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Thread: Midodrine - New Med For Me

  1. #1

    Midodrine - New Med For Me

    As with almost all quads my bp runs around 90/60. I've felt drained and lightheaded at times so a doctor is putting me on 5mg of Midodrine HCL three times a day which hopefully will help. I'm actually nervous to take it as I'm afraid of auto dysreflexia. I've had my share of it which is painful.

    A few questions to those on it.

    Did you notice a difference and how long did it take to notice?

    Can you still take ed meds like viagra?

    Anyone experience side effects?
    John-B

  2. #2
    Quote Originally Posted by 490 View Post
    As with almost all quads my bp runs around 90/60. I've felt drained and lightheaded at times so a doctor is putting me on 5mg of Midodrine HCL three times a day which hopefully will help. I'm actually nervous to take it as I'm afraid of auto dysreflexia. I've had my share of it which is painful.

    A few questions to those on it.

    Did you notice a difference and how long did it take to notice? Midodrine is a quick acting medication, but not very long lasting, that is one of the reasons it needs to taken so often. The maximum dose you can take is 10mg, three times per day.

    Take it before getting out of bed in the morning and pace it throughout the day to meet your requirements. Don't take it within a couple of hours of going to bed for the night. If you do a bowel program at night, take your last dose early enough to get you through the bowel program (up on toilet or commode chair), but not so late that the drug is still active. You won't have autonomia as long as you are up in your chair. I find that works for a couple hours.

    Can you still take ed meds like viagra? I don't know. Ask your doctor or pharmacists.

    Anyone experience side effects? I've not had any side effects I can directly correlate to Midodrine.
    Good luck with it.

  3. #3
    Thank you. Can you tell a noticeable difference?
    John-B

  4. #4
    Quote Originally Posted by gjnl View Post
    Good luck with it.
    Yes. I can tell when the dose is starting to wane. Getting out of bed and in the chair is a lot better.

    I'd suggest that for the first several weeks that you keep a blood pressure log. Check your blood pressure before you take Midodrine in the morning (sitting up in bed). Then take your blood pressure about 30 minutes after getting in your chair. During the day, do the same, take blood pressure before taking the medication and then 30 minutes after. Get to know how and how long the drug works for you.

  5. #5
    After transferring into my chair and brushing my teeth I took my blood pressure at 8:45AM. It was 87/61 with my heart rate at 72. At 9AM I took my first 5mg midodrine and at 9:38AM it was 110/67 with my HR at 70. I worked out for a hour and after about a ten minute cool down it was 120/78 with my HR at 72 at 11:07AM. After eating I retook it at 12PM, 108/64 75. Before I took my 1PM pill it was 112/65 76. So far it seems to be doing it's job but I have noticed more muscle spasms.
    John-B

  6. #6
    According to MedFacts.com, 1.69% of MIDODRINE HYDROCHLORIDE patients reported MUSCLE SPASMS as a side effect.
    http://factmed.com/study-MIDODRINE%20HYDROCHLORIDE-causing-MUSCLE%20SPASMS.php

    I've never had muscle spasms (C6/7 complete) and didn't develop them as a result of taking Midodrine.

    Here are some common side effects:

    More common

    • Blurred vision
    • cardiac awareness
    • headache
    • pounding in the ears

    Rare

    • Fainting
    • increased dizziness
    • slow pulse

    Some side effects may occur that usually do not need medical attention. These side effects may go away during treatment as your body adjusts to the medicine. Also, your health care professional may be able to tell you about ways to prevent or reduce some of these side effects. Check with your health care professional if any of the following side effects continue or are bothersome or if you have any questions about them:

    More common

    • Burning, itching, or prickling of the scalp
    • chills
    • goosebumps
    • urinary frequency, retention, or urgency

    Less common

    • Anxiety or nervousness
    • confusion
    • dry mouth
    • flushing
    • headache or feeling of pressure in the head
    • skin rash

    Rare

    • Backache
    • canker sores
    • dizziness
    • drowsiness
    • dry skin
    • leg cramps
    • pain or sensitivity of the skin to touch
    • stomach problems such as gas, heartburn, or nausea
    • trouble seeing
    • trouble with sleeping
    • weakness



  7. #7
    The risk of midodrine triggering an AD episode is actually fairly low. If it is going to occur, it will usually be the first time you take the drug, and you can then stop it's use. Many people do OK with just a morning dose (ideally taken about 20-30 minutes before getting out of bed). You should use it based more on symptoms than any absolute blood pressure.

    (KLD)
    The SCI-Nurses are advanced practice nurses specializing in SCI/D care. They are available to answer questions, provide education, and make suggestions which you should always discuss with your physician/primary health care provider before implementing. Medical diagnosis is not provided, nor do the SCI-Nurses provide nursing or medical care through their responses on the CareCure forums.

  8. #8
    I suggested that you take your blood pressure before and after taking Midodrine (Post #4, this thread) not as a predictor as to when you should take it, but to have a baseline of your blood pressure before and after taking the drug and when you take it and why (record your symptoms). Your doctor (mine did) may want to know the percentage difference before and after taking Midodrine and how your body is reacting to the medication.

    Midodrine is a drug that is terribly variable with each individual and may also have effects that change over time. Keep track...keep a record of how you are doing on Midodrine to share with your doctor.

  9. #9
    I take 2 x 2.5 mg when I wake up, and I take 1 x 1.25mg (2.5mg cut in half) to 2.5 mg as needed through the day depending how I'm feeling.

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