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Thread: Colstomy

  1. #31
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    Quote Originally Posted by Tim C. View Post
    How do you care for it?
    Being a c3c4 quad I can't change it on my own so either my wife or nurse change it. I use a Coloplast one piece system.

  2. #32
    Senior Member pfcs49's Avatar
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    One note of caution!

    Although the colostomy works well for me, there was one huge downside that I had:
    Three+ years later, the rectal stump went rogue! I started having noxious bowel accidents of malodorous slimy discharge. I slept on a chux and wore a diaper for ~15mos.
    I went to 3 different GI specialists. I was told that I had a type of colitis. That without fecal material to nourish the flora on the intestinal walls that aid in processing the material, things go crazy.
    I stuffed a lot of expensive, off formulary (self-pay) up my ass to no avail! The consensus was that I need to remove the leftover intestine and as much of the rectum as possible for relief, and I did get the surgery. Now the discharge is very seldom and small, manageable amounts as in maybe I leaked, I smell something slightly, I'll check my britches in the PM.

    Apparently this is uncommon, but a possibility, so be forewarned.
    69yo male T12 complete since 1995
    NW NJ

  3. #33
    This is called diversion colitis:

    https://www.sciencedirect.com/scienc...12097113701389

    http://cursoenarm.net/UPTODATE/conte...source=HISTORY

    A good gastroenterologist should be able to diagnose this and discuss options for treatment with you.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  4. #34
    Senior Member pfcs49's Avatar
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    Quote Originally Posted by SCI-Nurse View Post
    This is called diversion colitis:

    https://www.sciencedirect.com/scienc...12097113701389

    http://cursoenarm.net/UPTODATE/conte...source=HISTORY

    A good gastroenterologist should be able to diagnose this and discuss options for treatment with you.

    (KLD)
    Absolutely! It was informative reading your 2 links. The last GI Dr told me i had three options: 1/re-connect it and he guaranteed it would go away 2/ live with the discharge or 3/excision, which is what I had done.
    Also was interesting that the condition may well take a long time to appear, over 3 blissful years in may case.
    Also, the data on how often it occurs.
    Incidentally, early on I went through the short chain fatty enema protocol with no luck excepting additional material to discharge
    69yo male T12 complete since 1995
    NW NJ

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