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  1. #1
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    Wise Young, Grammy

    Please update if anything to share from your side.
    Leif Havton was doing lumbosacral work. Is he at research stage yet or didn?t succeed? When Jerry Silver starting trial which hopefully can be effective in bladder bowel sexual recovery?
    Epidural Stimulation looks good for BBS function recovery so which stage that therapy is?

    Wise Young?s lumbosacral research work looks not speedy enough.

  2. #2
    Jawaid, I have told you several times that our lab is working on lumbosacral. I can not report on their research.

  3. #3
    Quote Originally Posted by Jim View Post
    Jawaid, I have told you several times that our lab is working on lumbosacral. I can not report on their research.
    In all fairness to Jawaid, you and Wise have been saying "our lab is working on lumbosacral" studies for over 5 years now. In that time I haven't seen a proposal, an abstract, a paper, a poster or even an update on lumbosacral injury research. Am I missing something? Why should anyone take you seriously?

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    Senior Member Tim C.'s Avatar
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    Quote Originally Posted by Fly_Pelican_Fly View Post
    In all fairness to Jawaid, you and Wise have been saying "our lab is working on lumbosacral" studies for over 5 years now. In that time I haven't seen a proposal, an abstract, a paper, a poster or even an update on lumbosacral injury research. Am I missing something? Why should anyone take you seriously?
    And i'm out of the loop?
    Personally, I think all the confidentiality is bullshit, unless it's taking place at at "Black sites"?
    Is that it? Is Jason Bourne involved?

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    Senior Member lunasicc42's Avatar
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    Quote Originally Posted by Tim C. View Post
    And i'm out of the loop?
    Personally, I think all the confidentiality is bullshit, unless it's taking place at at "Black sites"?
    Is that it? Is Jason Bourne involved?
    personally I agree to a degree... All the confidentiality is BS to a point, we as sci individuals want to know exactly Whats going on within trials to possibly help them and in-turn help ourselves... Imho more willingness to share information and be open with the seemingly mundane issues and progress with a trial would help, not hurt progression

    To be clear I am not criticizing Wise or anything, it's these clinical trial hoops that are being needed to jump through that are a problem
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


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    Senior Member lunasicc42's Avatar
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    i know what you mean, for us getting news is a Totally unpredictable guessing game, it wouldn't be so bad if there were actual dates stated about when news regarding clinical updates about when endpoints will be shared but we don't get that; we get kind of a "it will happen when it happens" non answer
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


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    Quote Originally Posted by lunasicc42 View Post
    i know what you mean, for us getting news is a Totally unpredictable guessing game, it wouldn't be so bad if there were actual dates stated about when news regarding clinical updates about when endpoints will be shared but we don't get that; we get kind of a "it will happen when it happens" non answer
    Agreed with you
    Frustration kills now

  8. #8
    Senior Member lunasicc42's Avatar
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    Quote Originally Posted by Jawaid View Post
    Agreed with you
    Frustration kills now
    to be fair I also think we get that kind of non-answer from the researchers and clinicians is because honestly they don't know either, they're going through this process for the very first time. This hasn't already been done before so there is no timeline to compare it with
    "That's not smog! It's SMUG!! " - randy marsh, southpark

    "what???? , you don't 'all' wear a poop sac?.... DAMNIT BONNIE, YOU LIED TO ME ABOUT THE POOP SAC!!!! "


    2010 SCINet Clinical Trial Support Squad Member
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  9. #9
    Senior Member Tim C.'s Avatar
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    Quote Originally Posted by lunasicc42 View Post
    to be fair i also think we get that kind of non-answer from the researchers and clinicians is because honestly they don't know either, they're going through this process for the very first time. This hasn't already been done before so there is no timeline to compare it with
    fyi, jim is one of the nicest guys ut there, but as far as reporting on sci cure therapies going on please press him to reveal the non-existing;; otherwise, don't hold your breath; it ain't happening dude.
    In june '02 when i came to cc there was much excitement in "cure" corner; this forum was abuzz, albeit not a single trial going on in the us. Cr was drawing crowds and instilling hope so much so that even i traveled to china on my own dime along with many others which helped kick-start the whole china-net collaboration thing. That said, with all the vision of rasputin i can promise you that chronics won't substantially recover....ever.....(until u-chips electronically minimally benefit us) .
    Only acutes will someday get the benefit of medical science, acute; as in when first aid from first-responders is applied to prevent self destruction of neurons, etc.
    Gradually, thru attrition will chronic sci disappear.
    Mark my words.

  10. #10
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    No news from Jerry Silver?
    I guess he is starting this year or not?
    Nogo will hopefully start trial this year

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