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Thread: Desperately Need Help to Get Rid of Chronic UTIs

  1. #21
    The urologist should have reopened the sphincterotomy if you did well on that with condom catheters. Of course, you leaked!
    If you have more than 3 UTI's a year then you should switch to sterile cath each time. Listerine? um, not sure it really kills anything. I will ask our Inf. MD. Bleach does kill HIV, Ebola, C diff but be very careful or you will have bleach spots/spills everywhere.
    CWO
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  2. #22
    KLD - Thank you very muchfor your in-depth reply. The symptoms that I get from my UTIs are increased andvery uncomfortable spasms as well as really stinky urine. I know quite a few ofmy UTIs are mostly colonization. I am aware that the general practice is to nottreat general colonization. However, I am deathly afraid that if I wait longenough to develop a fever, chills, and other symptoms, that I will potentiallygo septic with the infection. I do not want that to happen.

    My urologist has discussedcollagen as a bulking procedure. I have not made a decision either way as towhether or not I will try this to see if it works.

    I will do a much better jobof having my help clean with bleach and clearly much more regular basis

    I will check out thesewipes to see if they make a difference.

    I was using bleach To clean my bags. However, thatstill did not help so I went back to using vinegar. I will go back to using thebleach solution. I am still currently using a condom catheter for draining mybladder and emptying what's left in my bladder every few hours through mysuprapubic tube. I have the suprapubic tube clamped off otherwise

    I have not had any specifictests for urinary stones. Have been checked for kidney stones however. I dohave one small kidney stone in the lower lobe of my left kidney. It has beenthere for years and has not caused any issues. My urologist has said that myprostate is good. I will ask him about possibly being evaluated for theprostatitis

    KLD - Forgive me and please don't take this the wrong way.Can you just tell me your experience And length of time in working with folkswith spinal cord injuries? Thank you very much for all you do here on thisforum.

    Lastly I want to thank everyone here for their suggestionsand comments to try and help me with these chronic UTIs. Maybe someone can alsohelp me when replying back to people's posts on how I can single out specificsections or quotes from someone and have my reply show up underneath it. Thankyou very much.



  3. #23
    I have had Botox treatments 3 different times. Like you said lynnifer, it worked for a little while about 4-6 months and then returned back to the way I bladder was acting prior to the treatment

  4. #24
    gjnl - I have tried D mannose before. Unfortunately it did not help.

  5. #25
    gjnl - I'm getting very close to doing that. Thank you very much

  6. #26
    Quote Originally Posted by weelz58 View Post
    KLD - Forgive me and please don't take this the wrong way.Can you just tell me your experience And length of time in working with folks with spinal cord injuries? Thank you very much for all you do here on this forum.
    CWO is covering the SCI-Nurse role this week, but all four of the SCI-Nurses have many years of experience in working with people with SCI. For myself, I recently retired after 28 years of being a clinical nurse specialist at a Veterans Affairs SCI Center; prior to that I was the SCI CNS and program coordinator at a local regional SCI acute rehabilitation center for 8 years, and prior to that, a staff nurse on the general rehab unit at that same center for 5 years.

    Weelz, we would also appreciate it if you would complete your profile, since the information that members look for in putting some context to your posts (date of SCI, level of injury, location where you resident, age, etc.) is all missing from your profile.


    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

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