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Thread: Pharmacy refusing to fill pain pills - PLEASE HELP!

  1. #21
    Most people on this forum have spinal cord injuries or disease (SCI/D) and paralysis in addition to their neuropathic pain. Many have myelomalacia in addition. It is presumptuous of you to assume that no one else here understands what you are going through, nor that anyone else has your type of pain. You do come across as a "drug seeker" so I can see how your pharmacist and physician may be leery of your need for more and more opioids. Opioids are in fact notorious for being poor drugs for neuropathic pain. If the meds you are on are not helping, why are you still taking them?

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  2. #22
    KLD has a good point about opioids they are horrible in treating neuropathic pain. if this is truely the kind of pain you are having the narcotics will do NOTHING for you but get you high feeling.
    T6 Incomplete due to a Spinal cord infarction July 2009

  3. #23
    Quote Originally Posted by JohnnyUF View Post
    @shashms, The only reason I recently changed is because I moved to a different city. I've stuck with this same one for awhile now. I probably got flagged because of my age. I'm only 31, and them seeing a 31 year old taking all these meds probably made them feel like I'm selling it. I always get "oh you're too young to be in this much pain" constantly. From friends parents, pharmacists, doctors, and a lot of different people. So, essentially, I am being profiled. And yes, my Dr. is a board-certified pain management dr. I'm unsure why you guys would assume I'm not seeing a board-certified pain dr. I'm much more knowledgeable than given credit for. I've been doing this for 5 years, doing research every day. Anyways, I'm not sure if you guys are familiar with my diagnosis - myelomelacia. It's basically a death sentence and incurable, unlike herniated discs which can be operated on. The only person I've talked to with my same diagnosis is further along than me, and he is in the same situation. Writhing around in bed all day, his body on fire, unable to work or hardly even talk. I'm almost to that point. I sit in bed all day just moaning and it worries my poor girlfriend. Anyways, feel free to look this diagnosis up. It's pretty rare and most people are unacquainted with it. I've only had 2 drs who even knew what it was, and he told me he couldn't help me, since it only gets worse. Anyways, thanks for your help guys.
    If your doctor is a board certified pain specialist, then you should be talking with him. I am sure he/she can suggest what to do next. You haven't mentioned why you haven't talked seen him/her to clarify ?why they led the pharmacist astray and whether you should simply change pharamacies. Or maybe the doctor just needs to call the pharamacist again to reassure them that you are being closely followed.

    Almost every person on this board with spinal cord injury has myelomalacia - degeneration of part of their injured spinal cord - over time. So to suggest you are different than most here is wrong.

  4. #24
    Senior Member Vintage's Avatar
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    JohnnyUF, if you are open to alternative therapy, search online under “lyme disease parasite cleanse” and “lyme disease zapper”. Also, Kratom stops pain for many people, but because you have been taking so much “hard stuff”, I doubt that Kratom would help you at this time.
    Female, T9 incomplete

  5. #25
    Johnny why don't you try taking less. I take pain pills but not that high. If I don't hurt to bad I just take naproxen for the pain. If I really hurt I take the other stuff. You have good days and bad days we all do.
    Art

  6. #26
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    Quote Originally Posted by Jim View Post
    No one is judging, you asked for advice.

    In my experience of being injured for 22 years and having intense nerve pain, it is counterproductive to be on that many meds.
    I have a tendency to agree with you Jim... It would be wise for Johnny to speak with and/or check into a chronic pain management clinic ASAP as some of those pills could interact with each other in very adverse ways.

    I am sorry about your pain Johnny and you are right, we don't know exactly what kind of pain you are in and each of us has different thresholds for pain, but believe it or not, we are trying to help.

  7. #27
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    I'm pretty sure that taking the maximum dose for both Lyrica and gabapentin is contraindicated since they're largely similar drugs.
    T3 complete since Sept 2015.

  8. #28
    Hey Johnny dealing witch chronic pain sucks. I know where you are I have been there for 24 years. T-10 Incomplete paraplegic got crushed by a dump truck working as a diesel mechanic. I have tried all those meds over the duration of 24 years. The only way after 24 years I have gotten any pain relief. I had a medtronic pump installed under my skin in front of my stomach. It administers low doses of baclofen and dialuadid right to my spine. I also take 10-325 percocets for break though pain about 3 times a day. Ask you Dr. for a trial injection to see if the pump might work. Good luck man pain sucks trust me I have been there.

