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Thread: Mutant infection, heeelp!!!

  1. #1

    Mutant infection, heeelp!!!

    Ive been suffering from a serious chronic urinary tract infection for a long time , more frequently the past few months.
    The infection is mostly E coli but has even changed sometimes.
    I havent done any rehabilitation. Already waiting to be called from Santa Corona Pietra Ligure in Italy but the last times Ive been cured in hospitals unsuccesfuly because 1 week after using antibiotics prescript-ed by them the infection returns.
    Last infection I took a therapy of Ciproflaxin 500mg 2 times a day for 12 days , 3 days later I dealt with urine loss and fever so was forced to take Augmentin times a day for 6 days 125mg.
    Im feeling a little better now even though i still have terrible pain but at least I can hold more than 300ml up to 450ml safely.

    Doctors say that this is all because i have a neurogenic bladder which leads to using a lot of intermittent cathing which leads to infections.
    Im about to finish my cure which i dont believe will be succesful.
    Do you guys have any idea how I can be cured...or some kind of solution...

    Additional information :
    Im t9 paraplegic
    I take oxybutinine 5mg 3xday
    3 years post accident

  2. #2
    Also another thing ive noticed is that my abdomen is always swollen and im not even fat.
    Probably the intensines have something to do with it ?

  3. #3
    Well, since it's not always the same bug, you technically don't have a mutant infection but actually just many infections, or an infection that isn't being treated properly...a mutant infection would imply that you get the same bug all the time and it comes back resistant to the antibiotics you took over and over.

    A few days to a week on antibiotics is for people with normal bladders and simple infections - 1 week of antibiotics isn't usually long enough to get rid of a UTI in neurogenic bladders, or at least that's what I was told. I know I get given 10 days to 2 weeks of treatment normally and any less than that in my experience, the UTI will come back. If it's an unusually strong bug, or comes back, then you go on a longer treatment. That usually does the trick and it doesn't come back.

    Maybe it's time to take a look at how you cath & bowels and if that's what could be causing frequent infections? Though some people can do everything right and still get infections...there's all kinds of supplements and tricks people try to reduce infections, search on here because there's tons of suggestions.

  4. #4
    Well the antibiotics are getting less effective for sure , thats why i wrote mutant.
    What supplements would you suggest ? Doctors never mentioned any supplements to me before , only antibiotics.
    I tried taking some vitamin C once but didnt feel any difference so i quit

  5. #5
    There is some evidence that d mannose can help prevent e. coli caused urinary tract infections. Search on this site for anecdotal accounts of its use and success. Search the internet for sources and dosage ideas.

    You are experiencing frequent and recurring urinary tract infections. I'd suggest that you see a specialist called an infectious disease doctor. I find that practitioners in this specialty are more adept at prescribing antibiotics than urologists or primary care physicians. That said, treating an e. coli caused infection, with Cipro is using a very powerful and broad spectrum antibiotic unnecessarily. There are likely other antibiotics that would be equally as effective without using an antibiotic that should probably be saved as a drug of last resort.

  6. #6
    Quote Originally Posted by gjnl View Post
    That said, treating an e. coli caused infection, with Cipro is using a very powerful and broad spectrum antibiotic unnecessarily. There are likely other antibiotics that would be equally as effective without using an antibiotic that should probably be saved as a drug of last resort.
    It's funny you mention that. I've noticed that anyone *other* than urologists and infectious diseases all seem to jump straight to Cipro for UTIs. I agree with you, I'd been telling them for years I didn't do well on it, and sure enough the FDA and other agencies came out with blackbox warnings about it. I don't understand why it's still the go-to antibiotic in a lot of places...

  7. #7
    Quote Originally Posted by twistties View Post
    It's funny you mention that. I've noticed that anyone *other* than urologists and infectious diseases all seem to jump straight to Cipro for UTIs. I agree with you, I'd been telling them for years I didn't do well on it, and sure enough the FDA and other agencies came out with blackbox warnings about it. I don't understand why it's still the go-to antibiotic in a lot of places...
    Doctors know it is a "big gun" that kills most anything. Most doctors don't treat complex urinary tract infections...so before they get the results of a culture & sensitivity, (C&S), they prescribe Cipro, and for most of their patient load, Cipro does the job. People with spinal cord injury using various forms of bladder management don't fall into the category of simple infections. Most doctors just want to get the infection treated and don't expect frequent and recurring urinary tract infections. Your doctor needs to understand your situation and be willing to look at your case through different eyes than what they normally treat.

  8. #8
    There are many approaches to dealing with recurrent infections with a neurogenic bladder
    if you perform intermittent catheterization 1) do you use a new catheter every time? Or do you hand clean your catheters? 2) Have you had a cystoscopy lately? a cystoscopy could tell if you have little tears in your urethra from cathing frequently which makes you susceptible to infection. 3)have you been screened for stones in you bladder or kidney? Stones can make you prone to bacteria.

    pbr
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  9. #9
    Quote Originally Posted by gjnl View Post
    Doctors know it is a "big gun" that kills most anything. Most doctors don't treat complex urinary tract infections...so before they get the results of a culture & sensitivity, (C&S), they prescribe Cipro, and for most of their patient load, Cipro does the job. People with spinal cord injury using various forms of bladder management don't fall into the category of simple infections. Most doctors just want to get the infection treated and don't expect frequent and recurring urinary tract infections. Your doctor needs to understand your situation and be willing to look at your case through different eyes than what they normally treat.
    Oh I'm aware and I have docs that agree now and understand that they aren't simple infections, I guess I was just pointing out what I noticed having seen a lot of random docs before. Most know Cipro is a "big gun" as you put it, so it makes even less sense that it's what they jump to right away. But then again like you said, a lot of docs just want to write a script and get people out the door.

    Anyway, sorry to the OP, didn't mean to derail the original post.

  10. #10
    Senior Member Vintage's Avatar
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    Hi Martiniani. Sorry you're feeling bad. You are probably drinking enough water and being clean with your cathing. Are you able to pee at all, other than by cathing? I am T9, as are you. I had constant UTI's with cathing and Foleys. I am an "incomplete", so I can pee without cathing,...and now that's what I do. I wear a diaper, don't cath, and I don't have UTI's.

    I'm sending you a private message. Please let me know if you receive it. I studied Croatian for about a year. I really enjoyed it. Nice people.
    Female, T9 incomplete

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