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Thread: Are we owed a cure by those saving us?

  1. #1
    Senior Member Tim C.'s Avatar
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    Are we owed a cure by those saving us?

    Are we owed a cure by those saving us?
    Can it be ? Should it be?
    Ever consider this?

    Great, the surgeons get kudos for saving us. They hone their skills, try different surgeries to re-connect our vertebrae.
    Then their colleagues get them benefit of studying us for however long we live.
    Test wheelchairs and gadgets on us. Keep an industry in practice, earn$
    We enter clinical trials for care technologies. Pharma wins big on us.
    Some of us with $ can survive, some have meaningful lives, still, others have menial lives, while the rest of us fade away, families destroyed.
    To what end?
    "Cure, cure, cure is coming" is whispered in our ears.
    "Hang in, be patient" "Enjoy today, albeit you're a specimen slide"
    "Ok, yeah pain is tough, neuro and related sci issues suck"
    "But each day is one day closer to getting your body back"
    > Enough of this, maybe?
    You guys studied us enough, time to get your shit together and fix us: or admit you can't.
    We're not fodder for your studies, poster children for $ revenue.
    Next time it could be your accident.
    Remember The March of Dimes, there's enough $ out there that most of a cure could be accomplished in a few short years; if it was taken seriously like Polio.
    Is this asking too much?
    Or should rehabs stop painting rosy pictures to the hi, hard to care for quads, and give us a choice and means to do it?

  2. #2
    Quote Originally Posted by Tim C. View Post
    Are we owed a cure by those saving us?
    Can it be ? Should it be?
    Ever consider this?

    Great, the surgeons get kudos for saving us. They hone their skills, try different surgeries to re-connect our vertebrae.
    Then their colleagues get them benefit of studying us for however long we live.
    Test wheelchairs and gadgets on us. Keep an industry in practice, earn$
    We enter clinical trials for care technologies. Pharma wins big on us.
    Some of us with $ can survive, some have meaningful lives, still, others have menial lives, while the rest of us fade away, families destroyed.
    To what end?
    "Cure, cure, cure is coming" is whispered in our ears.
    "Hang in, be patient" "Enjoy today, albeit you're a specimen slide"
    "Ok, yeah pain is tough, neuro and related sci issues suck"
    "But each day is one day closer to getting your body back"
    > Enough of this, maybe?
    You guys studied us enough, time to get your shit together and fix us: or admit you can't.
    We're not fodder for your studies, poster children for $ revenue.
    Next time it could be your accident.
    Remember The March of Dimes, there's enough $ out there that most of a cure could be accomplished in a few short years; if it was taken seriously like Polio.
    Is this asking too much?
    Or should rehabs stop painting rosy pictures to the hi, hard to care for quads, and give us a choice and means to do it?
    Tim, This journey is hard and frustrating. I have yet to run across a rehab painting a rosy picture. Every R, PT and OT i have encountered over 44 years has been honest that it is hard. I do feel the years I have had were worth it and there was a quality of life. My family loves me and I enjoy the gift of grandchildren. Watching them and playing with them brings joy to my life. I feel blessed even though there are days that stink. The good has outweighed the bad for me.

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