim
    This happens to me every once-in-a-while even though I use anticholenergic medication. My local GP (PCP I think it's called there) suggested it might be due to prostatitis as my urine culture came back clean. A five day course of antibiotics clears it up. It might be worth running the idea past your urologist.
    T4 complete since 30 April 2012

  8. #8
    Thanks for the info. When I first got home I had a pretty bad UTI which caused some incontinence but I am pretty sure I do not have a UTI as none of the tell tale signals are there. I need to find another Urologist just for the fact that I would like to get this sorted sooner rather then later and would rather not wait 2 weeks. I will do some dialing today to see what I can find.

    Cheers,
    Jim

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