  9. #29
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    I'm sorry if I sounded like I presumed you guys didn't know what myelomalacia was - that was wrong and rude of me to do. I apologize. It's just that most people on most forums don't, so I went ahead and assumed anyways (incorrectly). I'm embarrassed, but I'll move forward. I'm not sure why opiates don't work well for you guys, but they work pretty well for my pain. It's just another med in my arsenal that adds to the collective pain-relief of my body. I've been so bad lately. I can't even go out for dinner. I went out for dinner 2 weeks ago for 1 hour (we had to stand at the bar, because I cannot sit) and I have been paying for it ever since. My body screams with fire, even on all these meds, and I can do nothing but lay in bed and curl into fetal position. It's getting to be exhausting. I've slowly added each of these meds over the years, and they help (at first). But then something happens (like I have sex), and my base pain-line increases and I have to increase the meds again. It's not that the meds aren't working - it's that my pain slowly gets worse after each "event", I like to call it. The even can be as small as sitting wrong in a car, and it will contribute, permanently, to my base pain-line. I have a mattress in the back of my van, and I lay on it while my girlfriend drives me to drs. appoinements. This is the only way I can get around. I can't sit in a regular car seat, as I have to be fully reclined. If I am sitting upright (back/legs 90 degrees), I get a "pulsing-throbbing" pain that starts in my head, and soon my entire body starts to burn. Like I said, each "event" increases my pain levels, causing me to have to increase my meds. My dr is aware of this, which is why she knows I have no choice (with the current medical technology) but to increase my meds. I am hoping someday that stem-cells reach a point where it can cure my spinal-cord injury. But, until then, meds are all I have to keep me living comfortably.

    My doctor knows how painful Bartonella and Lyme disease alone are (many, many chronic Lyme patients commit suicide each year), and with that combined with my 8 herniated discs and myelomalacia, she believes me and thinks I'm anything BUT a drug seeker. It's just the pharmacy that presumes this. I'm sure they look at my age and number of medications I'm on. Walgreens all but forced my doctor to speak with them about my "treatment plan". They said that every time I fill my oxycodone, they would need to speak with my doctor, personally, on the phone for more information. My doctor and I have spoken many times about my treatment plan, and we agreed that my end goal would be to eventually get on the Fentanyl patch. However, my insurance requires a "step-wise" approach (weaker pain meds, then stronger, then if they don't work, the fentanyl patch). I'm not sure what my doctor's nurse and the pharmacist talked about, but Walgreens called and told me that I would have to stop taking the pain meds. Again, my dr and I have spoken MANY times about my plan, so I'm not sure what happened. I think Walgreens probably forced my doctor's nurse (NOT my dr) to say that I would eventually move off the pain meds, and this was the only way I was able to get my prescriptions prescribed this month. It took 1 week of me calling my dr and my pharmacy back and forth to get them to communicate (my dr took 4 days to call the pharmacist back). When I spoke with my doctors' nurse, all she told me was that they needed to have a "consult" with me before the pharmacist would fill my meds. During this "consult", she told me she was calling in Narcan, and then proceeded to tell me to tell my girlfriend how to use it (in case I accidentally overdosed). That was all she said - she never mentioned moving me off the pain meds.

    I won't be able to speak with my doctor about this until I see her in another 2 weeks. I also sent an email to my county's Senator (with the help of my grandpa) pleading my case, hoping she could do something about the Walgreen's situation.

    I am quite aware that my doses of both Gabapentin and Lyrica are both maxed out, but again, I have no choice. My dr and I have tried lowering my dose, but when we do my body feels like I've been hit like a truck and all I can think about is jumping off of a bridge. I know some of you may think I'm being dramatic, but I actually have a high pain tolerance. I was a bodybuilder 5 years ago (at 5' 9", 205 lbs of pure muscle). I was the type of kid that would skateboard, fall and get hurt, and get right back up and keep skating. I once skateboarded in a competition with a sprained ankle and aspirin. I got 3rd place in the competition lol. Anyways, the reason I was such a great weightlifter was that I could keep right on lifting through the pain. Every rep that hurt almost felt good to me. I embraced the pain, and kept going. That's why I got so muscular. Now, it's the opposite. Now every little tiny thing hurts. It's like God decided to call "opposite day" on my body's pain levels lol.

    And as far as kratom, I just found that out. I just got some and it is quite good. But, alas, the FDA just declared that they are making kratom illegal. Right on up there with other schedule 1 substances like heroin. So, not only are they deciding to make it hard for us to get pain meds, but they are also making it hard for us to get alternative pain supplements. It just keeps getting better
    Last edited by JohnnyUF; 02-10-2018 at 04:34 PM.

  10. #30
    Quote Originally Posted by JohnnyUF View Post
    I actually have a high pain tolerance. I was a bodybuilder 5 years ago (at 5' 9", 205 lbs of pure muscle). I was the type of kid that would skateboard, fall and get hurt, and get right back up and keep skating. I once skateboarded in a competition with a sprained ankle and aspirin. I got 3rd place in the competition lol. Anyways, the reason I was such a great weightlifter was that I could keep right on lifting through the pain. Every rep that hurt almost felt good to me. I embraced the pain, and kept going. That's why I got so muscular. Now, it's the opposite. Now every little tiny thing hurts. It's like God decided to call "opposite day" on my body's pain levels lol.
    What you're describing seems almost the definition of opioid hyperalgesia. Essentially opioid pain medications sensitize your pain receptors so that any little thing makes your pain intolerable. It sounds like you used to be the kind of guy who could push through anything, but now that you've been on opioid pain medications for a few years "every little tiny thing hurts". A reasonable option would be discontinuing all opioid pain medications.


    Quote Originally Posted by JohnnyUF View Post
    During this "consult", she told me she was calling in Narcan, and then proceeded to tell me to tell my girlfriend how to use it (in case I accidentally overdosed). That was all she said - she never mentioned moving me off the pain meds.
    Narcan is a great thing, make sure you keep it on hand and the people around you know how to use it. It might save your life one day.

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