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Thread: What's your experience with a power wheelchair?

  1. #1

    Post What's your experience with a power wheelchair?

    Do you have a SCI injury and use a power wheelchair? How was your experience getting it? Did someone help you get started? PatientsLikeMe is teaming up with Permobil to learn from people with spinal cord injuries what it?s like getting a new power wheelchair and how the process could be improved to better suit their needs.

    Interested in participating? Take the survey here:
    https://www.patientslikeme.com/ore/a...4-8534741e77d6

    Sponsor:
    PatientsLikeMe, on behalf of a power wheelchair manufacturer
    Participants recruited through: PatientsLikeMe.com (PLM), and through other avenues that may include social media (e.g. Facebook), patient advocacy groups, and personal networks.
    IRB: New England IRB study WO 1-2574-1 (exempt); If you have questions about your rights as a research subject, or you have questions, concerns, or complaints, contact the New England Independent Review Board (NEIRB) at 800-232-9570
    Researcher: Kristina Simacek is a research investigator on this study. For questions or more information about this research you may contact her at (617) 500-1623

    If you want to know more about me, my name is Lauren and I'm Study Experience Manager for PatientsLikeMe. If you haven't heard of PatientsLikeMe, we're a free website where people with any disease or condition can track their health, learn more from others by comparing treatments, symptoms and experiences, and connect directly with people who have the same condition for support and advice. As people report on their condition and share information, they're contributing data that helps to advance research about their disease.

    Last edited by PatientsLikeMe; 02-06-2018 at 05:19 PM.

  2. #2
    Senior Member lynnifer's Avatar
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  3. #3
    @lynnifer apologies! Unfortunately, you have to be a U.S. resident to take this particular survey

  4. #4
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    Quote Originally Posted by PatientsLikeMe View Post
    Do you have a SCI injury and use a power wheelchair? How was your experience getting it? Did someone help you get started? PatientsLikeMe is teaming up with Permobil to learn from people with spinal cord injuries what it?s like getting a new power wheelchair and how the process could be improved to better suit their needs.

    Interested in participating? Take the survey here:
    https://www.patientslikeme.com/ore/a...4-8534741e77d6

    Sponsor:
    PatientsLikeMe, on behalf of a power wheelchair manufacturer
    Participants recruited through: PatientsLikeMe.com (PLM), and through other avenues that may include social media (e.g. Facebook), patient advocacy groups, and personal networks.
    IRB: New England IRB study WO 1-2574-1 (exempt); If you have questions about your rights as a research subject, or you have questions, concerns, or complaints, contact the New England Independent Review Board (NEIRB) at 800-232-9570
    Researcher: Kristina Simacek is a research investigator on this study. For questions or more information about this research you may contact her at (617) 500-1623

    If you want to know more about me, my name is Lauren and I'm Study Experience Manager for PatientsLikeMe. If you haven't heard of PatientsLikeMe, we're a free website where people with any disease or condition can track their health, learn more from others by comparing essay writing service treatments, symptoms and experiences, and connect directly with people who have the same condition for support and advice. As people report on their condition and share information, they're contributing data that helps to advance research about their disease.

    Hello Lauren,

    I'm working on my second Wheechair & Seating manual for patients and need help with the materials. Perhaps you could share the materials you have on SCI injury and use of a power wheelchair. I cooperate with The Quantum Solution engineers group, but my task is more theoretical, while their project will be based on my results, so I'm pressed for time. I'd appreciate any help.

    Renee Degutis

  5. #5
    Quote Originally Posted by ReneeD View Post
    Hello Lauren,

    I'm working on my second Wheechair & Seating manual for patients and need help with the materials. Perhaps you could share the materials you have on SCI injury and use of a power wheelchair. I cooperate with The Quantum Solution engineers group, but my task is more theoretical, while their project will be based on my results, so I'm pressed for time. I'd appreciate any help.

    Renee Degutis
    I suggest you contact this person directly. She has not returned to our site since early 2018.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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